§amantha -MADAM BUTTERFLY profile picture

§amantha -MADAM BUTTERFLY

THE EYES CAN BE DECIEVED, BUT THE HEART IS RARELY FOOLED

About Me



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Hi.and welcome to my page. I am 35 years old, and live in a lovely part of the Northumberland countryside.I live with my partner Sean, whome I have been with for the last 7 1/2 years.Sean, has two kids from prev marriage, and I love them to pieces, Joe is 13, and Emmas 16, And I would'nt change them for the world. We have 4 dogs,and 5 cats. These are my babies, as kids are a no go for me, due to condition. Please visit there myspace page by clicking this banner.


I am dissabled, and suffer with a rare brain condition known as Benijn Intracranial hypertesion,or B.I.H. Idiopathic Intracranial hypertension or(IIH) is a serious neurological condition in which high cerebrospinal fluid (CSF) pressure within the skull causes unbearable headaches, swelling of the optic nerves (papilloedema) and can result in loss of vision or blindness. IIH was formerly known as BIH (benign intracranial hypertension) although this name is falling out of use now as the condition can cause permanent visual loss and therefore is certainly not harmless or benign, as sufferers who live with it's effects daily would agree. It is also sometimes known as pseudotumor cerebri (PTC) as there are some of the signs and symptoms of a brain tumour without a tumour being present(pseudo meaning false). The cause of IIH is unknown – idiopathic means "of unknown cause". IIH is a rare condition affecting about one or two in every 100,000 people. Imagine your head feels as though it's been crushed by a vice, a headache unlike anything you've ever felt before, where every part of your head hurts and the pressure is unbearable, and it's a pain no-one can see. Imagine a world in permanent soft focus, where things come in twos, where things disappear momentarily, where you can't tell how deep a step is, where bright light is a pain you can't stand. Imagine a world that sways around you, where you feel as though you're in the middle of a storm on a cross channel ferry, feeling dizzy and sick - yet you're standing still. Imagine you're so totally exhausted that your body doesn't want to move and all you want to do is sleep, yet an incessant roaring in your ears keeps you awake. Imagine feeling lost and fearful, confused in a place you used to know well. "Welcome to the world of IIH"It truely is a Disabilitating disease, And have now been told it is chronic,and chances of recovery/remision now are now very slim.I have had 30 Lumber punctures+,Lumbar Punctures (LP's) have often been used as treatment to relieve the excess CSF fluid. Some people may benefit from having repeated LP's done while others may find the relief lasts a very short period of time. Some doctors are hesitant in performing repeat LP's as this can create a whole new set of problems such as infection, brain herniation, chronic neck and back pain, and nerve damage. Spinal headaches may also result, leaving one incapacitated for a short period of timeCerebral Spinal Fluid replaces itself anywhere from 3-6 times a day, often leaving this form of treatment, short term. Many Doctors have recently moved away from using LP's as treatment for IH. I only wish they had thought this a few years back, as it has left me severly incapacitated.with unbelievable severe pain 24/7.It never ends. I have had three lots of lumber shunts, as well as facet joint injections,and drug infusions, to releive some of the pain.But I still smile, all the time, so dont let that put you off.Please see my blog section, for a fact sheet and usefull information, on the disease, As well as some very usefull links, to some great help sites.If I can help you in anyway at all, PLEASE, Just ask ok. I started my page on 18th Jan 2007, and have been lucky to come by a page on here, which supports,and raises money for what is known as the. INTRACRANIAL HYPERTENTION RESEARCH FOUNDATION. The friends benifit concert, is used to raise money for this, please see banner on page, and please add,. THE FRIENDS BENIFIT 2,. To your page, they can be found in my top friends


I am mostly housebound now, and have to rely on my partner for everything, which at times can be hard. In the summer months, I am a little brighter, and do try to get out a little, when I can. Warm weather is the best for me, but the great british weather is always cold,wet and misserable. My laptop,and PC are mostly my window to the outside world, and I hope to make sincere friends, whome love a good laugh, or just a good natter, as with me not being able to go out much, I am unable to socialise, and therefore am a little shy on the friends side



I also am trying to help others, who also suffer from this condition.I post Blogs on it too,so please check them out.I also Believe strongly, in Sarah's Law, and would appreciate anyone else reading this, if They would take the time to sign Sarah's Law petition, Banner can be found on this page, as well as blogs, on what you can do to help.I try to use my time,here on Myspace to help others out there.I think it is a great opertunity to reach out to people, who may also be in similar situationsWho are just looking for an ear, a shoulder, or just like to know, that there is someone out there who cares. I do alot of charity work, for causes, I have either been subject to, or touched by, from others around me, or I beleive strongly in. Anyone requiring banners, for charity's, from my page, please email me,and il send them right over, as they wont link you to pages if you just copy them, and will not be clickable

This is me, with my Japanese Chin, Frankie. I love a good laugh,and have a wicked sence of humour, or so im told, and am realy hoping to make special friends, who just like a laugh, Share experiances, or need information, Chat, and have some fun. Im told in generouse,caring, warm,sincear, and I will do anything for anyone.Dont worry guys £10 in post. I am also told im to soft for my own good, but hay, at least im good at something,and as if some of you did not already know, Im rubbish at spelling too....LOL

Im not a Geordie, was actualy born in London, and spent most of childhood in Wiltshire. before leaving to come up to the North East, where it is dam cold.Its the only place I know, where Fish put on there thermals, to jump out of the water


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WHY DONT YOU ADD YOURSELF TO MY MAP, YOU DONT NEED TO INPUT EMAIL,OR GET ONE FOR YOUR PAGE TOO,JUST CLICK FRAPPER,ON BOTTOM OF MINE,AND ENJOY!You are now marked on my visitor map!


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You can leave me a kiss here, if you want!
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My Interests

My Interests include, Photography, portrait and landscape, I love MOST HAUNTED with Yvette Fielding, I realy cant get enough of it. Spend a fair amount of time on Myspace. My dogs, my cats. Very pasionate about music, and plug my self in daily, as takes my mind of Pain. I also Like to go fishing, when im well enough, and love sea side, and sea air.mmmm. Dream of one day living by the sea, where the air is warm, and the sand is hot, would just be amazing, but thats what day dreaming is for. I also would LOVE to leave the UK, and go abroad anywhere,and see what this world is all about. I also collect wade whimsies, have over 100, and old clocks, the old wind up ones, I have a fair few of them, just love the sound of them.Shame im the only one, they drive everyone nuts. I also collect me to you bear ornaments, have loads. I also collect anything with Betty Boop on. And I also love my crystals. Play keyboard, guitar, not that im any good mind. But I can look the part.LOL. and I love guitar hero, for the playstation too,realy is fab, and great fun.


Please take the time, to visit these charities, and help, donate, or promote awareness for them.

FIGHT BREAST CANCER
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I'd like to meet:

Introduce Sarah's Law 16602 Signatures We owe it to our next generation ! Sarah's Law would give parents the right to controlled information about the whereabouts of predatory child sex offenders living in their area. It would enable parents to safeguard their children by contacting police in order to obtain details of high risk paedophiles who are known to reside within their local community. This information would be strictly controlled by police and there would be strong penalties for anyone who abuses the information. Sarah's Law is NOT a call for unrestricted open access to the Sex Offender's Register, Home Secretary John Reid announced plans to formally investigate the introduction of Sarah's Law, saying:'I start from the position that information should no longer remain the exclusive preserve of officialdom. 'I believe the public have the right to protection and they have the right to information'. Lord Stevens - former Met Police Chief: 'Its all about a parent's right to protect their child, a child's right to be safe. 'If just saves one child from sex abuse, and the lifetime of nightmares that too often follow, then I'm afraid its worth all the inconvenience in the world for the paedophile.' 'We Can't Change the Past - But We Can Definitely Change the Future' Children don't get a second chance. We believe its our right as parents - We recognise the problem - We commit to the cause. Petition: Introduce Sarah's Law. Sign the petition. The Introduce Sarah's Law petition to Gordon Brown was written by Mark Scott and is hosted free of charge at GoPetition. Online petition - Introduce Sarah's Law PLEASE HELP IN THE FIGHT, FOR THIS MUCH NEEDED, SARAH'S LAW, BY SIGNING THE ABOVE PETITION.FOR MORE INFORMATION ON, SARAH;S LAW, PLEASE VISIT www.myspace.com/markscottone



PLEASE DO ALL YOU CAN TO HELP BRING HOME, MISSING MADELEINE McCANN.FOR POSTERS AND BANNERS, JUST MAIL ME,AND IL GET THEM STARIGHT TO YOU,PLEASE SEE MY BLOGS, FOR THE VERY LATEST, IN DEVELOPMENTS, WHILST THE SEARCH FOR MISSING MADELEINE CONTINUES!. ..


Well,the obvious is some new friends. Ambition is to meet Mr Simon Cowell, I think he is just charming, so immaculate, and kind, and his smile is lovely, warming. Well he rocks my boat.Just look at him, he's just a puddy cat!He says what he thinks, and thats the way to be. How far would we get in life, if nobody told us the truth. Would also like to meet


Save The World - One Click At A Time!

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Music:

Will listen to almost anythingSome favs incl-Queen,P.C.D, Suga babes,Kylie+Dannii ,Minougue Clannad, kate bush, Black eyed peas, Wayne newton, Will Young, Fleetwood Mac, and Stevie Nicks,I grew up loving them.Sting, David Blunt, Robbie Williams, Geneisis, Abba,Pet shop boys,Blondie, Eurithmics, Michael Jackson, Cher, Gwen stafani, Vanesa Mae,Bond, Roxette, Stevie Nicks, and Fleetwood Mac, Sir Elton John.Sir Cliff Richard, and KT Tunstall. I Realy think the best decade for music, was the eighties, There was a special vibe then, and everything sounded fab, and still does. Now kids are listining to cover versions, to songs, I listened to when I was at school, kinda wierd, but funny too, as kids think im ultra cool, knowing the lyricks, and singing along to them.







Movies:

I so love my films. Aliens, Creep, Final destination, Jeepers Creepers, Road Kill, What lies beneath, anything that gives you a jump, gives me a buzz. Also like a good love story, Ghost, Pretty woman.Color purple,well who does'nt. Some of the older films, like Doris Day Pillow talk. FAB. Jaws, ET.Mask, with Cher, oh and I love FRIED GREEN TOMATOES,AND GORILLAS IN THE MIST. 10/10..




Television:

Meet the rest of the family. TO VIEW MORE OF MY PETS, PLEASE VIEW THERE MYSPACE PAGE BY CLICKING THIS BANNER.


A HUGE BIG THANK YOU, TO MICHAEL FOR THE ABOVE PICTURE OF FRANKIE.


OUR BELOVED PEPPER WAS PUT TO SLEEP ON 13TH DEC 2007.HE SUFFERED FROM LIVER FAILURE+COMPLICATED DIABETEES.HE IS BADLY MISSED, AND WILL NEVER BE FORGOTEN.HE WAS THE BEST BOY IN THE WORLD, AND IT WILL NEVER BE THE SAME WITH OUT HIM.










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Books:

The documentary was on Channel 4 at 9pm and was called "The Boy Whose Skin Fell Off". It tells the story of 36 years old Jonny Kennedy who died of cancer brought on by the genetic skin disease called "epidermolysis bullosa (EB) which caused his skin to fall off when touched and consequently left Jonny with agonising and, for those of you who didn't see the programme, I mean really agonising sores. Jonny knew he was going to die when the hospital told him that his EB condition had become so serious that cancer had set in and he had only 12 months to live. Now Jonny was a highly intelligent person and he wanted people to become aware of this condition and of the charity called DebRA which was set up in 1978 by a group of parents whose children had become affected by EB. At this time it was not a well documented condition. DebRA has grown significantly since then and operates in 32 countries around the world. Here in the UK it is thought that there are around 5,000 people affected by the condition but that there is almost half a million people worldwide with EB. Before telling Jonny?s story let me just explain a little bit about EB. It was given this name in 1886 because it was thought that it was a form of hereditary blistering disease but nowadays that is not technically correct. EB is more commonly known as a genetic disorder that causes blistering and shearing of the skin. The slightest friction on the skin can cause it to blister. Jonny is a gritty Geordie who was born with EB and with one of his legs being raw. He lived for 36 years but had the body of a boy and because of EB puberty was prevented from naturally occurring. His voice became quite high due to the effect of the condition on his throat. When he took his cap off his poor head was full of thick stubs of skin which turned quite green-looking in the last few months of his life. It was in September 2002 that his battle against EB started to come to an end when he was advised he had terminal cancer and given just one year to live. This programme was kind of like a video diary of his final four months of life. The programme begins by showing Jonny sitting in his chair in the middle of his living room and he is dead. He looks peaceful. At this point I thought I would not be able to watch it but somehow it was just so compelling that I couldn?t switch the channel over. His voiceover states that it is himself in his chair, it shows you Jonny?s brother looking at him then the scene switches to Jonny lying in his coffin and Jonny?s voiceover says ?this is me in my coffin?. It was quite eerie listening to his voice telling of his death, saying ?this is me, I am dead?. Kevin Whately also commentates throughout the programme. Jonny visits an undertaker to order his coffin and the scene shows Jonny and family in the workroom and telling the undertaker exactly what he wants on his coffin and Jonny?s measurements being taken. He doesn?t want people to cry, he wants them to celebrate his life. He doesn?t want an ordinary coffin either, oh no, he wants a can of bake beans etched on the coffin (he thinks this will set people talking), he wants tigers on it too. To Jonny, tigers show strength and this little man in a boy?s shell certainly has plenty of that. He might have very thin skin, and at times no skin, but he certainly has a thick skin mentally and I don?t mean that in a derogatory way at all, it is meant as a sheer compliment to this brave man. He jokes with the camera team that, at the end of the filming, he doesn?t want them leaving over him saying ?well, is he dead yet??. When questioned about his illness, Jonny likens it to a piece of Velcro ? only the hinges are missing which I thought was a very good description. He even makes a joke about wanking saying it doesn?t go well with the condition. He can laugh at himself. Jonny attends a photo shoot in Hyde Park in 2003 which was trying to raise awareness of DebRA and he met Nell McAndrews (the model who became famous on I?m A Celebrity Get Me Out Of Here). I didn?t really like Nell but after this documentary I have totally changed my opinion of her. We saw her talking very naturally to Jonny, she even burst out in tears which I am sure looked very genuine and I really don?t think they were put on for the camera. We saw her giving him a very careful hug because she couldn?t give him a normal one. We saw her kiss him and believe me he had scabs on his face and head. At no point did I see her squirm away from him. I felt she was very, very genuine with Jonny. He was asked if he fancied Nell to which he replied ?who wouldn?t, of course I do.? and he winks, he winks quite a lot. He also abseiled off the Glasgow Hilton hotel, he went in a plane and did loop the loop type actions. He wanted to do things before his time ran out. He was a spiritualist and the documentary showed Jonny at one of their meetings and talking to them about his funeral. He wanted his funeral to be exactly as he had arranged. He even wanted a track from ?Queen? playing at his funeral. Although Jonny appears to be quite a blunt man we see him crying too. It was really so unbearable to watch the scene where his mother unaddresses him to change his bandages. I wanted to turn away but I couldn?t. I felt I owed it to Jonny to watch as he told his story. When Jonny knew he had only a few months to live he decided he wanted to live on his own in the bungalow that was being adapted specially for him. So he moved into it and had a team of carers but his devoted mother went every day and once a week she had to change his bandages. Jonnny cries as she tries to take the bandages off his back ? they are absolutely stuck to his skin. His chest looks raw but that was nothing in comparison to the scene that showed you his back. Oh my, I cried inwardly. I cried for Jonny but I know he wouldn?t have wished us to cry. He tried not to cry but I just couldn?t help himself, the pain must have been so great. He was sitting with his upper body bent over and his back from the shoulders down to his waist hadn?t one bit of skin left on it. It was raw as raw can be. How was this man coping with this condition? How did he? I really do not know. His mother very carefully applied the clean bandages and very gently rubbed his back. Jonny?s hands and feet became stumps after many years of the condition but he still was always determined to put his cap on. At one point he failed and it fell on the floor but then it showed him again triumphantly putting it back on. Jonny was a fighter and he fought to the end. He wanted a house-warming party and he got it. He commended his mother and brother for doing all the work and giving him a great day. His great friend, a Lord (can?t remember his name) came and so did Nell McAndrew and lots of other people including children. I thought that was really lovely of her to make his day. He was just so overwhelmed that she turned up at his party and she gave him another kiss. Then Jonny starts to become really ill and he knows his time is near but his determination shone through when he told his mother he was going to London, to 10 Downing Street, to attend a DebRA meeting with Cherie Blair. His mother didn?t want him to go, he was too ill but being the gutsy little fella he was he went because he said if it was the last thing he did then he would do it. You could see he was really ill but he met Cherie Blair and he tried to do everything he could to raise funds and awareness of this terrible disease. Sadly, it was the very last thing he did. Jonny firmly believed that DebRA would one day find a cure for EB but he also knew that it wouldn?t be soon enough to save him. Then we see Jonny with a carer on the train travelling back North and he is very, very ill and sadly died. The final scenes show his funeral which was sad but also a celebration of his life. We see his mother trying desperately not to cry and to sing along with the Queen music that Jonny had wanted. The camera looked around the congregation and you could see the admiration for this man called Jonny Kennedy written all over their faces. He left a present and a note for his mam. He left her a tiger brooch ? to depict strength and for her to have the strength to carry on. She was relieved that Jonny was finally out of his suffering but also felt guilty because she felt that way. She need never feel guilty. She loved him and cared for him and you could see the love for him in her face. What a remarkable woman she is. How can you not admire this man? How can you not fail to be inspired by him? He made you laugh and he made you cry. He got me thinking; when I think that times are bad and wonder why things happen to me, then I am being totally selfish, my life is really good, I have a wonderful family, a good job, nice clothes, nice car, good health, lovely grandchildren. I have it all. I shouldn?t ever complain. Jonny didn?t complain. He got on with his life as best he could and wouldn?t feel sorry for himself and through his sheer grit and determination did the things he wanted to do. He showed us courage, true courage and it should be a lesson to us all. Never think you are ?badly off? because there is always, al ways someone out there who really is.


Heroes:

My Partner Sean, Because through hell or high water he has been there for me, no matter how difficult things can get, He never complaines. No matter how much pain im in, he's there.No matter at what hour it is, he's there. And he realy does the best he can for me, He is also my Best friend,And my soul mate.And I love him to bits. In my opinion, he is my unsung hero.



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SAMANTHA
S Shy
A Appealing
M Mystical
A Amusing
N Normal
T Tasty
H Handy
A Adventurous



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SAMANTHA
ABOUT ME:
HI,I'M SAMANTHA, 35, AND LIVE IN NORTHUMBERLAND, UK. I AM LOOKING FOR NEW FRIENDS,IM LOOKING FOWARD TO LOTS OF LAUGHTER AND FUN, SO GO ON, ADD ME !

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MISSING MADELEIEN McCANN,THE LATEST

Missing Madeleine McCann...One Year On 'We were all going to eat at a family restaurant that night but changed our plans as the kids were tired ..why didn't we go?' - Kat McCann   Kate McCann (P...
Posted by §amantha -MADAM BUTTERFLY on Sat, 17 May 2008 12:02:00 PST

ANOTHER MADELEINE McCANN TYPE CASE MAY BE CONNECTED

'Disturbing Similarities' With Madeleine   The family of a girl who vanished just seven miles from the Portuguese resort where Madeleine McCann disappeared are convinced the cases are connected....
Posted by §amantha -MADAM BUTTERFLY on Sat, 17 May 2008 12:00:00 PST

SEANS KIDS ESCAPED THERE HOUSE FIRE.REACHED FRONT PAGE OF PAPER

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Posted by §amantha -MADAM BUTTERFLY on Tue, 13 May 2008 01:22:00 PST

MR MURAT HAPPY TO DO MADELEINE RECONSTRUCTION

Murat Happy For Madeleine Reconstruction   British ex-pat Robert Murat says he will happily take part in a reconstruction of the night Madeleine McCann disappeared if asked to do so by Portugues...
Posted by §amantha -MADAM BUTTERFLY on Wed, 07 May 2008 08:56:00 PST

MADELEINE REPORTING IS COMING TO AN END

Madeleine Reporting Coming To An End   Kate and Gerry McCann will soon get their wish of stepping out of the public eye, according to reporters in Praia da Luz covering the one-year anniversary ...
Posted by §amantha -MADAM BUTTERFLY on Wed, 07 May 2008 08:55:00 PST

NEVER LIE TO YOUR MUM- AMUSSING

A young man called Peter invited his mother for dinner, during the course of the meal; his mother couldn't help but notice how handsome Peter's flat mate, Simon, was. She had long been suspicious ...
Posted by §amantha -MADAM BUTTERFLY on Wed, 07 May 2008 08:49:00 PST

BOOK FOR GERRY AND KATE McCANN = LINKS AND CODE

THIS IS THE BOOK OF HOPE FOR THE McCANNS AND THERE FAMILY, THIS IS THE PAGE LINK. http://www.slide.com/r/3DKbbFtPxD_Pixo2Qp_u-xvbF72LpwOI?cy=m s&view=largeBOOK OF HOPE FOR THE McCanns    ...
Posted by §amantha -MADAM BUTTERFLY on Mon, 05 May 2008 08:16:00 PST

PLEASE HELP ME

HITHANKS FOR READING THIS!YOU KNOW I BEEN TRYING TO POST THIS BOOK FOR McCANNS EVERYWHERE, BUT IM STARTING TO WARE DOWN.AND IM GETING SORE,AND TIRED.I POST THIS BULLITIN - IT ONLY REACHES MY FRIENDS, ...
Posted by §amantha -MADAM BUTTERFLY on Mon, 05 May 2008 08:08:00 PST

GERRY AND KATE McCANN HOPE ATTENTION WILL WANE

McCanns Hope Attention Will Wane   Kate and Gerry McCann want to step out of the media spotlight after the first anniversary of their daughter Madeleine's disappearance. McCanns are marking an...
Posted by §amantha -MADAM BUTTERFLY on Sun, 04 May 2008 11:20:00 PST

ANGER OVER MADELEINE McCANN DOLL

Anger Over 'Grotesque' Madeleine Doll Tempers have flared outside the village church in Praia da Luz over a "grotesque" mannequin of how missing Madeleine McCann would look at 18. The artist and h...
Posted by §amantha -MADAM BUTTERFLY on Sun, 04 May 2008 11:15:00 PST