Jenni profile picture

Jenni

I am here for Friends

About Me

I am very small for such a brave animal.(As Piglet is well known for). I tremble at the sight of pain. I quiver at the sight of beauty. I am a lover of truth (even when it pisses me off). A truth I'll tell you is I have a movement disorder called DYSTONIA. Much like Parkinson's, dystonia claims the freedom of my body to move voluntarily. My son Trev and I both have dystonia. We would like to someday be a part of a solution to this twisted disorder which claims the quality of life for millions of great people each year. For now, we meet ourselves each day with or without pain or pity. Grateful for the determination and understanding our friends and family. Science will catch up. Discovering a great treatment and a cure for DYSTONIA soon. .....I do believe in science!I DO! I DO!I DO! I DO! Photobucket Album

My Interests

Art, music, cub and boyscouting, getting dirty in my garden, dancing with Tony when he really wants to. Singing in the car before he turns up the radio to drown out my voice!!!! Margaritas, shrimp, bean n cheese burritos. Then walking off all the weight I just gaind eating late at night! Reading instruction manuals for scouting so I have a clue how to a use a pocket knife without drawing blood... Planning fun events for kids that they will remember for the rest of their lives...Good memories...

I'd like to meet:

Prince, Johnny Depp, Stephen Colbert, Steve Martin, all people that give of themselves to see others grow, the scientists from all over the world who are getting closer everyday to finding the cure to DYSTONIA, Parkinson's, EVERY cancer and any other disease or disorder that plague humanity, David Bowie, the late George Harrison, R.E.M., Bill Marer, Bono and "the Edge", Paul Simon, and of course you ! If you have the need for a friend.

Music:

U2, Prince, Barbra Streisand (yup), Queen, David Bowie, Bob Marley, Pearl Jam, Sinatra, INXS, Stevie Ray Vaughan, The Pretenders, Incubus, The Clash, Foo Fighters, My Sweet Tony and The Stiffies, Judy Garland (um hum), My brothers, Chris " DuKiE", guitarist for all styles, baby bro, Jason Duke shining star on the wildly progressive side, bro-n- law, Stephen Crumbacher lyricist, composer, producer, lead vocalist, and keyboardest.... and play anything with funk, honesty and a soul...That's what gits me!

Movies:

An Inconvenient Truth, The Bee Gee's version of Sgt. Pepper's Lonely Heart's Club Band (nostalgia), To Kill A Mockingbird, What's Eating Gilbert Grape?, The Jerk, The Empire Strikes Back, Across The Universe, Spirited Away, Napoleon Dynamite, Nacho Libre, Chocolat, I Am Sam, Charlie and Choc.Fac./Depp

Television:

Jon Stewart, Bill Marer, The Soup, National Geographic Ch., Colbert Report, C.S.I. N.Y., Medium, House, Lost, Animal Planet, Anderson Cooper 360, History Channel, Heroes

Books:

Art history, art/photography, I Am America (and So Can You), Runny Babbit, Goodnight Moon, The Invention of Hugo Cabret, The Bestest Dad In The World, Unlikely Friends, anything that the boys and I read together...those are the most fun and worthwhile works I can imagine.

Heroes:

Grampa Bud Salow, George Harrison, Curious George, My Tony, David Bowie,of course, my friend Jason, Nanny, my mama, you if you're not afraid of the truth, my sons, Trevor and Austin who play secret, elaborate, non-electronic "guy" games that are in a cool language that only the fast-moving minds could truly understand, but never translate.

My Blog

My Friend Jay

I met my friend Jay on my space about a year ago. I typed in the word "dystonia" and his name popped up as well as a few others. I was new to the IM thing, but loved having a friend who has the same d...
Posted by Jenni on Thu, 19 Jun 2008 12:18:00 PST

Loving the moment.................................

bye bye A moment of our time crept past me. I thought about you and what might be creeping past you. Friends you may have laughed with about insanely child-like ideas. Peanut butter sandwich...
Posted by Jenni on Sat, 10 May 2008 09:03:00 PST