Confessions Of A Disease! - ProfilesArchive

About Me

I'm not retarded or mentally challenged. There, now that that stereotype is out of the way, only 9,999 more to go ------------------------------------------------------------ ------------------------------- I have a physical illness called, Muscular Dystrophy. It's a disease that slowly eats away your muscles over time. It's not contagious and theres no cure. Millions of people in this country alone have it, yet it affects each individual differently. For me, theres 3 main, obvious physical affects. The wheelchair, the weakened facial expressions [I'm a great eye roller though lol], and the respirator. I really have no physical pain, its more mental and emotional pain BUT thats only when and how I choose to allow those feelings to exist. ------------------------------------------------------------ --- In the last few years, I've been told by various people I should tell my story, get it out there or even write a book. I'm told my personality and life experiences conflicts with someone who has a physical illness. So rather than feeling overwhelmed and writing a whole book, I thought I would start off here and mainly in Blogs [READ THE BLOGS FOR MORE DETAILED INFORMATION]. And then maybe eventually I can put it all in a book. I'm also hoping that those who frequent this page will give me feedback, questions, and constructive criticism to help make this process more interesting and successful ------------------------------------------------------------ ------------------------------------------------------------ -- And as this is mostly meant for informative purposes, I will be true to myself and keep my personality in it. Meaning honesty, humor, sarcasm and no sugar coating B.S. will all be involved. I've always said Im not just a disease, surely its a part of my life, especially at this point but its not all of who I am. I usually try and distract everything and everyone away from my illness and its affects. So this is a big step for me. I have various reasons for sharing so much of me. To help family and friends of other Ill-stricken people. To inform Medical Scientists, Researchers, Doctors, Therapists, Nurses, Caregivers, Teachers, Professors and Alternative Medicine Enthusiasts. To help others in similar situations. ------------------------------------------------------------ --------------------- And to break a few stereotypes and preconceived notions that you healthier, nonchalant people may have. ------------------------------------------------------- Here's some visuals of the Progression of the Disease

My Interests

NFL Football [Go Packers], Concerts, Writing, Crown Royal Whiskey!, Ice Skating shows, Plays, Flirting, Provoking thoughts and getting my thoughts provoked, Starbucks Iced Chai Tea lattes!, ... Being Mexican and Italian, Being Honest, Semi-Intelligent, Complex, Expressive, Stubborn, Sensitive, Opinionated, Open minded, Intrigued by the Ins and Outs of people, Being a Therapist to Friends, Being Feisty, Mental Stimulation, Laughing A lot, Figuring Out what Cheetos are made of

I'd like to meet:

YOU, the person that needs your mind opened and a little more substance in your life. ... ------------------------------------------------------------ ----And if you want to flirt with me, hit on me, or get to know me personally other than just the aspects of my illness, please feel free to message me. Just please DO NOT be married, a druggie, under 28 years old, or so unaware of life that you think Al Gore is still our Vice President. Yes, even someone like me has standards.

My Top 20 Real Friends
I have 304 Cool friends.

Prima Monica

Pete

Karey

Shelley

Christian

Mandi

Vee

Kristina

Bernadette

Roni

Kelly

Tamar - T.P.S

Pacien

Carlos

Gloria

Mikki

Dave

Jennifer

Joseph

Jason

View All of My Friends

Movies:

Whose life is it anyways, Steel Magnolias, Seven, American Beauty, Crash, Sixteen Candles, Frida, American Pie, Madonna's Truth or Dare

Television:

Real time with Bill Maher, Grey's Anatomy, Kathy Griffin Show, Sex and the city, Oprah Winfrey show, NFL and MTV Channels

Books:

Maya Angelou's collection of Poetry, Brett Favre's autobiography

Heroes:

All MDA Volunteers

My Blog

The "God" Factor of a Disease

Strangely, throughout my life I often get asked about my Faith because of my disease. It seems people are intrigued whether I believe or not with all that I endure with my physical illness and all of ...
Posted by Confessions Of A Disease! on Sun, 13 Apr 2008 12:56:00 PST

Ask the Disease (or Me) Anything!!

I’ve been talking to this boy. (And when I say boy, I mean a grown, adult man. I refer to all males as "boys," get over it.) He brought something to my attention r...
Posted by Confessions Of A Disease! on Fri, 28 Mar 2008 12:26:00 PST

Meeting me for the first time

I am pretty open, honest and detailed with my illness and how it affects my existence mentally, emotionally and especially physically. I can explain in every way imaginable wi...
Posted by Confessions Of A Disease! on Sat, 22 Mar 2008 03:04:00 PST

The "F" You of a Disease

Warning: It’s LONG! You can just scroll down and pick a catergory that interests you and just read that part. OR you can not be lazy and read the whole thing. I’ll be replying to comments ...
Posted by Confessions Of A Disease! on Fri, 14 Mar 2008 11:30:00 PST

The Sex Factor of a Disease

Warning: If you're under 18, I don't think you're suppose to read this go ask your parents. If you're a family member, you might want to exit now to avoid awkwardness between us a...
Posted by Confessions Of A Disease! on Fri, 09 Nov 2007 07:41:00 PST

The Suicide of a Disease

When will I die? This is one of the most frequent questions I get asked at least once a day. In person and on the lovely World Wide Web. A valid question, for someone in my situation. I was tol...
Posted by Confessions Of A Disease! on Thu, 21 Jun 2007 03:24:00 PST

The God Factor of a Disease

I'm NOT a Stripper!

It astonishes me that people might think it's actually true. Over the weekend I got two messages. One to visit a ''go-go dancer'' club here in L.A. and see if I'd like to join. And the other from a st...
Posted by Confessions Of A Disease! on Mon, 08 May 2006 03:11:00 PST

FAQs of a Disease

These are some of the most Frequently Asked Questions I [or someone I'm with when out in public or around newcomers] get asked pertaining to my illness and its affects. And my Answers. Reading...
Posted by Confessions Of A Disease! on Sat, 15 Apr 2006 07:20:00 PST

Progressions of a Disease

Progressions of a Disease I was born with Muscular Dystrophy. There are 40 different types of MD. I have one of the rarest types called, Facioscapulohumeral [FSH], say that three times f...
Posted by Confessions Of A Disease! on Wed, 29 Mar 2006 03:33:00 PST