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♥PRINCESS EDEN♥

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About Me


My name is PRINCESS Eden Rae Adams. On July 16,2004, when I was only 4 years old, I became really sick. The doctors told my mommy and daddy that I had neuroblastoma stage IV, the worst of a rare childhood cancer. I had a long surgery to remove the tumor from my abdomen on July 20, 2004, with complete success. Then I started in the Children's Oncology Group Protocol, COG-A3973 at Columbus Children's hospital. I have undergone six rounds of chemotherapy, as of Nov 2004 and had a stem cell transplant in Dec 2004 and January and February of 2005. At that time in my fight I had finished off twelve rounds of radiation. I began Accutane as a form of treatment in the COG ANBL0032 clinical trial for possible residual disease on April 4, 2005 and finished the Accutane therapy on September 4, 2005. On September 22, 2005, I was declared NED- No Evidence of Disease! I was so happy! On March 29, 2006, I relapsed with little disease showing up on her MiBG scan in my lymph nodes in her groin area and one shoulder. My mommy and daddy were really really scared for me. They started me in treatments at CHOP and I completed MIBG radiation treatment. In January, scans showed 6 new spots of cancer; I had relapsed again. I started a new oral chemo back at Columbus Childrens' with all my old friends.Please continue to pray for my and my family. I have so many people that love me and pray for me all the time. I AM GOING TO WIN THIS AND AM NOT GOING DOWN WITHOUT A FIGHT. Pray I that will soon be NED once again. For more information on me you can visit my BLOG
Check out my new facebook group! SUPPORT AND PRAY FOR PRINCESS EDEN RAE
This page was created by Julia to offer prayer and support to Eden and her family as she bravely fights Neuroblastoma like a Princess.
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My Blog

Chemo Started Today :)

Chemo Started Update Tuesday the 1st Eden started her new round of Chemo.  It will include a Daily Cyclophosphamide Orally and Zometa IV once a week.  She seems to be handling it very well...
Posted by ♥PRINCESS EDEN♥ on Mon, 07 Jul 2008 09:10:00 PST

Eden and Hannah in Washington

CureSearch Washington DC Continued From Hannah Blog We are back from D.C.-- We arrived home late Tuesday night/early Wednesday morning, and the trip was a great time. It had it's stressful moments, ...
Posted by ♥PRINCESS EDEN♥ on Wed, 02 Jul 2008 11:37:00 PST

Spending time at the Day Hospital

Hanging in Day Hospital Eden's CT results show slight improvement and that lesions are still present.  We will continue the antifungals via IV every 12 hours from home.  Her counts are: WB...
Posted by ♥PRINCESS EDEN♥ on Wed, 18 Jun 2008 12:34:00 PST

Eden is home

Pool time Eden is home! She is still doing almost everything at home that was happening in the hospital.  We did get her off a couple of medications that we could not distribute at home b...
Posted by ♥PRINCESS EDEN♥ on Wed, 11 Jun 2008 06:48:00 PST

MIBG Scan Results

Wednesday, June 4. 2008 Posted by Rourke Adams at 12:00 MIBG Scans Eden is feeling a bit better, Eating and Drinking small bits. Here is this mornings scan along with the scan from November. I'll ...
Posted by ♥PRINCESS EDEN♥ on Thu, 05 Jun 2008 07:54:00 PST

Update on Princess Eden

MIBG Scans Eden is feeling a bit better, Eating and Drinking small bits. Here is this mornings scan along with the scan from November. I'll update more later!       ...
Posted by ♥PRINCESS EDEN♥ on Wed, 04 Jun 2008 01:49:00 PST

May 29th

May 29th Eden has been inpatient for three weeks as of today.  This morning the IV in her hand gave out and needed to be replaced so we headed to the Surgical Center to get a new PICC line impl...
Posted by ♥PRINCESS EDEN♥ on Fri, 30 May 2008 04:51:00 PST

Another Update and this one GOOD!

May 22nd Eden's heart rate is above normal but better.  Everything seems to be only a little bit better.  Her comfort is most important at this point. She is currently resting and that see...
Posted by ♥PRINCESS EDEN♥ on Sat, 24 May 2008 04:58:00 PST

UPDATE

May 20th Eden is still in the Hospital but has been moved back to J5 and out of PICU. We are taking every victory we can no matter how small! The Dr. found another Bacterial infection in her intestin...
Posted by ♥PRINCESS EDEN♥ on Wed, 21 May 2008 06:48:00 PST

PICU

PICU Eden has had a very rough week. She left for Florida on Thursday the 8th and was in the hospital there by Friday morning. We flew her back on Sunday as she was not improving. She has been runnin...
Posted by ♥PRINCESS EDEN♥ on Sun, 18 May 2008 12:10:00 PST