Children with Progeria

Hayley Okines is 10 years old and has Progeria - a rare, fatal genetic condition characterized by an appearance of accelerated aging in children. There are 44 cases of Progeria around the world and only 4 in the UK.
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Hayley
All children with Progeria die of the same heart disease that affects millions of normal aging adults (atherosclerosis), but instead of suffering at 60 or 70 years of age, these children may suffer strokes and heart attacks at 5 or 6 years of age. Remarkably, the intellect of children with Progeria is unaffected, and despite startling physical changes in their young bodies, these extraordinary children are intelligent, funny, and full of life Hayley is certainly all those things and more!
The average lifespan of children with Progeria is about 13 and at present there is no cure.
Hayley has joined with the Kids Choir 2000 to record VOICES OF TOMORROW and all profits from this release are being donated to The Progeria Research Foundation to try to find a cure for progeria so children like Hayley can look forward to long and healthy lives, and realize their hopes and dreams.
Because the disease is so rare, limited funding for research is available because money tends to go into researching diseases that affect more people. Most of the money for research comes from fundraising events like concerts and CD sales.
Watch an educational clip about progeria here.
Download a factsheet here here.
See Hayley on the BBC
There are lots of ways you can help ...
Click HERE to visit the shop
If you have a website, you can link to us, you can tell your friends and of course, you can buy the CD which is available from March 17th 2006.
Find out more about progeria, Hayley and where to buy this recording by visiting
Hayley's website
and
Progeria Research Foundation website
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album price ..
THE KIDS CHOIR 2000 WITH HAYLEY OKINES: Voices Of Tomorrow $7.25
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