Lorraine - ProfilesArchive

About Me

CHECK OUT MY GROUPS - HELP FIGHT SPINAL MUSCULAR ATROPHY!!!
Every day we fight a monster. It's name is Spinal Muscular Atrophy. What does this monster do? It kills children. It is a very real monster and I have never been so scared of anything my entire life.
My daughter Zoe was diagnosed at 14 months old with SMA. She cannot walk, stand, or crawl. Although confined to a wheelchair, not much stops this little girl. Unfortunately a cold can knock her down quickly. A cold can kill a child with SMA.
Spinal Muscular Atrophy is a genetic neuromuscular disease that affects voluntary muscle control. This monster also tears away at its victims respiratory systems.
Each time we lose another battle with SMA, I look at my child. Her bright blue eyes. Her loving smile. I hear her contagious laugh and the absolutely amazing things that come out of her mouth. And I say, "NOT MY CHILD. YOU WILL NOT TAKE MY CHILD AWAY FROM ME." I simply won't allow it.
Want to help us fight this awful monster? Go to www.fsma.org or www.smasupport.com.

My Interests

I spent seven years as an active duty Marine before settling down to become a wife and mommy. I tried the corporate world for a bit, but I am now a CNA working at home for Zoe!

I'd like to meet:

Music:

Movies:

MyHeritage : Celebrity Collage - Geneology

Books:

Heroes:

My Blog

Bands that Im digging

Thought I’d share a small list of bands that I am really into right now that maybe you might enjoy. 1. Deepfield (of course they’re number one) - Archetypes and Repetition is se...
Posted by Lorraine on Sun, 06 Apr 2008 03:50:00 PST

Deployment Song of Choice

"Pieces" by RedI’m here againA thousand miles away from you A broken mess, just scattered pieces of who I amI tried so hardThought I could do this on my own I’ve lost so much along the way...
Posted by Lorraine on Sun, 06 Apr 2008 12:44:00 PST

"Boey" Byers

This morning I opened a bulletin here on myspace. It was a total random act because I haven't been reading bulletins since I arrived in El Paso. There was a sentence about how although Boe...
Posted by Lorraine on Mon, 31 Dec 2007 04:37:00 PST

’Tis the Season

Zoe came home from school last week and told me that they had to write their letters to Santa. She didn't seem too thrilled, so I probed further by asking if it was exciting. She said no b...
Posted by Lorraine on Tue, 11 Dec 2007 03:56:00 PST

Snow day

The snow forced us to stay inside today. Couldn't take Zoe out to play in it because I was afraid her chair would get stuck and I'd have to dig it out myself. I did shovel the damn drivewa...
Posted by Lorraine on Sun, 09 Dec 2007 09:28:00 PST

uninspired

I can't seem to get the umph I need to get much done. The dishes are sitting there begging to be done. Not many and they're rinsed off, but they're still sitting there and that usually nev...
Posted by Lorraine on Sat, 08 Dec 2007 10:41:00 PST

The tooth fairy and other major events

Zoe lost her first tooth last night after waiting for three weeks for it to get loose enough. Mark missed this milestone by a day. He missed her excitement and anticipation for the tooth f...
Posted by Lorraine on Wed, 05 Dec 2007 08:29:00 PST

Damn Lonestar but thank GAWD for Ellen

So we made it through the first day and more importantly the first night. Zoe seems to have her breakdown moments, but luckily she had school to distract her today. She seemed happy enough...
Posted by Lorraine on Mon, 03 Dec 2007 03:14:00 PST

Goodbye Hugs and Tears

And so it begins. Crap. The day sorta snuck up on me. I knew it was coming but somehow I am never ready for it. I went to sleep last night knowing it would be the last time I'd...
Posted by Lorraine on Sun, 02 Dec 2007 11:09:00 PST

Packed bags

I'm going to try to blog through this deployment. Maybe it will help me. Maybe it will help someone reading it to understand what a real impact this war is having on people. Mark is...
Posted by Lorraine on Wed, 28 Nov 2007 04:55:00 PST