***WHAT AN AWESOME YEAR...WE HOPE TO DO IT AGAIN NEXT YEAR, HELP US FIND A DONATED LOCATION TO MOVE TERROR TOUR. IF YOU KNOW OF A LOCATION PLEASE EMAIL ME.
THANK AGAIN!
UPCOMING EVENTS:
What is Cystic Fibrosis?
Cystic fibrosis (CF) is the most common, fatal hereditary disease in the U.S. CF is a disorder of the cells that line the lungs, small intestines, sweat glands and pancreas. Sticky, thick mucus contributes to the destruction of lung tissue and impedes gas exchange in the lungs. It also prevents nutrient absorption in the small intestines, and blocks pancreatic ducts from releasing digestive enzymes. Approximately 85% of all people with CF cannot properly digest their food without supplemental enzymes.
How Common is CF?
Anywhere from 25,000 to 30,000 American children and adults have CF. One in 3,900 American children is born with CF. Approximately 1,000 new cases are diagnosed each year. Improved diagnostic techniques have resulted in newly identified cases in people of all ages. Ten million Americans are symptomless carriers of the CF gene. At present, only half of those with CF survive to age 35.
How Do You Know if You or Your Child Has CF?
If you or your child has most of the symptoms indicated, you should ask your doctor about having a "sweat test." The sweat chloride test is a reliable tool for diagnosing cystic fibrosis. This simple, painless test measures the amount of salt in the sweat. A high level of salt indicates that a person has CF. Recently developed genetic techniques using DNA analysis can be definitive when positive, but because hundreds of alleles can cause CF, no single genetic test works in all cases.
What Can You Do If You Have CF?
Contact your physician immediately and follow the medical advice you are given. Become educated about the disease. Attend support groups, conferences, educational meetings, and read newsletters that are available through CFRI. Don’t become discouraged. Many new advances in research provide hope for all who have this disease. Scientists have discovered the gene that causes CF and gene therapy research is moving forward. While there is no cure for CF at present, many recent developments in medicine such as a new drug that reduces infections by breaking up thick mucus accumulations make it easier for people to live their lives with this disease.
What Does Terror Tour Do About CF?
Terror Tour is a non profit organization that holds an annual haunted house, presented by Camikaze Cruizer Customs, to raise donations to go towards Cystic Fibrosis research and education.
How Can You Assist Terror Tours?
Volunteer to help us raise funds for Cystic Fibrosis research and educational programs. Participate in our major fundraising event, which is the annual Terror Tour Haunted House. Contribute funds to support the significant research that is taking place in universities and research centers throughout the United States.
