Please Pray for my SBS SURVIVOR- BE STRONG EVELYNN profile picture

Please Pray for my SBS SURVIVOR- BE STRONG EVELYNN

Everybody said you gotta give it up U can't keep that child its just too tough At 17 Well she cried

About Me


My name is Alicia.
I am absolutely 100% DEVOTED to my darling daughter Evelynn Marie
And Im PRO LIFE whether you agree with it or not!!!!
April 5th 2007, I brought a little, beautiful angel into the world at 10:34 pm. Evelynn was born at 9 pounds, zero ounces, 20 inches long, head 14 1/2. Her cheeks are huge and adorable. She is the most AMAZING baby girl in the world and I adore her so much. Shes not too fussy of a baby and is actually as patient as a baby can be. She was perfectly healthy and I thank god I was able to nurture her in my womb well. Carrying her in my belly for 40 weeks was the most amazing experience of my life. No moment means more to me then the moment they placed her on my chest right after I delivered her. I love you Evelynn.
I'm the VERY PROUD YOUNG mother to a little hero, Evelynn Marie. June 24th 2007 my world stopped when my daughter Evelynn was put into the Pediatric ICU by the hands of her "father". For 12 days my daughter struggled for her life, but Evelynn wasn't ready to go home to God.
My daughter was 10 weeks old when she nearly lost her life and she fought very hard. Her strength is admirable. She put up one helluva fight in the PICU but unfortunately her fight has just begun.
After elbowing my baby girl off of our bed, Joshua Cohen proceeded to kick Evelynn in the head 5 times. He then shook her violently for 30 seconds
He admitted all of this in matter of factly.
Evelynn will face many obstacles in the years to come as she faces the challenges of neurological damage and nerve damage in her eyes.
Evelynn must take 2 seizure medications twice a day and even still she has many seizures DAILY. At 16 months old now, Evelynn has the mentality of a 2-3 month old. She cannot sit up unsupported, crawl, or stand, she cant even hold her sippy cup.
She has microcephalus
Low muscle tone and limited use of her left side
Due to her hydrocephalus, at 5 months old she needed two surgeries. The second surgery was to put two VP shunts in her head so that the fluid may continuously drain into her belly where it is absorbed
Without the shunts, her brain would further shrink fron the cerebral fluid and eventually cause death.
Evelynn is also legally blind. The whole pathway from her eyes to her brain is damaged - there is no substitute.
Even still, Evelynn is one of the lucky few to survive this terrible EPIDEMIC known as Shaken Baby Syndrome.
I can't emphasize enough the importance of walking away when your fustrated with a baby. My daughter nearly lost her life but not all victims of SBS and child abuse are survivors. NEVER SHAKE OR ABUSE A BABY! WALK AWAY!
Child Abuse & Shaken Baby/Impact Syndrome IS recognizable and PREVENTABLE.Education is the first and most important step in preventing SBS. Knowing what to do when a baby is inconsolable and the learning signs and symptoms will save your child's life.
50% of offenders are the biological parents, predominatly the father who tends to be in his early 20's.
17% of offenders are mother's boyfriends
17% also takes account for non-relatives - Could be your BEST FRIEND!
6% Are Step Parents
10% of offenders are other
If your child appears lethargic, is irritable, has a bulging fontanelle (Bulging soft spot), has seizures, is vomiting, or having trouble breathing, these may be signs of Shaken Baby Syndrome
Dont ever assume the person who is watching your baby "would never hurt your child". Nobody knows what they are capable of until they've ALLOWED themselves to reach the point of "losing it". Be cautious of bruises and ALWAYS question the person whose been watching your baby - Nomatter who they are!
If you suspect a child is being abused please use these telephone numbers and promptly report it - It may save the child's LIFE! It should never hurt to be a child.
To Report Child Abuse or Maltreatment in New York State Call: New York State Child Abuse and Maltreatment Reporting Center (800) 342-3720Child Abuse Support and Resource Centers: Prevent Child Abuse New York Parent Helpline 24 hrs -7 days/wk (800) 342-7472Shaken Baby Syndrome Prevention Plus (800) 858-5222National Information, Support, and Referral Service on Shaken Baby Syndrome (888) 273-0071 Blue ribbons for child abuse prevention
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My Interests



I'd like to meet:

All the Angels watching over my sweet baby girl!
www.evelynnmariebiondo.com
..
Make an on-line slide show at www.OneTrueMedia.com

Music:

Andrea Bocelli!

Movies:

Pearl Harbor, Sands of Iwo Jima, FULL METAL JACKET,TOP GUN,Black Hawk Down, Cinderella man..uh..
Your Birthdate: September 30
You have the type of personality that people either love or hate.
You're opinionated, dramatic, intense, and very outspoken.
And some people can't get enough of you - they're totally addicted.
Others, well, they wish you were a little more reserved.

Your strength: Your flair

Your weakness: If you think it, you say it

Your power color: Scarlet red

Your power symbol: Inverted triangle

Your power month: March What Does Your Birth Date Mean?

Television:

News 12,Fox news, bringing home baby, a baby story,STEVE WILKOS

Books:

What to expect when your Expecting, Silenced Angels

Heroes:

My little angel who is yet to be born is my hero because of her strength The greatest generation
my grandpa US Army Sergeant MP Angelo Biondo
SGT Henry Varca RIP
C-130 pilots ;) (Inside thing)
C/1ST LT Brian M Mooney...god I miss you Brian RIP ..Forever missed and remembered...Brian buddy we miss you. The hardest thing to do is give your final salute to a commander, a comrade, a friend, a brother...RIP, Sir!

My Blog

Evelynn Update July 2nd

Well, today Evelynn saw the opthamologist. Dr. Reynolds just checked the back of her eyes shes happy to report that there are no thin spots on her retina which can happen after an injury. She also gav...
Posted by Please Pray for my SBS SURVIVOR- BE STRONG EVELYNN on Wed, 02 Jul 2008 02:38:00 PST

Evelynn Update JUne 23rd

Hey guys. Baby girl is doing fine....not much new going on medically which is always good.=)Yesterday was the FIRST annual Evelynntopia....and it ROCKED! (LITERALLY) It was a great turn out and the we...
Posted by Please Pray for my SBS SURVIVOR- BE STRONG EVELYNN on Tue, 24 Jun 2008 04:14:00 PST

Support Evelynn Shaken Baby Syndrome awareness

Saturday June 14, 2008 at the Soundbeach Inn at 7pm - Benefit Concert for Baby Evelynn Sunday June 22nd at Southaven Park -  11am- 6pm -Evelynntopia - New Yorkers Rally agains...
Posted by Please Pray for my SBS SURVIVOR- BE STRONG EVELYNN on Tue, 13 May 2008 03:02:00 PST

Child Abuse/ Shaken baby Syndrome Garden

The works are underway to build a Child abuse/ Shaken baby syndrome garden in the Mastic/mastic beach/ shirley area. Were going to plant blue flowers in the shape a ribbon so we have a blue ribbon of ...
Posted by Please Pray for my SBS SURVIVOR- BE STRONG EVELYNN on Sun, 27 Apr 2008 01:00:00 PST

Evelynn Update - Not such a great day 3-20-08

Today I brought Evelynn to the ophthalmologist. Dr. Reynolds tried in the nicest way to be blunt.... Evelynn’s vision will not recover. Its been about 9 or so months since Evelynn has been shake...
Posted by Please Pray for my SBS SURVIVOR- BE STRONG EVELYNN on Thu, 20 Mar 2008 12:54:00 PST

Answer to a very famous question

Many times ive been asked how I can be so strong through all ive had to bear witness to with my daughter. I held my daughter as she stopped breathing many times, I watched as she seized constantly, I ...
Posted by Please Pray for my SBS SURVIVOR- BE STRONG EVELYNN on Thu, 27 Dec 2007 02:36:00 PST

Why I am so strong

I am sooo wonderfully happy to hear that she is developing. You guys are never far from my thoughts. I know how your heart must sing to be able to hold her and watch her grow. Be patient, look how wel...
Posted by Please Pray for my SBS SURVIVOR- BE STRONG EVELYNN on Thu, 13 Dec 2007 05:38:00 PST

Evelynn Update 12-10

Evelynn had a bit of a growth spurt the past 2 weeks. I had to go through all her clothes - she doesnt fit in 6-9 months and some 9 months! Evelynn is starting to gaze at my face like she used to bef...
Posted by Please Pray for my SBS SURVIVOR- BE STRONG EVELYNN on Mon, 10 Dec 2007 02:25:00 PST

Why

why are babies still being shaken?Why are mother's hearts breaking constantly?How could you look an innocent child in the eyes and destroy their lives?How could you live with the guilt of ending an in...
Posted by Please Pray for my SBS SURVIVOR- BE STRONG EVELYNN on Fri, 07 Dec 2007 01:14:00 PST

Evelynn Update Nov 30th

So, Evelynn's teeth will start cutting soon im sure. She's got two coming in the bottom at the same time! She is just so so long and eating 1st and 2nd stage foods much more often! Her therapies are g...
Posted by Please Pray for my SBS SURVIVOR- BE STRONG EVELYNN on Fri, 30 Nov 2007 02:20:00 PST