Jayne profile picture

Jayne

Together we can find a cure for Lupus!

About Me


Let's see...I'm a 31 year old female who is "living w/Lupus". I've been in the southwest suburbs of Chicago my whole life, currently residing in Lansing. I'm adopted into a mixed family and raised Christian Reformed and like it that way. I've only ever known how NOT to be prejudice against races, my parents are white, I'm Arabian/Italian/possibly mexican, my older brother is black and my sister is black/white. We're all unique and I love them all, they are very important to me and so is my faith. I'm very laid back but I won't stand for racist remarks around me, I don't care WHO you are. I'm happily married to my high school sweetheart, we were married once, got divorced and are married again, such a soap opera! I'm a mom of one 11 year old son named Tony, a fat tabby cat named Crazy and 2 dogs. I entered my Foxxy in a contest recently and she won Best Female Shiba Inu 2007! She's so pretty :) Foxxy is a gorgeous black & tan Shiba Inu and Rocco is a brindle beagle/boxer mix. My hubby and I are suckers for animals, we are constantly going to "look" at puppies even though we know I can't handle more than the 2 we have. We are animal planet junkies! Can't stand to hear of any kind of animal abuse or neglect, makes me wanna wring those peoples necks!!! Unfortunately, my life changed quite a bit in 1997 when I was diagnosed with Lupus. Lupus is an chronic auto-immune disease that has disabled me at too young of an age. Lupus brings on a lot of secondary problems for me such as arthritis, depression, acid reflux, anemia, antiphospholid syndrome, fibromyalgia, headaches, hair loss, severe fatigue etc. The steroids used to treat my lupus have also given me less than desired side effects which include weight gain, moon face, buffalo's hump, cataracts in both eyes and now a 70% fatty liver! I spend a lot of time trying to raise awareness of this disease as well as being the team captain of "THE WOLFPACK" for the third year in a row at the Life Without Lupus Walk in Illinois!TO LEARN MORE ABOUT LUPUS, HERE'S A Link to the Lupus Research Institue : Lupus Research Institute - Letting Science Lead the Way to a Cure or LUPUS FOUNDATION OF AMERICA AT http://www.lupus.orgTaking A Bite Out Of Lupus, One Step At A Time!
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My Interests


My family is the most important thing to me, including all my gorgeous nieces and nephews!

.. Animals(especially dogs!), Butterflies , GOD, My Friends, Music, Lupus Research and Education, Kids, ya Gotta love em!, Tattoos, TEXAS Holdem' (no, I'm not a hillbilly), Scrabble, Kim Anderson Kids Pictures and I LOVE CRAB LEGS!!!! Oh, and I love Wolves! Wolf means lupus in latin :)

I'd like to meet:

Other people who "live with lupus", old friends from high school, new friends who share the same interests. Not interested in any hookups please, just friendships. ..

Music:



.. All different kinds, except country (although I do like Dixie Chicks): Marty Casey and the Lovehammers!,Creed, Alter Bridge, Metallica, Celine Dion, Dave Matthews band, Korn, Kelly Clarkson, Josh Groban, Stained, System of the Down, Evanescence, Disturbed, Ozzy, Incubus, The Doors, 10 years, Statix X, Linkin' Park, Mudvayne, Drowning Pool, 30 Seconds to Mars, Killswitch Engage, Alice in Chains, Chris Daughtry was robbed on American Idol! (You know its true) DAUGHTRY is currently my fav :)
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Movies:


Television:

Alias, but its all done :( Grey's Anatomy, ER, Friday Night Lights, LOST, American Idol, Ellen, Guiding Light, As The World Turns, Biggest Loser!, Hell's Kitchen, Any reality show that has to do with music/dancing, I hate that I watch but OH DO I! I am an Animal Planet junkie, especially the Detroit cops show, anyone who hurts animals suck! Rockstar Supernova and Big Brother Rock too!

Books:

Anything to do with Lupus, medically or how to deal with emotionally. Of course, the Bible, but I should read it more! Other than that haven't really read many books lately.


Heroes:

Tish, If we all even tried to be as special as you were this world would be such a better place. MISS YOU!!! All Lupus Survivors/Fighters, Bruce and Mark Sperling, may they rest in peace. All the people who helped with the 9/11 tragedy and who died there too.

My Blog

World Lupus Day is May 10th, 2007!

http://photobucket.com" target="_blank">..http://i113.photobucket.com/albums/n207/jcandies/comments/ Logo_Low_10may.jpg" border="0" alt="Photo Sharing and Video Hosting at Photobucket"> About Lupus Eve...
Posted by Jayne on Wed, 18 Apr 2007 03:34:00 PST

FACTS ABOUT LUPUS....

In response to media interest in rumors surrounding the cause of death for Anna Nicole Smith being attributed to lupus, the Lupus Foundation of America is releasing a basic fact sheet about the diseas...
Posted by Jayne on Thu, 01 Mar 2007 03:41:00 PST

The Spoon Theory

This was written by the founder of butyoudontlooksick.com: "The Spoon Theory"My best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Lik...
Posted by Jayne on Mon, 19 Feb 2007 07:51:00 PST

More ramblings.....

So hear I am needing to get some feelings out once again..mid-January I went for cognitive testing and on the 31st got great results that they don't seem to think Lupus is affecting my CNS. Great righ...
Posted by Jayne on Sat, 10 Feb 2007 04:11:00 PST

Email sent with update...

BELOW IS AN EMAIL I JUST SENT TO ALL MY FRIENDS AND FAMILY AND I THOUGHT I'D POST IT ON MYSPACE TOO SINCE LOTS OF YOU HAVE ASKED THE LATEST ON MY HEALTH TOO!   Some of you have asked how the clin...
Posted by Jayne on Fri, 12 Jan 2007 05:45:00 PST

Happy new year right? Not really....

After a week full of aches and alot of pain, here I sit in a "mood". My hubby had to bring me for an urgent visit to my rheumy yesterday which lasted almost the entire day! I have had some flare sympt...
Posted by Jayne on Fri, 05 Jan 2007 03:12:00 PST

Its Been Awhile....

Over a month since my last blog, I've been meaning to jot down some rants and then decide against it. Although I ran out of my zoloft med about 5 days ago and haven't gotten the refill yet, so I'm pre...
Posted by Jayne on Sat, 30 Dec 2006 07:16:00 PST

Tish's Funeral was today....

I wanted to share with all of you who have honored Tish by putting her picture on your page and to all who have prayed, lit candles and made well wishes on her behalf. This message is from Annie, who ...
Posted by Jayne on Wed, 15 Nov 2006 07:09:00 PST

Poem In Memory of TISH

I didn't write this wonderful piece, a member of the Wolfpack did and I have her permission to post it. Its beautiful :) http://photobucket.com/" target="_blank">..http://i113.photobucket.com/albums/n...
Posted by Jayne on Sat, 11 Nov 2006 06:16:00 PST

I should have just stayed in BED today!!!

BEWARE...RANTING BELOW http://photobucket.com/" target="_blank">..http://i113.photobucket.com/albums/n207/jcandies/comments/ thpeedoff.gif" border="0" alt="Photobucket - Video and Image Hosting"> It st...
Posted by Jayne on Thu, 05 Oct 2006 03:06:00 PST