Brave Warrior, Loved Son... Gavin Cole. profile picture

Brave Warrior, Loved Son... Gavin Cole.

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About Me


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I'm a mom of 3 wonderful kids... Skyler, Andrew,and Gavin. My latest life adventure started on August 24th, 2005. That's the day God handed me the hardest challenge of my life... Gavin Cole. Gav was born with Hypoplastic Left Heart Syndrome. Terry and I were given 3 options... The only one I liked was the option of surgery to possibly bring my little son home. Gavin has been a survivor of 2 open heart surgeries and one heart cath... and a few hospital stays in between for RSV and Atrial Flutter. Being a mom to a CHD baby is not very easy and it's very taxing on the emotions but you take one day at a time and let Jesus drive. I don't define my life as just being a mom to Gavin... my other kids are equally important and loved. Ask anyone who knows me and they will tell you in my home you'd never know anyone was "broken". We love every day we have!
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I am the oldest of 7 children (five of my mom's and 2 of my stepdads. My mom's second husband (2/3) abused my brother and I for a few years until my mother finally had enough and took us back to NY to our father. My brother was abused more than I was but for years I thought he barely remembered most of it. But then one day I read his blog and realized he remembered more than me. I'm proud to say that despite it all we have grown to be non-abusive adults. I could never imagine my children going through what I did. And I know when my niece/nephew is born my brother will make up for all he lacked as a young boy! So I support Death for all child abusers! No child should have to live their life in fear!Kelsey's story is very stirring and goes to show how many children "SLIP THROUGH THE CRACKS!" PLEASE... if you know of any children that are "slipping" STEP UP and say something!
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My Interests

CHD AWARENESS IS IN OUR HANDS!!Hypoplastic Left Heart Syndrome Research! Gavin's Heart! A normal Heart!
Glitter Graphics by MyWackoSpace.comCHD Research. Researching medical words. Scrapbooking. Anything to do with my kids. SHOPPING!!Gavin's Second Surgery Pics!!

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I'd like to meet:

other CHD moms to share their experiances... especially local moms so we can get together for coffee!
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whateverlife.comI have made friends with two wonderful ladies who have done so much for CHD Awareness and CHD moms. First of all, Karen Prior from England. Karen has an angel in heaven, Lewis Jack Prior, who lost his life waiting for a heart transplant. Despite her tremendous loss she has been my rock since I met her on LHM message boards. Even though we have never met in person she is my inspiration and my rock. Please visit her site!Another wonderful crusader for CHD awareness is Sandy Thomas from California. Her daughter, Kaitlyn, lost her very little life to Tricuspid Atresia but in her memory Sandy has built a place for all CHD Families to come and share the experiances, ask questions and simply vent. Sandy is also the creator of all my awesome tags and is the reason I have met so many endearing moms. Please visit her site at www.societyforchda.com. or simply visit her myspace by clicking her link below.
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Pick Up The Coin and Scratch!! Check out all the cool stuff you can do at Rockyou.com or Blingee.com!
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Music:

Anything KENNY CHESNEY!! Anything that has meaning. Anything mainstream.
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Movies:

Star Wars and Harry Potter. Chick Flicks. NO SCARY MOVIES!! Love Disney Pixar movies!!

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Television:

ER!!! Law and Order!! Thank goodness for DVR! During the day Cartoons... love The Backyardigans!!
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Books:

The Bible All Chicken Soup Books. My Nursing Dictionary that has helped me so much!!

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Heroes:


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First and foremost my hero is GOD for all that HE has done for me in the past 2 years... Saving my sister... giving me my son. And for everyday HE allows me another day with my family. My sister, Amanda, for all she has endured in the last two years and most recently. She is and will be a survivor.
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My son, Gavin, for all that he teaches me everyday of his little life. For being such a brave boy and enduring more than most children do their whole childhood. Skyler and Andrew for their unconditional love and support. The best 2 siblings and kids anyone could ask for. Dr. Neil Devijian for his awesomely God-gifted talent. Without him I would be deeply saddened. The doctors of Pediatric Cardiology out of Albany but mostly Dr. Kamenir for his reassurance and the ability to trust him and his ability to be honest. Amy B. of CHC for always being there when I needed her most and for being Gav's advocate for the best medical care possibly. Greg for being his resp therapist and his great advice. Kelly, who we will miss, for helping Gav overcome his physical limits and making him a monster!! He now walks all over the place... Yeah!!! My mom for always making time to come to NY to be with me when I need her most! It took me becoming a mom to realize all she did for me. And all the other CHD moms. Someday we will all be in heaven with our whole angels enjoying the presence of each other and GOD!
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My Blog

MILA and ANDI

Last night I came across the myspace page of Andi and Mila... In short Mila has an inoperable brain tumor and Andi is loving her daughter the way we all should... like each day could be her last!!&nbs...
Posted by I'm a Princess! My Father is King Of Kings! on Tue, 13 Feb 2007 01:43:00 PST

I am a CHOSEN MOTHER!

~THE CHOSEN ONE~I had a dream the other night,It came to me so clear.I stood before the throne of God,Afraid to come too near.God said to me, I hear your prayers,There you cannot find.I asked you here...
Posted by I'm a Princess! My Father is King Of Kings! on Mon, 12 Feb 2007 01:09:00 PST

When Time Stands Still!!

""When Time Stands Still"by Debbie Hilton-KammIt starts with news impossible to hearIt conjures up your every fearIt's when they say your child is illThat's when time just stands stillIn that moment,...
Posted by I'm a Princess! My Father is King Of Kings! on Mon, 12 Feb 2007 01:08:00 PST

A mother's grief!

 I moan from somewhere deep within myself as I pull you into my lap, to protect you, to keep you safe. We rock together, a mother and son, as I struggle to contain the grief only a mother can fee...
Posted by I'm a Princess! My Father is King Of Kings! on Sun, 11 Feb 2007 05:21:00 PST

As I watch you sleeping!

As I Watch You Sleeping As I watch you sleeping,my problems seem so small.The rewards you have to offer me,are so big and so tall. As I watch you sleeping,I realize just how great your accomplishmen...
Posted by I'm a Princess! My Father is King Of Kings! on Sun, 11 Feb 2007 05:06:00 PST

God Made Me For you!

GOD MADE ME FOR YOU Just because I'm not all there,Please don't think it isn't fair,God Made Me For You. You may think now you've been left out,I'll bring you joy there will be no doubt,God Made Me ...
Posted by I'm a Princess! My Father is King Of Kings! on Sun, 11 Feb 2007 05:01:00 PST

God's Loan!

God's Loan "I'll lend to you for a little time,A child of mine," He said,"For you to love the while he livesAnd mourn for when he's dead." "It may be six or seven yearsOr twenty-two or three,But will...
Posted by I'm a Princess! My Father is King Of Kings! on Sun, 11 Feb 2007 04:53:00 PST

Stephanie Husted Poem...Beautiful!!

This is a poem written by a fellow heart mom, Stephanie Husted. I think it expresses the experience of "heart parents" very well so I had to share it with you all. CHD Awareness Week is here once agai...
Posted by I'm a Princess! My Father is King Of Kings! on Sun, 11 Feb 2007 04:21:00 PST

Facts about CHD!

Did you know..... The cost for inpatient surgery to repair congenital heart defects exceeds $2.2 billion a year.   More than 50% of all children born with a congenital heart defect will requi...
Posted by I'm a Princess! My Father is King Of Kings! on Fri, 09 Feb 2007 12:27:00 PST

Why God Chose Me as a Mother!

The Chosen Mothers Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. Did you ever wonder how mothers of children with life threatening illnesses ...
Posted by I'm a Princess! My Father is King Of Kings! on Fri, 09 Feb 2007 11:54:00 PST