I was diagnosed with Muscular Dystrophy (specifically Spinal Muscular Atrophy, SMA) when I was two and a half after my parents had noticed a slight tremor in my hands. This led to our relationship with the Muscular Dystrophy Association. When I was 7 I was chosen to be the New Jersey State Goodwill Ambassador for MDA. I got the chance to travel all over the state to various fundraising events. I was also chosen to serve as Goodwill Ambassador for another year after that. My first year on the Jerry Lewis Labor Day Telethon was also when I was 7. I opened the show in the New York area at WWORTV and I have been on the Telethon every year since. This past Labor Day was my 18th year appearing on the telethon!
I have spoken at countless MDA events in my life. I'm now referred to as a Goodwill Ambassador. I am fortunate enough to still be able to walk unlike most people with MD. Though, I use a motorized scooter to get myself around because I get tired when I walk long distances. My friends have made a habit of taking my scooter for joyrides which is half the reason it looks the way it does. The other half is me. :)
I'm currently a DJ at 94.3 The Point all because I was seen on the MDA Telethon one year. You can hear me Monday-Thursday nights, 10-midnight and Saturday nights, 8-midnight. I also do voiceovers, write, act and model. I'd LOVE to branch out into music television and cartoon or videogame voice acting soon.
You may also want to check out my blog, TheNerdyBird.com, which you can get to by clicking the banner below.
