Eosinophilic Support profile picture

Eosinophilic Support

eosinophilic

About Me

My 5 year angel of a daughter, Holly, has had health problems on and off since she was just 4 weeks old. It took a long time to get the diagnosis of Eosinophilic Enterocolitis. It is apparently very rare, and I had never heard of this condition, so like most Mums I "Googled" it. I found 4 sites most helpful, and thay are listed in my Blog, 2 from the USA and 2 from the UK. I have another page on here "HELP HOLLY". On this page I also explain in more detail about Holly's full symptoms during the past 5 years. The response to Holly's page has been amazing. The Banner below will take you straight to the Help Holly page:

~Linked To Profile~

I edited my profile with Thomas Myspace Editor V4.4 (www.strikefile.com/myspace)

My Interests

IF YOU WANT TO CONTACT ME AND DO NOT HAVE A MYSPACE ACCOUNT, PLEASE EMAIL ME AT: [email protected] ********************* [Disclaimer] I am not a qualified medical professional and I do not intend to take away from your Doctors/Nurses advice. I am only here to help raise awareness and share Holly's own experience. *********************

I'd like to meet:

I would like to meet other people who know of this condition. This page "EOSINOPHILIC AWARENESS" was born on 1st November! This page is here to help anyone who knows of someone living with an Eosinaphilic Disease. I will try and make the information I have here as clear and as helpful as possible. Any information I get from the internet in other Blogs, will have the source clearly listed under it. I want to do as much as possible to raise awareness, therefore raising hope to others. If I can save one person going through the uncertainly I did regarding this illness, then I will be happy. I'd also like to meet others that can tell me more about this illness, as I still have a lot to learn about it!

Heroes:

Holly...You are my hero, you are my angel, you are Mummy's best friend, you are the person I will do all I can for, whatever it takes. Mummy is often helpless when you are in pain. Mummy is often the baddie when trying to give you medicines. You are too little to realize that I am trying to help, but that I can't explain that to you just yet. Mummy wants to tell you that "it will be ok, and that it won't hurt", But Mummy knows that it will sometimes hurt, and I have to hide my helplessness when I am trying to comfort you. Mummy wants to take all your pain away and make everything better, But Mummy knows she can't. What Mummy can do is cuddle you, and kiss you, and protect you the best she can, and hold you and try my very, very best to do everything in my power to get you through this. Mummy can be your rock and fight for your safety. Mummy can try and talk to as many Doctors and Nurses that will listen (and even the ones that won't). Mummy is your voice, and I will scream at people until they listen because you can't, you are just a little angel, Mummy's little angel. An angel with invisible wings (but mummy can see them). Holly, you have angels all around you, I truly believe that. Children are the most precious little gifts on earth, they are our future and do-not deserve to hurt. I need help to comprehend why this is happening. I get all the help I need looking into Holly's eyes, and listening to her giggle even when she is going through all this. You are Mummy's hero Holly, and I hope to be yours xxx

My Blog

A GREAT online support group:

Please click the link below to see if Parents 2 Parents can offer you some support too.  I found this site so very helpful, as there is nothing like talking to other parents that know EXACTLY wha...
Posted by Eosinophilic Support on Thu, 24 Apr 2008 12:25:00 PST

EOSINOPHILIC DISEASE...What is it?

The following is written by me, Tina.  I gained all this information from a varity of souces, carefuly selected from the Internet.  I wanted to explain this illness as simply as possible, ...
Posted by Eosinophilic Support on Thu, 01 Nov 2007 11:39:00 PST

USA SUPPORT SITES: CURED and APFED excellent websites offering info and support.

The 2 websites I have here I found VERY helpful.  Their advice is supportive, clear and hopeful.  The 2 videos I have on my profile are from CURED which is a CAMPAIGN URGING RESEARCH for EOS...
Posted by Eosinophilic Support on Thu, 01 Nov 2007 11:18:00 PST

UK SUPPORT SITES: The Eosinophilic Disease Society TEDS & FABED.

This page is one of the UK support sites for Eosinophilic Disease.  It is an excellent page, and it is lovely to know this advice is avaliable to people in the UK too.  You can also add...
Posted by Eosinophilic Support on Thu, 01 Nov 2007 11:19:00 PST