POTS Site profile picture

POTS Site

I am here for Friends and Networking

About Me

WELCOME!!!this is a place to meet people that share a commonly misunderstood chronic illness called POTS, postural orthostatic tachycardia syndrome!...AND... for anyone who is interested in learning about POTS. help us spread the word so other people may not have to suffer as long as so many of us have!!!check out the blogs... we will try to post as many informative pieces as we can... feel free to leave comments about how you feel or if there is anything that you would like added, just ask!!!CLICK ON THE FOLLOWING LINKS FOR SOME VERY HELPFUL WEB SITES Dysautonomia information network Dysautonomia Youth Network of America National Dysautonomia Research Foundation JESSif anyone has any other really useful links they would like to share just send a message and i will post it right here. :)

My Interests

POTS SITE is under construction right now... We are trying to come up with newer and better ideas. If anyone has any suggestions about what they would like to see, just send a message. Thank you all for your support!

I'd like to meet:

THE MANY FACES OF DYSAUTONOMIA...
Photo and video editing at www.OneTrueMedia.comIf you would like to be included in this video send a message and we will tell you how you can be included. All we will need is your name and diagnose, but you can also include a favorite quote. :) Thank you!

Books:


Heroes:

The people in our lives that make a difference and help us along the way...
Myspace graphics

My Blog

DINET Documentary on Dysautonomia

I am helping DINET with a documentary on dysautonomia and we would like to include the "Faces of Dysautonomia" through collecting photos in the documentary.Here are some details from the latest newsle...
Posted by POTS Site on Tue, 28 Aug 2007 09:18:00 PST

Understanding the ANS and Dysautonomia

Understanding the Autonomic Nervous System and Dysautonomia..:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" />   Your body is working every second to ensure your survival. ...
Posted by POTS Site on Sun, 26 Aug 2007 02:44:00 PST

link about pots and other invisible illnesses

http://diagnosesupport.com/main/content/blogcategory/85/155/
Posted by POTS Site on Thu, 23 Aug 2007 02:56:00 PST

Butterfly Struggles

The story of the butterfly A man found a cocoon of a butterfly.One day a small opening appeared.He sat and watched the butterfly for several hoursas it struggled to squeeze its body through the tiny h...
Posted by POTS Site on Thu, 23 Aug 2007 01:10:00 PST

POTS Awareness Book UPDATE!!

Hey all! I started the book today! I did a sample page to see how pictures and words are going to fit. About 700 words will fit on one page with a picture. However, if stories are longer I can give pe...
Posted by POTS Site on Sat, 11 Aug 2007 01:38:00 PST

POTS videos

i am about to be making home videos about POTS and putting them on youtube. i just got a video camera yesterday so i am really excited about this!!! if you have any suggestions of what you would like ...
Posted by POTS Site on Tue, 07 Aug 2007 03:23:00 PST

POTS Awareness!!! Making A Book!!! Need your Story!!!

Awareness Project!!!! Hi! I'm not sure if you frequent the NDRF forums or not, but if you do then you may already know about this project! I am gathering stories and photos of those diagnosed with dys...
Posted by POTS Site on Mon, 06 Aug 2007 03:54:00 PST

Sarah on POTS

Me on POTS http://bestsmileys.com/backgrounds/6.gif this is me on POTS!!! i am the one with the major malfunction!!! this picture explains my world in so many ways! first of all, my body no lon...
Posted by POTS Site on Fri, 03 Aug 2007 03:58:00 PST

50 Ways to Encourage a Chronically Ill Friend

50 Ways to Encourage a Chronically Ill Friendby Lisa CopenLittle ways of reaching out make all of the difference to someone who is hurting, especially when the illness is chronic. It's rarely the "siz...
Posted by POTS Site on Thu, 26 Jul 2007 10:40:00 PST

Collier schools' program for chronically ill students

Collier schools' program for chronically ill students is broken, couple says By Katherine Lewis Sunday, July 15, 2007 Brian Gerdel's school experience has not been easy. Photo by David Albers / D...
Posted by POTS Site on Tue, 17 Jul 2007 05:57:00 PST