rachel

living with my husband enjoying life with our cat wifi and her son george. I am 27 have been with my husband for 9 years. married for 1 on the 26th august 2007. i have many videos on youtube if ya type in thewockos on youtube youll see my vids please check them out comment and rate thanx.recently found out i have a genetic disorder called neurofibromatosis get ya tongue when youve drunk too much lol its a defect with gene 17 or 22 and causes non cancerous tumors to grow through out my body in every place ya can think of it affect every aspect of the central nervous system and cause many problems unfortunately there is no cure but if any of you have any ideas to help raise money to try and find a cure please let me have them. it can be i passed on from a parent or be caused by spontaneous mutation of an egg or sperm just before conception.because of this i have got to have lots of tests at the hospital yearly much fun lol so at the mo im trying to find out what type it is and what extent i have the disorder. about 1/30000 people have type nf1 and 1/50000 people have type nf2 . the different number gene(17&21) for each type it causes lots of complications and very rarely but possible can be bad and cause paralys deafness blindness and much more many people such as myself dont discover they have neurofibromatosis until there mid 20s some even older than that even though its there from conception.signs and symptoms include more than birth marks (cafe au lait spots) lisch nodules coloured dots in the iris of the eye neurofibromas small raised lumps on the body hearing problems learning and behaviour problems tinitus loss of balance and many more. so please help me raise money for this disorder and try and find a cure. give me your ideas for fund raising.YOU CAN HELP TODAY Make a Donation by SMSFantastic opportunity! Donating to your favourite charity couldn't be easier! Registered Charity Number 1078790To Donate £3 to The Neurofibromatosis Association simply text NFA to 84858.*Messages charged at standard rate. You will receive two confirmation messages, charged at £1.50 each. The Neurofibromatosis Association will receive your donation net of charges applied by mobile network operators and a processing fee.If you have any questions regarding this service, please call 0207 549 2222

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