xHelenx profile picture

xHelenx

I am here for Networking

About Me

Hi guys, as some of you may already know I used to be a dancer but in July 2005 I had to have an operation for Tarsal Tunnel Syndrome which I had developed after a car accident I had nearly 5 years ago now. (I was on a driving lesson and was hit me from behind). . After my operation I developed an equinus deformity (my limb had become useless, could not stand or walk) had to have a second operation of manipulation of joint and another plaster cast. During that period of recovery, I developed Peripheral Neuropathy / Neuropathic pain and Complex Regional Pain Syndrome type 2 (Causalgia) also known as Reflex Sympathetic Dystrophy Syndrome. My nervous system has also become hypersensitive, it effects my entire body and I am registered disabled. Neuropathy is also known as "The silent disease" and here's why...the person with neuropathy may still experience pain even though the injury has healed, at present there is no cure and no single treatment that adequately controls all neuropathic pain and currently all neuropathic pains are treated the same regardless of cause or symptom characteristics. Although life as I knew it has changed dramatically for me, I believe that everything happens for a reason, bad or good. My aim is to get TTS / PN / NeP & RSD (CRPS) noticed. The charities I support are... The Neuropathy Trust, RSD UK & Sense.

My Interests

Dance (Tap & Lindy hop mainly), my Fiancé!, Arsenal & England football teams, Shopping, Food, My website, Raising awareness for Tarsal Tunnel Sufferers, The Neuropathy Trust & RSD UK charities.

I'd like to meet:

Anyone who I knew, but lost contact with, other sufferers of TTS, PN / NeP, CRPS (RSD), anyone who loves to dance!

My Website: www.Tap4TTS.co.uk

..

SYTS ex pupils reunited... ...from my old school days Alima

Rosalind

Daniel P

Junior

Maredith

Hayley B

Hayley L

Claire

Jon

Kye

Gemma

Carla

Matt

Royston

Ashley

Sammy

Danielle

Laurence

Max

Amie

Danielle

Tisha monique

SYTS Reunion

James

Jill

Tom

Scott

Sapphire

Makaela

Terel

View All of My Friends

I have over 500 friends!

Music:

Jazz, Hip hop, R&B, Blues, Pop, Soul, Rock... I love most types of music. Please check out my friend Kye & his band 365...
...and Tom & band McFly Tom is supporting me, other NeP/PN sufferers & The Neuropathy Trust by wearing the charity wristband I designedGem and the girls - StoneFoxx
& last of all but not least...Matt Willis

Movies:



My all time fav film - Tap!

Books:


Numb Toes and Aching Soles, Numb Toes and Other Woes & Nutrients for Neuropathy all by John Senneff.
These books is a MUST read for all patients with neuropathy and for all DOCTORS that treat neuropathy!

Living with Legends by Stephen Clark

TAP! The Greatest Tap Dance Stars and Their Stories 1900-1955 by Rusty E. Frank

Heroes:

Heroes
My Website Logo

My Blog

UPDATED - SYTS Charity Recording - in memory of Natasha Anastasiades

dated 24th May 2007   Hi all,   Thanks to everyone who turned up for rehearsals yesterday! Rehearsals for today have been cancelled as Ray said we do not need them...it sounds good and we're...
Posted by xHelenx on Sat, 19 May 2007 01:12:00 PST

1 month in hospital! + Junior's Tap / Jazz Night

Hi all, I am staying in hospital on a pain management programme for 1 month from the 26th March. So if I'm not answering my phone, you know why.   Jr's Tap / Jazz night 13th March @ Digress in So...
Posted by xHelenx on Fri, 02 Mar 2007 03:12:00 PST

Junior's Tap Jam / Jazz Nite 14th Nov 2006 - 365's single 'One Touch' & I'm a celeb + more.....

Junior Laniyan's Tap Jam /Jazz Nite - 14th November 2006 Yep folks with the recent sucess of his last evening he has set up another. This time at a different venue! Starts@8pm - £5 entry Address: Digr...
Posted by xHelenx on Mon, 13 Nov 2006 03:23:00 PST

New Job

Hi peeps, My new Job Well, on Monday the 14th August I had my first ever job interview (used to auditions so this was a new experience). I had to sit a 30 min test where I had to write a letter using...
Posted by xHelenx on Mon, 21 Aug 2006 03:08:00 PST

myspace profiles I've edited

I have set up profiles for the following people, who are my friends, please check them out... www.myspace.com/carlaprosser www.myspace.com/rozjames www.myspace.com/doitwithdes www.myspace.com/clairewi...
Posted by xHelenx on Wed, 02 Aug 2006 04:08:00 PST

Junior Laniyan / Makeba & Annette - Tap Dancing on The Paul O' Grady Show Friday 09/06/2006

Catch tap company "About Time" (Junior Laniyan, Makeba, Annette, Simeon) on the British TV entertainment programme The Paul O'Grady Show Friday 9th June, 5pm on channel 4. Also listen out for the ment...
Posted by xHelenx on Thu, 08 Jun 2006 09:29:00 PST

Tap Jam / Jazz Nite - 28th June & 14th Nov 2006

Yes Folks with the success of the last event, Tap Jam / Jazz Night part II is gonna take place Tuesday 14th November 2006 at a new venue - Digress. Check out www.digress.co.uk more info coming soon! ...
Posted by xHelenx on Mon, 22 May 2006 08:50:00 PST

Natasha Anastasiades's Charity - also find info on my website

Klida and Mario (Natasha's parents) have set up a charity in memory of Natasha. They are continuing her wish to help raise funds for her chosen charites; Great Ormond Street Hospital and the kidney un...
Posted by xHelenx on Wed, 08 Mar 2006 04:47:00 PST