Tropical Storm Emily profile picture

Tropical Storm Emily

www.citytocityride.org..I'm riding my bike to Chicago Aug. 2nd!

About Me

Click this link to see the real me!! ***http://www.cfvoice.com/info/adults/rock_cf.jsp***Trailer for the Documentary:I play drums in Hellen and I am the founder and president of the Rock CF Foundation. I have Cystic Fibrosis and have made it my mission to help lead in the fight against this crazy disease. It is still the #1 genetic killer of children and young adults and together we can all change that..visit my site www.letsrockcf.org to see how....so please help me Rock CF!****On August 2nd I'm riding my bike to Chicago with three of my friends to help raise funds and awareness for cystic fibrosis. You can donate to us at www.active.com/donate/rockcf OR YOU can join us for the 20 mile group ride Aug 2 that will take you to Dearborn and back to Detroit. Check out www.citytocityride.org for all the info you need to register and to donate!****

My Interests

Rocking CF,Rockin,Laughing a lot, coughing,Side Show,Converse,Frye Boots,Vans,True Religions,Pearly Snaps,Coke a Cola Classic in a can with a straw,Cereal,Oatmeal,Sushi,Thermals,My friends,My best friend,Drums,Les Pauls,SG's,NY style pizza,Whole Wheat, Avacado, Gordita's, Guffman Quotes, Broadway,Jones Dance Parties,Guitar Hero, Leisure sports, running, biking to chicago(?)

I'd like to meet:

I want to meet ELLEN, that's my dream. That's it.Oh and also anyone who wants to join in the fight against Cystic Fibrosis.

Music:

South Normal,Nugent,REO,The Who,The Stones,Led Zeppelin,AC/DC,Muse,80's metal/ballads, broadway showtunes,Damone,smooth jams

Movies:

Waiting for Guffman,For Your Consideration,Drop Dead Fred, Big Fish,To Kill A Mockingbird,Crash, Finding Neverland(I DID cry..a lot)

Television:

Ellen,Arrested Development, Little People Big World, Extreme Home Makeover, Seinfeld reruns

Books:

Wicked, Virgin Suicides, The Spirit of Lo, A Little Love Story (realllly good, read it) and of course any David Sedaris and my new favorite Augesten Burroughs

Heroes:

Everyone with Cystic Fibrosis..anyone who has lost their battle and those still rockin CF. Ellen D is also my hero!

My Blog

Tracking this AP story!

I just got back from a sweet long run and decided to see how far the Associated Press story has traveled. Here are some of the places it has been published:Printed in the 4/27 Free Press/Detroit NewsN...
Posted by Tropical Storm Emily on Sun, 27 Apr 2008 01:09:00 PST

Hey gall bladder where you at???

Wow! So I just got home after being in the hospital since Monday. The whole week last week I had this crazy pain in my right side. Eating made it worse, I couldn’t run and it just plain hurt. So...
Posted by Tropical Storm Emily on Thu, 03 Apr 2008 10:32:00 PST

Sometimes Its Quality not Quantity..whirlwind weekend!

Well another Just Let Me Breathe show has gone down in the books. Saturday was the show and overall I felt as thought it was my favorite show with the biggest heart. Attnedance was down considerably f...
Posted by Tropical Storm Emily on Tue, 18 Mar 2008 07:34:00 PST

Just Let Me Breathe..holy cow

I cannot believe that it's time again for the Just Let Me Breathe benefit! I am in full benefit mode right now and may not get a real nights sleep until the night of March 16. That's ok though because...
Posted by Tropical Storm Emily on Mon, 18 Feb 2008 07:45:00 PST

It’s Vegas baby!

What a weekend I had in Las Vegas! I was flown out to be a guest speaker for the Novartis Pharmaceutical Sales Meeting this weekend and all I can say is wow. Novartis is the company that makes my CF d...
Posted by Tropical Storm Emily on Wed, 30 Jan 2008 08:55:00 PST

I Love New York..for real

I just had some really awesome days in NYC! I flew out Tuesday morning and made it into the city in time to get theatre tickets for Wed & Thurs then for dinner with the PR people for the cfvoice.com w...
Posted by Tropical Storm Emily on Mon, 03 Dec 2007 09:02:00 PST

Lewis Black is realll cool!

Last night Lewis Black the comedian featured on the John Stewart show and Comedy Central played the Fox Theatre in Detroit. So when I saw he was coming I knew I had to go to the show and try to meet h...
Posted by Tropical Storm Emily on Sun, 25 Nov 2007 06:35:00 PST

Rock CF is Broadway bound,,with your help that is.

Hey guys,Here is the newest way to help the Rock CF Foundation spread awareness and raise funds to help Rock Cystic Fibrosis. If you ever go to NYC and see Broadway shows here is your chance to do you...
Posted by Tropical Storm Emily on Mon, 12 Nov 2007 07:12:00 PST

Do you know me??

Hey guys.. take a look at this site www.cfvoice.com...it is a site for CF people (young and old), friends, family and anyone and everyone who wants to know more about CF. It is for Novartis, a hu...
Posted by Tropical Storm Emily on Wed, 03 Oct 2007 10:33:00 PST

This is it..my towel is half way in.

I'm tellin ya I don't think I can afford to play out anymore at these bars in Michigan. Really I think I need to find a new hobby or the f'ing state needs to get over themselves and pass a smoking ba...
Posted by Tropical Storm Emily on Sun, 30 Sep 2007 10:53:00 PST