MISS SCARLETT

My name is Scarlett and i have Rett syndrome. I love to go to see bands play, hanging out with my brothers,I like parties, hawaii, guys that fight, Car shows, Motorcycles, I love to eat good food, going to disneyland, taking long drives & Hanging out at my Uncle Alex Gambino's shop. I've spent alot of time in the hospital, once for almost 3 straight months ! I flatlined twice but god knew how much my parents needed me so he kept me here to take care of them. I probebly party more than anyone here....not by choice, i'm just on alot of anti- seizure medication. ***********************************************************A bout Rett Syndrome: Rett Syndrome (RS) is a neurological disorder seen almost exclusively in females. The prevalence of RS in females is approximately one in every 10,000-23,000 individuals and is found in all racial and ethnic groups worldwide. It is known that RS can occur in males but is extremely rare. It is named for Dr. Andreas Rett, an Austrian physician who identified the syndrome in 1966, although it remained unknown in the United States until 1983. Symptoms: RS has its clinical onset in most females between 6-18 months of age. Development to that time appears normal. They then enter a period of regression, losing speech and hand skills they had acquired. Most children develop seizures, repetitive hand movements, irregular breathing and motor-control problems.* A slowing of the rate of head growth also becomes apparent. Correct diagnosis is essential to receiving quality treatment. To learn more about Rett Syndrome please visit: www.RettSyndrome.org *********************************************************** We're gearing up for for the SCARLETT FEVER 2 BENEFIT FOR SCARLETT'S SPECIAL NEEDS AND RETT SYNDROME AWARENESS ! We have made some leaps and bounds with Scarlett over the last year. She has received alot of the therapy she's needed and aside from her siezures is doing pretty good. We are trying so hard to get her up on her feet and out of that wheelchair, Even though it has to be the koolest wheelchair ever built we would rather see her pushing it than sitting in it. This years event is being sponsored in partnership with the ROAD DEVILS and LAST ORIGINALS car clubs. There has been some huge breakthroughs in finding a cure for Rett syndrome. They have actually reversed this horrible syndrome in laboratory mice. We are praying that Scarlett could be a candidate to have this reversed in her someday. We never had more hope for a cure than we do now but until then we need to hold fast and keep her as healthy a we can. SCARLETT FEVER 2 will again have a great line up of bands, There will be an artshow sponsored by ONE SHOT TATTOO with art work from some of the greatest tattoo artist and painters around. A huge raffle and auction with goodies from some of your favorite shops,Rock stars, car and bike parts, and tons of other great stuff. If you were at the first SCARLETT FEVER EVENT you already know how much fun it was. If you missed it, don't be left out. GAMBINO KUSTOMS is getting ready to chop the top on the SCARLETT FEVER 54' chevy. We are building this car to take around to shows to promote Rett syndrome awareness. Some of the folks getting involved in the build are GAMBINO KUSTOMS, SKOTY CHOPS KUSTOMS, MIX AUTO APHOLSTERY & KIRKS WORKS. This car is sure to be a show stopper. We will continue to keep you all updated on the event so stay tuned and keep those comments coming, We read them to Scarlett everyday and she really loves it ! Let's show them all once again that WE TAKE CARE OF OUR OWN. MyGen Profile Generator MyGen Profile Generator