About Me
Thank You So Much Everyone
We, Paris (Keiton’s Mum), Uncle Warren, Nanny Laney, Granddad Jack and Auntie Starr are all so very grateful for all the love, support, kindness, heart moving words, generosity, selflessness, dedication, hard work and concern that you all have shown for our lil angel over the past 8 months, and some of you over the past 4 years.
We would also like to say thank you to everyone who sent flower’s, made donations and attend the funeral, the whole thing seemed like some thing out of a movie, some thing that really couldn’t and shouldn’t have been going on in our life’s but It was, and all the love and support that everyone showed has helped us all remain grateful for the little time we did have with our Keiton Bear.
We will always feel a great loss and a curtain amount of anger and bitterness that KV was taken from us so early, that he had to suffer most of his life and never get to live life to the full BUT what we have watched happen over the past 8 months, how our efforts and Keiton’s infection’s smile has moved the hearts and minds of thousands of people all over this world, has moved us and changed us forever. Nothing will be the same again.
Keiton should not have had to suffer so much, there should have been a donor for him, WE should not have had to fight such a hard battle, I should not have been stolen away from his bed side to do TV, Radio and Newspaper interviews, precious moments with my baby, now forever gone….
Keiton may not be here anymore but the battle is far from over, “KEITON’S ARMY†we live on in his name in the hope that his, our suffering, our plight, can help stop any other child and his/her family going through what we had to and God forbid having the same fate as our baby bear.
Just remember, cancer can effect any one of us at any time, you may think life’s all good today and then tomorrow it could all come crashing down… DO SOMETHING TODAY, GO GIVE BLOOD, BECOME A DONOR….
Keiton had to have blood transfusions the whole way though his 4 year’s of treatment, with out that blood he would have died so much sooner, and if there had been a donor there for him he might still be with me today!
Mine and my family’s hearts are broken, I, we miss him so very much, just typing that makes me cry, I still feel him with me but crave his touch and long to hear him call “mumâ€, I still can’t believe he’s gone, how can such a live and large personality and spirit like his be gone….. As much as it hurt’s, I know that he’s time on this earth was served and I’d do it all again in a heart beat with no regrets.
We all want to continue on in his name, to make a difference, to try to set right were all is so wrong so please continue to check his site’s to see how YOU can help us make a difference.
I would like to share with you all a poem I wrote and some that bring me comfort…..
KEITON
I no I have been so blessed to have had him in my life, but the pain of him being gone is so strong, I loved him beyond being his mum.......
A spirit that soared and a smile that moved hundreds of hearts, I am the one who can't bare to be apart, I no, I hope, he is as happy as he was here with me, stay close baby bear, stay close to me....
I see him every moment of the day, as if he is only an arm's reach away, with that cheeky look in his big brown eyes, as I would wonder "what’s he up to now!"
I walk into his room where everything’s just the same, he's gone, I feel so much pain, and yet I smile.
I hold each memory and vision of him so tightly in my head, I close my eye's and reach out to feel his silky skin upon mine, I sniff his nu nu's to smell his scent.. Although a brief moment of comfort it may bring its nothing compared to the real, true HIM.
I’m lucky that you left with me a life time’s memorises, of love, smile’s laughter to ease away the pain, with-out you, nothing will be the same but that’s ok.
Through tear’s I told you, let go baby bear, its ok and you did it with such dignity.
His time on earth, over it may be, his amazing spirit and cheeky personality will live on as his legacy.
I Love You Baby Bear.
Give him special care
God saw you getting tired
When a cure was not to be
He wrapped his arms around you
And whispered 'Come to me'
So keep your arms around him, Lord
And give him special care
Make up for all his suffering
And all that seemed unfair
Do not stand
Do not stand at my grave and weep;
I am not there.
I do not sleep.
I am a thousand winds that blow.
I am the diamond glints on snow.
I am the sunlight on ripened grain.
I am the gentle autumn's rain.
When you awaken in the morning's hush,
I am the swift uplifting rush
Of quiet birds in circled flight.
I am the soft stars that shine at night.
Do not stand at my grave and cry;
I am not there.
I did not die.
Keiton first became sick in January 2003. His eye started swelling up and then he couldn't put any weight on his left leg. After months of pain and x-rays and tests he was finally taken into hospital, by this time he was paralyzed from the waist down and fighting for life.
In June 2003 he was diagnosed with Acute Lymphoblast Leukaemia (ALL)Cancer of the Blood. The doctors said it was unlikely that he would ever walk again, yet he is now running around! At that time he had to have chemo treatment for 3 years, everything was going really well until the last month of treatment in July 2006 when Keiton relapsed with a different type of cancer.
It is very rare for this to happen and it is a very aggressive type of cancer. Keiton’s families were told that the only way to give him a chance of survival would be with a Stem Cell Transplant. The best way to do this is with a Bone Marrow Donor but due to Keiton being mixed raced, one parent white the other black, we were told that it would be very difficult to find a match for him.
Keiton's uncle, Warren Knight, then started an appeal for mixed raced people to come forward and join the Bone Marrow register. Keiton's mum, Paris Knight appeared on TV, radio and in newspaper’s making appeals and we managed to help recruit over 1,500 individuals to sign up to the Bone Marrow register. This is a fantastic achievement and undoubtedly save the life of many individuals.
Sadly no donor has been found for Keiton after searching around the world of 10 Million people on the register.
About 6 weeks into the appeal to find a donor, the doctor's told Keiton's family that because of the unique tissue type in Keiton's Bone Marrow the chances of EVER finding a match were “nearly impossible†and without some type of transplant they predicted that Keiton’s cancer would be back within 2 months, and he would be dead with in 6 months. This news was by far some of the hardest news the family had ever to accept so far.
The Doctors then outlined some other some options:
1. A Blood Cord Transplant, which is the stem cells from the umbilical cord of a new born baby, but the chance’s of survival after transplant were only 20% and his quality of life during this time would be dreadful.
2. To take Keiton home and hope the chemo alone would cure him, which they all felt would not happen, but at least he would have some peace before he died.
This was not an option from the family’s perspective. They refused to give up on him.
Keiton’s doctor then went on to say that they had never performed a blood cord transplant before; in fact the whole of the UK had hardly ever done it and was technology was up to 5 years behind the USA.
Research carried out by the family revealed that the USA pioneered the field of Cord Blood Transplants. Surgeons in the USA offered Keiton a 55% chance of survival after transplant. Keiton’s family desperately started fund raising as £500,000 was needed to fund life saving treatment for Keiton.
The fund raising went really well with the public in the UK, family and friends showing so much love, support, kindness and willingness to help us raise this money. Large and small events and fundraising activities involving celebrities, schools, colleges, business and local communities took place all over the country, and even abroad.
After weeks of fund raising and public appeals £50,000 has been raised, but time has now run out. He HAD to have a transplant before the cancer came back again.
Paris visited the UK’s top hospitals as she had to make sure that Keiton could get the best possible treatment the UK had to offer if they didn’t get him to the US. She decided that the Transplant & Isolation unit in Bristol was the place.
Since then there has been yet more disappointment. The medics revealed that a 4 out of 6 cord match had been found for Keiton but further tests revealed that one was not suitable or had been reserved for someone else.
Finally the family were told that 2 cords had been found and due to neither of them having enough stem cells in them for Keiton’s weight the would perform a Double Cord Transplant, this was the best option for Keiton and that the cords had been reserved for him and he was to have his transplant on 5th January 2007.
Keiton’s mum, Paris, received a phone call on Monday the 18th which tore her and keiton’s family to bits one more time…..Keiton’s Cancer had come back.
The Cancer had come back in a very aggressive form and there was no way the Transplant could go ahead now as the Cancer would be too strong. Keiton was admitted into The Royal Marsden Hospital in Sutton on Wednesday.
Keiton will have to now under go the strongest Chemo treatment he has had so far. His body is getting weaker and he is suffering more adverse reactions, yet when he’s not feeling too ill he still manager’s to put a brave face on, he’s such a soldier!
Keiton and his mum, Paris, now have to stay at the Marsden for nothing less then 6 weeks and then wait to see if the Chemo has worked and he goes into remission for the 3rd time.
Keiton was only given a 20-30% chance of survival after transplant before and Doctor’s told the family that if he needed to go into remission another time it would knock his chance’s down by 20%, giving him a 0-10% chance of survival, so that doesn’t leave much to go on and Paris has been warned that there is a very high chance he will die in hospital trying to recover!
We will continue to keep you all updated as time goes by.
Keiton’s mum say’s
“Please everyone keep praying, sending positive vibe’s or what-ever it is you do, that you think can help as all of your support so far has made such a difference to Keiton and I and we could never thank you all enoughâ€
CLICK THE T-SHIRT BELOW, TO BUY KEITON ARMY T-SHIRTs!!
Again thank you so much for your support
With love & appreciation
Warren, Paris & Keiton xx
To find out how to become a donor, please go to
WWW.ACLT.ORG
SAVE KEITONS LIFE!! CLICK HERE! WWW.KEITONKNIGHT.COM
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