Our son was born on January 2, 2006. He was 6 1/2 weeks premature and weighed four pounds and ten ounces. After spending twelve days in the hospital, he was welcomed home by his big bubby, Caleb, and big sisters, Kylie, Cheyenne, and Madilyn. Micah's first hospital visit was March 2006 for dehydration and pneumonia. At that time we learned that he had kidney reflux and acid reflux. During the summer of 2006 Micah was diagnosed with mild hydrocephalus, thinning of the white matter of the brain, developmental delay and asthma. We were told that Micah would probably never crawl or walk. In October we discovered that Micah was aspirating everything that he ate, so all food was taken away from him and he was fed only through an NG tube. Micah's lung issues improved, but he became dehydrated again. In January 2007 Micah had a G-tube placed and a procedure done so he could no longer vomit. After spending several days in the hospital because he could not tolerate his feeds, he came home with a food pump. Micah dehydrated again in February and had another two week stay in the hospital. In early March the G-tube was traded in for a G/J tube. In late March Micah's stomach and intestines ruptured. During the emergency surgery to repair his stomach and intestines, the surgeon also redid Micah's surgery from January, removed his appendix, performed a pyloroplasty and inserted a separate G tube and J tube. The two new tubes didn't work for Micah ,so a PIC line was inserted to provide nutrition. After four weeks in the hospital Micah returned home for a week. The PIC line became infected and he was once again in the hospital with a severe MRSA infection. The PIC line was replaced with a central line.In June of 2007 Micah was diagnosed with Complex 1 Deficiency Mitochondrial Disease. This incurable disease attacks the energy making part of the body, and therefore all organs of the body are effected.Thankfully Micah had a few good months at home where he learned how to crawl, walk, run, and talk. Although Micah had many days of pain, he never lost his determination or his wonderful contagious smile. On January 19, 2008, Micah started running a fever. By the evening of Sunday, January 20, it was staying at 104-105 with Tylenol. We made a quick trip to Riley Children's Hospital where Micah was admitted for the last time. By Monday afternoon the tests showed that he had RSV and he began to have seizures every 30-45 seconds. By Monday evening he was unable to do all the work necessary for his body to function and he was put on life support. The next few days were agonizing as we waited for Micah's body to rest and gain strength. However, by Thursday, Micah's right lung had collapsed, his blood sugar was out of control, his bowels and kidneys wer no longer processing his waste, his body temperature was still well above normal even though he had been on a cooling mat for three days and taking Motrin as often as he could, and even though he was on life suppoert, he still had to be bagged four times that day in order to remain alive. After a long conversation with many docotors, Daddy and I were faced with the toughest decision of our lives. Having watched Micah struggle for two years and twenty-two days, and watching him suffer from the last four day of his life, we knew it was time to let Micah go home to be with Jesus.We know that Micah is no longer in pain. He is able to run, dance, eat, and sing praises to Jesus. Even though we miss him terribly and our hearts truly ache, we know that he is healed and happy.Micah.....we love you!!!Mommy and Daddy
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