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Tina

Let our hearts give to those in need; whether it be music, homeless, health, or any other means of c

About Me

Layout by SparkleTags.ComSpecial thanks to Cheryl and David Vermilya @ the Camillus Town Shop (Youth Center) for allowing me to have a plant/bake sale on the Town Shop premisis to raise money for the Dystonia Medical Research Foundation. They provided free coffee and use of toilet facilities during a mile long sale the village was having. I was able to raise over $297.00. A start to a more hopeful future of raising much more money to help researchers find better medications, newer high-tech equipment needed for research studies and most important...A CURE!!!My thanks also goes out to everyone who takes the time to read and learn about Dystonia. My mission here is to get the message out to everyone...to get everyone to look at this disorder and realize the full complexity of it. Raising money towards finding a cure is so important to so many children and adults. So please read, visit the other links offered here on the site. Should you feel that you want to donate towards the cause, your donations are truly wanted. Please send to:Dystonia Medical Research Foundation One East Wacker Drive, Suite 2430 Chicago, Illinois 6061-1905Their contact Ph; 312-755-0198 Toll free: 312-803-0138 Email: [email protected] Site: www.dystonia-foundation.org

My Interests

What are the causes of dystonia?Dystonia is a movement disorder. Although the causes of dystonia are not fully known it is currently thought that the condition results from a malfunction in a part of the brain called the basal ganglia.The basal ganglia are structures situated deep in the brain. They help to regulate voluntary and involuntary movement by controlling muscle contractions in the body.The problem may mainly lie in an area of the basal ganglia called the globus pallidus. If this area of the brain is not functioning correctly then the control of another structure in the brain called the thalamus is affected.The thalamus controls the planning and execution of movement and sends nerves to muscles via the spinal cord. The end result is that muscle co-ordination is not regulated properly. The wrong muscles will contract ..ment or all muscles will contract unnecessarily causing abnormal movement and posture.Muscles positioned around joints usually work in pairs opposite each other, eg the biceps and triceps muscles of the upper arm bend or straighten the elbow respectively. Usually if one muscle of a pair is contracted the other is relaxed. However, in dystonia both muscles in the pair contract at the same time leading to the abnormal movement or posture.It is thought that in some cases there may be a chemical imbalance or 'wiring fault' in the basal ganglia. Chemical transmitters, such as dopamine, convey messages from one nerve cell to another within the basal ganglia. If this balance is upset then incorrect signals will be sent out resulting in loss of regulation of co-ordinated movements.
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Resources WE MOVE (Worldwide Education and Awareness for Movement Disorders) 204 West 84th Street New York, NY 10024 USA Tel: 2128758312 Fax: 2128758389 Email: [email protected] Internet: http://www.wemove.orgDystonia Medical Research Foundation 1 East Wacker Drive Suite 2430 Chicago, IL 60601-1905 United States Tel: 3127550198 Fax: 3128030138 Tel: 8003773978 Email: [email protected] Internet: http://www.dystonia-foundation.orgNational Spasmodic Torticollis Association 9920 Talbert Avenue Fountain Valley, CA 92708 Tel: (714)378-7837 Fax: (714)378-7830 Tel: (800)487-8385 Email: [email protected] Internet: http://www.torticollis.orgNational Institute of Neurological Disorders and Stroke (NINDS) 31 Center Drive 8A07 Bethesda, MD 20892-2540 Tel: (301)496-5751 Fax: (301)402-2186 Tel: (800)352-9424 Email: [email protected] Internet: http://www.ninds.nih.gov/Spasmodic Torticollis Dystonia, Inc PO Box 28 Mukwonago, WI 53149 Tel: (262)560-9534 Fax: (262)560-9535 Tel: (888)445-4588 Email: [email protected] Internet: http://www.spasmodictorticollis.org

He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint. - Isaiah 40:29-31
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Spasmodic Torticollis, also known as cervical dystonia, is a form of dystonia characterized by intermittent spasms of the neck muscles resulting in involuntary rotation and tilting of the head. These movements are frequently painful. There are three different varieties of the disorder: tonic, causing sustained turning of the head to one side; clonic, causing shaking movements of the head; and mixed tonic and clonic, involving both kinds of movements. The exact cause of this disorder is usually unknown, and it tends to appear in adults.
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For a Complete Report: This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
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Music:


WwW.SparkleTags.ComCountry, Rock, Soul, Jazz, and Pop. A very wide variety of music I perfer. Keep the mind open to different talents.
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Movies:

Any movie with Richard Gere in it! Gone With the Wind, The Day After, Twister, Lady and The Tramp, Homeless and Harvard,and countless others...
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Television:

Dystonia Medical Research Foundation One East Wacker Drive, Suite 2430 Chicago, Illinois 60601 800.377.3978 [email protected] www.dystonia-foundation.org DYSTONIA MEDICAL RESEARCH FOUNDATION @ 1-800-377-3978 (USA)Copyright 2007
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Books:

Romance novels and mysteries.

Heroes:

My Husband Donald & my Mother.(She passed away December 3rd 2006). I will truely miss her. Thank you for being a part of my life.
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My Blog

DD: Do You Have DD? Your Heart May Be Strong Enough...Find Out If It Is!

               DD     &nbs p;         DD is a newly developed form ...
Posted by Tina on Thu, 03 Apr 2008 09:27:00 PST

Cancellation of Fundraiser...

I am truly sorry to have to cancel the Dystonia Fundraiser that was scheduled for June 7th, 2008. My ideas were bigger than realty. Nobodies fault, just not enough knowledge out there on Dystonia. Pe...
Posted by Tina on Sun, 03 Feb 2008 12:35:00 PST

Seeds of Science

Have you ever wondered what a perfect world looks like? Have you ever wondered about a world without dystonia? Without pain? Without crippling limitations? Visions like these are the seeds of our rese...
Posted by Tina on Sun, 30 Sep 2007 12:49:00 PST

Resources--Addresses for Dystonia Associations

Resources WE MOVE (Worldwide Education and Awareness for Movement Disorders) 204 West 84th StreetNew York, NY 10024USATel: 2128758312Fax: 2128758389Email: [email protected]: http://www.wemove....
Posted by Tina on Sat, 07 Jul 2007 10:41:00 PST

Cure Dystonia Initiative: A New Approach to Accelerating Treatments

Cure Dystonia Initiative A New Approach to Accelerating Treatments   The Dystonia Medical Research Foundation (DMRF) launched the Cure Dystonia Initiative (CDI) in May of 2006 to accelerate the...
Posted by Tina on Tue, 05 Jun 2007 06:08:00 PST

In Our Own Words: Living With Dystonia

In Our Own Words Medscape Nursing « Visiting America | Main | Mountains.... » December 15, 2006 Living With Dystonia Beka - I just looked at a stack of emails related to my work with dystoni...
Posted by Tina on Tue, 05 Jun 2007 05:22:00 PST

Fibromyalgia (Secondary to my Cervical Dystonia)

Fibromyalgia Sign up for our newsletter to receive news about fibromyalgia and therapies used in our treatment centers. Fibromyalgia is a complex disease in which both genetics and environmental facto...
Posted by Tina on Mon, 04 Jun 2007 05:37:00 PST

Dystonia- Many Forms

.. ..> Excerpt from "What If?" - Movement Disorders Video from the Life in Motion Awareness Campaign ..> Overview of Dystonia Dystonia is a neurologic movement disorder characterized by sustain...
Posted by Tina on Sun, 27 May 2007 07:06:00 PST

Cervical Dystonia & Other Forms of it...

..> Cervical dystonia, spasmodic torticollis, idiopathic torsion dystonia and wry neck all refer to the same disease. This is when the constant contraction of muscles forces the movement of the nec...
Posted by Tina on Wed, 07 Mar 2007 01:17:00 PST