This site is dedicated to curing cystic fibrosis through music & arts. Our goal is to raise funds for the CF Trust Charity, by staging some high profile concerts in the UK.Our beautiful 10 year old daughter, Hannah, has Cystic Fibrosis, which is a genetic medical condition, causing lung damage as well as pancreatic and stomach problems to which there is currently no cure. However, the CF Trust charity has made great progress into helping sufferers of this terminal condition and are much closer to curing the lung problems, which is the major cause of illness and death in CF.
Scientists have developed a product to correct the gene defect found in the lungs and are planning a single clinical trial for the begining of 2008 followed by a multi-dose trial,funding permitting. It costs 3million each year to fund the CF Scientists Consortium alone and these trials will cost an additional 6.5million at least.Therefore, because this medical breakthrough is so important and this cause is so close to our hearts, We thought the best way to help is to raise funds (and awareness) by organising some high profile concerts. As a parent and musician, we feel this would be a very positive way of helping Hannah and all CF sufferers live longer and healthier lives.
Times and venues are flexible as we intend to put on one artiste at a time to ensure we raise as much money as possible.We live in the south and know people at venues such as Portsmouth Guildhall and Ferneham Hall, Fareham.. However, any location in the UK is fine as we'll travel anywhere for the cause and the CF Trust has area managers throughout the UK to help.
You can visit www.cftrust.org.uk to get more info on the CF Trust and what it’s all about or if you can't help with the concerts please donate onlineExtended Network Banner made with MyBannerMaker.com! Click here to make your own!..
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