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For those of you who don't know the whole story, here it is... Blu was born at 29 weeks, gestation. He weighed 2.56 lbs. and was 14 inches long. He did not breath for 43 minutes after his birth... The decision was painfully made that Blu would be baptized and then the CPR would stop. While the priest was preparing to baptize Blu he began to breath. I'd like to imagine as if God breathed life into him. The next few days were very confusing, they say a baby can go 20 miniutes usually before they are brain dead, my baby went more that twice that long. We didnt know what to expect. On the 3rd day of his life he was doing well, well enough they were going to remove his breathing tube. It failed miserably and Blu nearly died again flat lining on the table. They were able to stablize him again after a few miniutes but the next few hours things began to get worse. He was dying and they couldnt figure it out. Finally they found Blu's tiny little lung had colapsed. He was quickly treated with a chest tube and recovered from the ordeal. When I thought to myself 'how could this get any worse'?... I find out how. Blu was diagnosed with bleeding in the ventricals of his brain. Which can cause severe tissue damage. It also made the next thing to come that much worse. Blu was diagnosed with an "AP window", a hole in his heart that would require open heart surgery. The coplication of the two problems is you can not do open heart bipass when there are bleeds present because the heperain used during the surgery would cause the brain to bleed out and he would die. But without the surgery, he would die. So Blu had to make it through 8 weeks of heart failure to safely have his surgery. That was a nightmare like I've never experience before. I should have known he would make it, I mean he fought so hard to stay in this world. It would take more than the impossibe to take him out. He spent the next few months getting better before he could come home. He couldn't swallow and was later diagnosed having a deformed jaw which he will eventually need surgery to correct. So Blu does not eat by mouth and needed a g-tube placed so he could be fed. Because he couldn't swallow he continually choked all the time needing to be suctioned probably 30 times a day. It was that way for the next several months. We were in and out of the hospital.
The most recent thing Blu had done was a tracheostomy. This has allowed Blu to finally be able to move and play without choking. The difference has been night and day for him. It will take along time for his lungs to recover from the trauma done to them. He is currently on a ventilator to help him breath. I don't know what my son's future holds for him. I'd be lying to say it doesn't scare me to death. He is at a very high risk to have multiple disabilities due to his brain injury. Despite it all he knows no different he just is who he is... and he is happy. He inspires me to wake up every day and try my very best to do everthing I can to help him achieve all that he will be in this life. If you are ever fortunate enough to meet him he will change you. He has changed me. He has taught me not to take things for granted, things as simple breathing.