Cystic Fibrosis Foundation AL & West FL Chapte profile picture

Cystic Fibrosis Foundation AL & West FL Chapte

About Me


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Welcome to the Cystic Fibrosis Foundation's AL and West FL Chapter, Office's myspace page! We would like to inform and spread the news of what cystic fibrosis is and how you can get involved to help find a cure!
Local Events:
~ CureFinders - children helping children - local schools around Mobile are helping to raise money and awareness for CF year around! Are you or your child's school a CureFinder???
WAITING FOR A CURE - April 16th - Fleming's Prime Steakhouse and Wine Bar - tickets are $20 and will be sold at your area Whitney Bank in Destin and Ft. Walton
GREAT STRIDES WALK-A-THON:
Pensacola - Historical Pensacola April 12
Panama City - St. Andrews Parl April 19
Destin - Village Baptist Church April 26
Fairhope - Duck Pond April 26
Mobile - Hank Aaron May 3
Dothan - West Gate Park May 17
What Is Cystic Fibrosis?
Cystic fibrosis (CF) is an inherited chronic disease that affects the lungs and digestive systems of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene causes the body to produce unusually thick, sticky mucus that:
clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
Symptoms of Cystic Fibrosis
People with CF can have a variety of symptoms, including:
very salty-tasting skin; persistent coughing, at times with phlegm; frequent lung infections; wheezing or shortness of breath; poor growth/weight gain in spite of a good appetite; and greasy, bulky stools.
Statistics
About 1,000 new cases of cystic fibrosis are diagnosed each year. More than 80% of patients are diagnosed by the age of three. At least 40% of the CF patient population is age 18 or older. In 2005, the median age of survival was nearly 37 years. The Cystic Fibrosis Foundation
Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial support from patients, families, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.
If you would like to get involved or learn more please go to our website - www.cff.org or send us a message!!
To make a donation or get involved please click on the icon below-

My Interests

Music:

Bands that support CF - last year Cowboy Mouth and Phar Fletcher played @ Soul Kitchen in Downtown Mobile to raise money for CF!

Television:

The Cystic Fibrosis Foundation is pleased to announce that Mackenzie Rosman is our CureFinders National Honorary Chair.
Mackenzie, known to many as Ruthie Camden on television’s 7th Heaven, has agreed to help us launch our new school and youth fund-raising program.
“Mack” is an active supporter of her local chapter and has attended many CF Foundation events. She is dedicated to helping her stepsister, Katelyn, who has CF.
Mack is eager to visit the top fund-raising school in the country and thank the winning students!

My Blog

CF Night at the Hank - June 7th

DON'T FORGET&. CF Night at the HANK is June 7th  7:05pm!!!..:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" /> .. The BayBears will be playing the ..:namespace prefix = st1 ns = ...
Posted by Cystic Fibrosis Foundation AL & West FL Chapter on Fri, 30 May 2008 09:45:00 PST

Win Season Tickets to watch the Tide& while helping find a cure for cystic fibrosis!!

  Win Season Tickets to watch the Tide...   Take a step to find a cure   $25 a chance to win 2 Season Tickets to the Crimson Tide's Home Football Games2008 Season Seats are located in ...
Posted by Cystic Fibrosis Foundation AL & West FL Chapter on Wed, 07 May 2008 01:22:00 PST

What is a sweat test? Read and Watch

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Posted by Cystic Fibrosis Foundation AL & West FL Chapter on Wed, 19 Mar 2008 10:41:00 PST

Great Strides Kick Off Party - Mobile and Fairhope AL

We wanted to let everyone know that we have rescheduled the ..:namespace prefix = st1 ns = "urn:schemas-microsoft-com:office:smarttags" />Mobile and Fairhope Great Strides Kick-Off Party!  U...
Posted by Cystic Fibrosis Foundation AL & West FL Chapter on Tue, 19 Feb 2008 08:16:00 PST

FDA began investigating the death of a CF patient

YouTube Posts FDA Warning Regarding Colistin Use September 14, 2007 In June, the FDA began investigating the death of a CF patient, which may have been associated with the inhalation of the antibiotic...
Posted by Cystic Fibrosis Foundation AL & West FL Chapter on Wed, 19 Sep 2007 10:04:00 PST

Cystic Fibrosis Foundation Night with the Mobile BayBears

Cystic Fibrosis Foundation Night with the Mobile BayBears Saturday July 21st, 2007 7:05pm Mobile BayBears vs. West Tenn Diamond Jaxx Tickets $8.00 $4.00 of every ticket sold will go to benefit CF!!! F...
Posted by Cystic Fibrosis Foundation AL & West FL Chapter on Tue, 10 Jul 2007 10:22:00 PST

XOXO Fishing Tournament - helping find a cure for CF

http://vids.myspace.com/index.cfm?fuseaction=vids.individual &videoid=2021198549
Posted by Cystic Fibrosis Foundation AL & West FL Chapter on Thu, 24 May 2007 12:15:00 PST

Finding a Cure locally!!

..> ..> Cystic Fibrosis ..> ..>   Check out the newest local video about CF - go to http://www.fox10tv.com/Global/SearchResults.asp?vendor=wss&a mp;qu=cystic+fibrosis and click on ...
Posted by Cystic Fibrosis Foundation AL & West FL Chapter on Mon, 12 Mar 2007 08:58:00 PST

Help support CFF with a 65 Rose Pendant!

  We are excited to announce a special online auction that will take place this Saturday (March 10) on GemsTV to benefit the Cystic Fibrosis Foundation. Just last weekend in Vail, Colo....
Posted by Cystic Fibrosis Foundation AL & West FL Chapter on Thu, 08 Mar 2007 11:01:00 PST