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Jamie

MyspaMY son has a CHD

About Me

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HotFreeLayoutsI am 26 years old, married with 2 children who are shown. Connor will be 4 in may and Paige will be 3 in July. Connor was born with a congenital heart defect called Hypoplastic Left Heart Syndrom or HLHS which basically means he was born without the left side of his heart. He has had 3 open heart surgeries one at 2 weeks the second at 5 months and the 3rd at 2 years. He just learned how to walk and gets fed by a feeding tube at night. My kids are everything to me.Connor recently underwent his 4th open heart surgery which was unexpected. He was in the hospital fo 3 months and we got to come home just 5 days shy of christmas. He is doing well and started him back at school recently. we have a carepage for him at www.carepages.com and the name is ConnorWinchester if you would like to check it out. I also recently had the opportunity to do a blog at www.savinglittlehearts.blogspot.com
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Congenital Heart Defect Awareness Week

Connor
ABOUT ME:
Connor was born May 1st 2003 with Hypoplastic Left Heart Syndrome or HLHS. He has had 4 open heart surgeries and because of his uncertain future he may have more. CHD is the # 1 birth defect and many parents do not know their child will be born with a heart defect and I am one of them. Please help spread CHD awarness so parents can see how real this is.

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Spreading CHD Awareness

My Blog

Connor's life-Last Part

The day after connor fell he was fine so we didnt think much of it, he fell all the time so that was nothing new. The following monday he was supposed to have a heart cath done because he was retainin...
Posted by Jamie on Wed, 28 Feb 2007 08:39:00 PST

Connor's life Part 1

A month before connor was conceived I had a cyst on my ovary and was given anitibiotics and a month later I found out I was pregnant, I guess I never questioned if that caused his birth defect, never ...
Posted by Jamie on Tue, 27 Feb 2007 11:16:00 PST

Connor's life Part 3

The 3rd stage was the worst of all 3 stages. Connor came out of the surgery just fine but afterwords he did not want to cooperate at all. His Temperature got so high they had to put him on ice, his bl...
Posted by Jamie on Tue, 27 Feb 2007 01:10:00 PST

Connor's Life Part 2

  The Morning we had to take him in was a horrible morning. I didn't want to let him go but I knew I had to so on Sept. 30, 2003 Connor had his 2nd stage done called the Glenn or Hemi-Fontan, th...
Posted by Jamie on Tue, 27 Feb 2007 12:50:00 PST

Half of a Heart

Half a Heart   It's a beautiful day up in heaven. Jesus is rounding up his tiniest angels, to go live on earth, and be born. One of the sweetest angel says to Jesus "I don't want to leave, I lik...
Posted by Jamie on Thu, 08 Feb 2007 10:12:00 PST