blah blah blah... info info info.
as for me, my doctor, and the severity of the disease i call mine...
i always knew i was the slowest, the weakest, and i was always that one poor kid who tried like crazy but just couldnt do it, even though no other kids had any trouble with it at all. my parents were told i had very weak hands and should be put into piano. my father apparently commented to my mom about my frequent falls and trips and my gait but she didnt think much of it. that was when i was 4, so i had to go through regular gym classes which automatically singled me out ( i really didnt have a chance, stoopid relay races )
and so on. i'm only 5'1 and maybe 95 lbs, i've ALWAYS been thin, so thats why i thought i was weak. i thought i had just been blessed with this great metabolism. the falling continued into high school, as it the claims that i must be anorexic. as far as my legs and feet; i really didnt notice at that point that i DID walk funny. afterall, i had just inherted moms funny looking feet, nothing more. when i finally DID see myself walking in a big office building reflective window....i think i was shocked that anyone had ever been my friend. so i started wearing dresses that go to the floor and baggy pants. and i've always been a tacky colorful person so it only made sense to go with 60's and 70s psychedelic ballgowns :) so maybe thats why i didnt find out sooner. no one could see my legs OR my feet, my walking was undescernible from any normal person. I now own 100 such dresses. :) One day i had a really bad sharp stabbing pain in my ribs and commented on the severity of that one to a friend. i thought the pains had been normal and i was just a big baby. she asked a few questions, i told her some things; she said my pains were NOT normal and i should get them checked out. that was in 2003. so i went to my doctor and told her i didnt realize these 300-500 stabbing pains i got daily were not a normal thing (to this day i still cant remember when they started, OR not having them) and she basically ignored me. i'd go in every three months, i'd complain of the pains again, and she would ignore them and give me more birth control pills.
something horrific happened in August 2005 that made my pains 100 times worse. a very recent ex of mine took his own life because he thought i had been unfaithful to him (among other problems in his life, i was the last straw, and no i didnt cheat on the guy) but it killed me too because i just sat around crying and hardly even getting out of my bed for weeks, months.....
i took my MOM with me to my doctor because she is a nurse, i thought i had just been saying the wrong things to my doctor.....but i came out of THAT appointment with a prescription for anti depressants and a list of psychologists. i knew it was natural grieving, i would get over it and i didnt go there for drugs.....fast forward maybe 6 months, i walked in, said screw birth control pills, and simply DEMANDED to see a neurologist. THAT took 6 months. when i finally got in, it took the guy 3 minutes to diagnose me AND my mom. i went to see genetics people (no surprise in my story where it came from), and after 7 months of waiting (god i hate the healthcare system here) i finally got my nerve conduction test and EMG done. Personally, i was SHOCKED that my stabbing pains had to do with my FEET, from a disease about Teeth. HUH? so yeah. i was right that there was something wrong with me and i deserved a neurologist the FIRST time i complained about my pains; she was dead wrong. and did i get an apology from her? NO! so i'm looking for a doctor in this province who isnt an idiot. i recommend you do the same :)
well i've just about talked your eyes off ;D
Heather
Pooh Vs. Satan!!!!
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UNTALKATIVE BUNNY!!!!!!
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