COME SEE PAT G LIVE IN CONCERT APRIL 24th, 2008 - FREE CDs to all who show up!!! |
Pat Girondi performs live with The Ultimate Concept Band on April 24, 2008 at BLU 47, 4655 South King Drive, Chicago, Illinois at 9PM.
Get your FREE COPY OF PAT'S NEW CD, "ORPHAN'S JOURNEY" ... Posted by Pat g on Tue, 15 Apr 2008 10:47:00 PST |
Pat g performs to a Full House at The Harris Theater on Aptil 6, 2008 |
Pat g a/k/a PAT GIRONDI performed to a Full House at The Harris Theater in Millennium Park in Chicago, Illinois on April 6, 2008. His performance was very well received and marked the Inauguration of ... Posted by Pat g on Sun, 13 Apr 2008 08:58:00 PST |
Pat Girondi to sign EXCLUSIVE with RAI-ITALIAN TV, for a 2-part Movie of his lifes Story. |
Pat Girondi to sign an EXCLUSIVE with RAI - ITALIAN TELEVISION, for a 2-part Movie of his Life's Story! Posted by Pat g on Sat, 01 Mar 2008 10:33:00 PST |
100,000! 100,000! 100,000! 100,000! 100,000! DONATED TO ORHAN DISEASE RESEARCH! |
100,000 dollars donated to Orphan Disease Research from Ron Capano and Cooley's Anemia International.For roughly 15 years I have been battling Thalassemia and Sickle Cell Anemia side by side with the ... Posted by Pat g on Sat, 08 Dec 2007 09:08:00 PST |
Gene Transfer NOT responsible for patients death |
Gene Transfer an Unlikely Contributor to Patient's Death.
Jocelyn Kaiser
Winding up an investigation into the mysterious death in July of a 36-year-old woman in a gene therapy safety trial, an expert... Posted by Pat g on Sat, 08 Dec 2007 09:05:00 PST |
100,000 DOLLARS DONATED TO ORPHAN DISEASE RESEARCH |
100,000 dollars donated to Orphan Disease Research from Cooley's Anemia International.For roughly 15 years I have been battling Thalassemia and Sickle Cell Anemia side by side with the Capano family o... Posted by Pat g on Fri, 30 Nov 2007 01:13:00 PST |
A Vector has been made to begin the final tests before clinical trials begin. |
A Vector has been made to begin the final tests before ordering the Clinical Trial batch.
We are looking at June for a starting of the first patients.
Thanks for your prayers and support.
-Pat g&... Posted by Pat g on Wed, 03 Oct 2007 05:54:00 PST |
WANT TO HOST AN ORPHAN DISEASE PROJECT CONCERT W/ PAT g? |
DO YOU WANT TO HOST AN ORPHAN DISEASE PROJECT CONCERT WITH PAT G?
Send us a message through MYSPACE or contact us at:
[email protected].
HOURS OF ENTERTANMENT AND SUPPORT FOR THE ORPHAN DISEASE... Posted by Pat g on Sun, 22 Jul 2007 01:31:00 PST |
FRA NOI ARTICLE - JUNE 2007 |
Modern-day Robin Hoodby Jim Distasio
Not content to let thalassemia pillage his son's life, businessman Pat Girondi has taken the battle against this deadly disease to a whole new corporate level.
Cou... Posted by Pat g on Sat, 02 Jun 2007 06:31:00 PST |
Genetic Cure for Thalassemia is near! WATCH THE RAC HEARING VIDEO! |
Thank You!!!!!!!!!
We have finished the RAC submission. It has arrived at the FDA (this means that we're almost there). The Genetic Cure for Thalassemia is around the corne... Posted by Pat g on Mon, 07 May 2007 12:53:00 PST |