Dystonia_Documentary_Revised
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Add to My Profile | More VideosPutting A Face On Dystonia
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Add to My Profile | More VideosDystonia - Brain to Muscle Disease
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Add to My Profile | More Videos
For more information please visit:
Dystonia Medical Research Foundation
Dystonia Medical Research Foundation
ST/Dystonia
ST/Dystonia
Dystonia Association
Dystonia Association
Bachmann-Strauss Dystonia and Parkinson Foundation, Inc
Bachmann-Strauss Dystonia and Parkinson Foundation
Care4Dystonia, Inc.
Care4Dystonia, Inc
Healthopedia
Healthopedia
Australian Spasmodic Torticollis Association
Australian Spasmodic Torticollis Association
National Organization for Rare Disorders
National Organization for Rare Disorders
Myobloc
Myobloc
Botox.com
Botox.com
Wikipedia
Wikipedia
LookDirectory.com - Comprehensive Human-Edited Directory
LookDirectory.com - Comprehensive Human-Edited Directory
Life in Motion
www.life-in-motion.org
New Hope For Dystonia
www.newhopefordystonia.com
The Movement Disorder Society
br
www.movementdisorders.org
UVa's Department of Neurology Movement Disorders
www.healthsystem.virginia.edu/internet/neurology-care/moveme
nt.cfm
Ohio State University Department of Neurology
neurology.med.ohio-state.edu/movementdisorders/index.htm
The Neurological Institute of New York . At Columbia University Medical Center
cpmcnet.columbia.edu/dept/neurology/movdis/contact.htm
Congress of Neurological Surgeons
www.neurosurgeon.org
Tremor Action Network:
www.tremoraction.org
Health6.com
www.health6.com
Massachusetts General Hospital Dystonia Clinic
neuro-www.mgh.harvard.edu/~dystonia/resource.html
Neurological Institute of New York, Columbia University
cpmcnet.columbia.edu/dept/neurology/movdis/contact.htm
University of South Florida
www.med.usf.edu/NEURO/usf.html
University of Oklahoma Health Sciences Center
w3.ouhsc.edu/neuro
Colorado Neurological Institute
thecni.org
Case School of Medicine Department of Neurology
mediswww.meds.cwru.edu/dept/neurology/
Focusing on care until a cure
www.care4dystonia.org
Neurologic Research Insitute
www.coloradoneurology.net
Online medical journals, textbooks, and physician reference
www.emedicine.com
Reliable health information
www.healthfinder.gov
Health information
www.health-nexus.com
Michigan Neurology
www.michiganneurology.com
NINDS -Neuroscience Center
www.ninds.nih.gov
Your Neurology Community
www.neurologychannel.com
Path To Good Health:
www.pathtogoodhealth.com
Neckease:
www.pathtogoodhealth.com/neckease.htm
National Organization for Rare Disorders
www.rarediseases.org
Spasmodic Torticollis Long-Distance Recovery Course:
www.recoveryclinic.org
Spasmodic Torticollis Recovery Clinic:
www.STclinic.com
Education and Awareness for Movement Disorders
www.wemove.org/dys/
University of Maryland Medicine Departments of Neurology and Neurosurgery
www.umm.edu/neurosciences/pat_cond.html
Dystonia News & Views
www.umm.edu/neurosciences/pat_cond.html
Try not to Laugh
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By joining together, we can show those with the power to make a difference that we have just as many people with dystonia that need help as those with Parkinson's and other diseases of a similar nature.
For years many physicians thought of Cervical dystonia as being psychological. IT IS NOT. Nor is it Parkinson’s disease, nor nor Cerebral Palsy nor Muscular Dystrophy. This confusion is why Cervical dystonia is often misdiagnosed and/or undiagnosed.
WHAT CAUSES Cervical dystonia?
Neurologists believe those with dystonia are born with a predisposition. In approximately 50% of the cervical dystonia population, there is a family history of hand or head tremors (familial or essential tremors).
An IMPORTANT POINT TO REMEMBER is that many with dystonia exhibit denial. This can exacerbate the symptoms and make them worse. It can create a “FLIGHT OF FRIGHT†mode which can then lead to more anger and anxiety and this only causes deeper symptoms and depression.
Acceptance of dystonia is all-important. Dystonia can be devastating but, with regular treatment and attention, YOU CAN LEAD A PRODUCTIVE LIFE! Life’s habits may have to change, but “The only thing permanent in life is changeâ€. Think positive and good luck to you! I hope you find this information helpful.
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