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NICOLE

LIVE LIFE WITH NO REGRETS

About Me

I'm the mother of a very special little boy who has CHARGE Syndrome.C=Columbomas H=Heart Anomilies A=Atresia R=Retarded Growth G=Genital Anomiliea E=Ear Anomilies.CHARGE is not something you hear about very often but it is out there even though these special children have problems does not make them diffrent it makes them stronger.Nathan had his 1st surgery at 2 days old, his 2nd surgery was at 4 days old ,he also has to have open heart surgery when he was less than 1 month old.Nathan Was in a pagent at the county fair this summer even though he has vision problems and hearing loss i entered him anyway he WON!!!He is Baby Mister 2006 I also have a 7 year old daughter who is healthy and in 2nd grade she is a good big sister and is very helpful with him.shes at that age where she wants to know if santa is real.Whats a mom to say.My kids are the highlight of my life.Everyday they do something or say something that amazes me.I could not be more proud of there progress.They have both come so far. animated layout @ HOT FreeLayouts.com

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CHRISTOPHER

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Katelynn
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CONGENITAL HEART DEFECT AWARENESS


CONGENITAL HEART DEFECT AWARENESS

NATHAN WILLIAM MACDOUGAL
ABOUT ME:
I WAS BORN AUGUST 26th,2005.I HAVE ALOT OF OTHER PROBLEMS BESIDES MY CHDS MY HEART DEFECTS WERE REPAIRED ON SEPTEMBER 21st,2005 I HAD A PDA, AP WINDOW AND A COARCTATION OF THE AORTA. I WAS BORN 6 WEEKS EARLY. I HAVE CHARGE SYNDROME WHICH IS WHERE I GET MY CHDS FROM PLEASE TAKE THE TIME TO SPREAD THE WORD ABOUT CHDS IF THERE WAS ANYTHING YOU WANT TO LEARN ABOUT TODAY THIS SHOULD BE IT CHDS ARE THE #1 BIRTH DEFECT OUT THERE{I SHOULD KNOW I HAVE MORE THAN 1 BIRTH DEFECT}

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PLEASE HELP SPREAD THE WORD""

My Blog

CHRONIC SORROW

attempting to make a beautiful excuse about my state of mind... Chronic Sorrow is a term coined by sociologist Simon Olshanshy to describe the long-term reaction of parents who have a child with...
Posted by NICOLE on Wed, 21 Mar 2007 09:56:00 PST

UPDATE ON NATHAN

HERES AN UPDATE ON MR NATHAN HES DOING GOOD HES BEEN HEALTHY THESE PAST COUPLE WEEKS WHICH IS REALLY GOOD HES DOING WELL WITH ALL OF THE PROVIDERS THAT COME IN TO WORK WITH HIM HE HAS PROVIDERS EVERYD...
Posted by NICOLE on Tue, 13 Mar 2007 09:40:00 PST

KATELYNN UPDATE

HERES A LITTLE UPDATE ON MISS KATELYNN SHE IS DOING OK SHE HAS BEEN SICK SINCE WEDNESDAY I TOOK HER TO THE DOCTORS TODAY AND THEY SAID THAT SHE HAS BRONCITIS AND A DOUBLE EAR INFECTION ONE EAR IS WORS...
Posted by NICOLE on Tue, 13 Mar 2007 09:22:00 PST

CHARGE SYNDROME

MY LITTLE GUY NATHAN WAS BORN AUGUST 26th,2005. HE WAS BORN WITH CHARGE SYNDROME.SOME OF THE INFO IM TAKING FROM THE CHARGE SYNDROME MANUAL I HOPE THIS HELPS A LITTLE HOW OFTEN DOES CHARGE HAPPEN: THE...
Posted by NICOLE on Sun, 25 Feb 2007 11:22:00 PST

I MISS YOU CHRISTOPHER

ONE YEAR AGO TODAY JANUARY 23rd,2006 I  LOST MY LITTLE BROTHER CHRIS WE HAD ALOT OF GOOD TIMES AND MADE MANY MEMORIES IT HASNT GOTTEN ANY EASIER SINCE HES BEEN GONE I STILL MISS HIM VERY MUCH...
Posted by NICOLE on Tue, 23 Jan 2007 05:37:00 PST

A REAL FRIEND

EVERYBODY HAS FRIENDS BUT I HAVE SOMEONE I CAN CALL A REAL FRIEND I JUST WANT THANK YOU   A Real Friend   If I could take a minute To help you understand I am a better person Because you ar...
Posted by NICOLE on Sun, 21 Jan 2007 08:12:00 PST

GRANDMA RUTH

FAMILY AND FRIENDS I FOUND OUT AT 4:00AM THAT MY GRANDMOTHER HAS PASSED AWAY. I KNOW ITS BEST FOR HER.BUT YET SO HARD TO SAY GOOD BYE I KNOW ONE DAY ILL GET TO SEE HER AGAIN UNTIL THEN ILL HAVE THE ME...
Posted by NICOLE on Sun, 31 Dec 2006 02:10:00 PST

MEMORIES OF CHRIS

HEY  EVERYBODY I JUST WANTED TO START THIS TO SEE WHAT EVERONES FAVORITE MEMORY OF CHRIS IS i LOOK FOWARD TO READING THEM MINE WOULD HAVE TO BE THE YEAR HIM AND KATELYNN CHASED EACH OTHER AROUND...
Posted by NICOLE on Wed, 06 Dec 2006 05:11:00 PST

MISSING MY BROTHER

I MISS YOU CHRISTOPHER     Myspace Layouts...
Posted by NICOLE on Tue, 05 Dec 2006 01:43:00 PST

MY KIDS AND FAMILY

TODAY IS THANKSGIVING 2006.I COOKED A BIG MEAL.TURKEY,STUFFING,MASHED POTATOES.PEAS,ROLLS,DEVILED EGGS,4 DIFFRENT PIES.WE ALL ENJOYED IT.THIS YEAR FOR THANKSGIVING I AM VERY THANKFUL FOR MY KIDS THEY ...
Posted by NICOLE on Fri, 24 Nov 2006 07:27:00 PST