RSD UPWORD - ProfilesArchive

About Me

Our family was introduced to Reflex Sympathetic Dystrophy, more commonly known as Complex Regional Pain Syndrome, over five years ago when our wife and mother acquired RSDS/CRPS from a cumulative repetitive stress injury.

This subject is important not only to us; but to;everyone who is affected by it. We must spread awareness of RSDS/CRPS, so that it can be recognized by people in the medical community, insurance companies, and government agencies. They need to learn to diagnose RSDS/CRPS and expedite treatment so that those people who are still in their first 3 to 6 months can have a better chance of remission and those of us who have missed that window of opportunity can get treatment to prevent the RSDS/CRPS from spreading.

Inspired by our 5th grade daughter, our family started a website called RSDUPWORD. Please take the opportunity to visit, you can read her report, learn more about this chronic nerve pain syndrome, and see how the rest of our family contributes to the site.

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Myspace Layouts - Myspace Editor - Image Hosting

My Interests

The goal of RSDUPWORD, Reflex Sympathetic Dystrophy Understanding Pain with Openness, Research and Determination, is to spread awareness of RSDS/CRPS with our website, myspace, and school projects.

We will provide information on RSD, share stories, ideas, and tips that make living as an RSD family easier.

We recognize that it is only with determination and diligence that our family's voice will be heard and therefore we will always be open to ideas and suggestions and incorporate them into our site updates along with other pertinent information.

I'd like to meet:

We would like to meet anyone afflicted or affected by RSDS/CRPS. Also, any individual that is interested in learning about this chronic nerve pain syndrome and/or wants to help to spread RSDS/CRPS awareness.

As time passes we are sure that the personal list of people we wish to meet will grow, but as we begin our journey we hope to meet and thank the indivuals who supported our efforts: Jim Broatch, Executive Director of RSDSA; Karen and Lynne O. from American RSDHope; and Cynthia Toussaint, the dancer that started Forgrace.org.

Music:

UPCOMING RSDS/CRPS EVENTS:

Heroes:

www.yourcoolprofile.com

Our heroes are all those who battle RSDS/CRPS or other life changing illness, injury, loss or events.

We especially wish to acknowledge those who love us, support us, care for us and take time to understand us.

My Blog

A New Look For RSDUPWORD - Update

Another big update complete! Have a look!
Posted by RSD UPWORD on Wed, 16 Jan 2008 07:38:00 PST

Why won't they believe....

Bound by RSD am I to a world that doesn't believe. Alone, I am not, for there are many of us who stand in the shadows and grieve.The pain consumes us in part or in whole.We no longer have any control....
Posted by RSD UPWORD on Wed, 01 Aug 2007 01:11:00 PST

Errands in a wheelchair

It's a wheelchair, and I'm not a toy! I heard myself saying this over and over on Monday. By the end of the day, I and think we all have had enough of me and my wheelchair!You se...
Posted by RSD UPWORD on Fri, 13 Jul 2007 12:16:00 PST

We are not alone

Throughout the development of our website and this blog, as well as, our children's school projects, we have learned a lot. We have learned that people who don't know about RSD want to be taught.We ha...
Posted by RSD UPWORD on Fri, 18 May 2007 09:56:00 PST

DONE!

Please come visit us at mysite.verizon.net/rsdupword/ Meanwhile we're going to get some sleep.
Posted by RSD UPWORD on Thu, 10 May 2007 10:28:00 PST

Starting Again

Our website got corrupted because we tried to use the _ in our name and it locked it up. Don't know why, but it did! So, no more sobbing, we are rebuilding it better and it will be up by 5...
Posted by RSD UPWORD on Tue, 08 May 2007 03:58:00 PST

We did it!

Last night and today have been productive. We established a website and got it going. Since the kids are going back to school tomorrow, I don't know how much update will be done. But...
Posted by RSD UPWORD on Mon, 30 Apr 2007 09:28:00 PST

What is our site going to be about?

RSD_UPWORD: Reflex Sympathetic Dystrophy Understanding Pain with Openness, Research and Determination Our family is putting togther and designing this website. Please keep checking back. an...
Posted by RSD UPWORD on Sun, 29 Apr 2007 04:21:00 PST

Under construction

This website is currently under construction please check back with us soon. Thank you.
Posted by RSD UPWORD on Sun, 22 Apr 2007 10:00:00 PST