Heather profile picture

Heather

poetriri

About Me

I am the girl that everyone always says "there's just something about you" to. I am married to a super genius that is sexy and awesome. I have one son who is the light of my life. in 1998 I was dx with MS. I am currently at home but spent an amazing eleven years trying to save the world. I worked with domestic violence victims. I use a walker to get around home and a wheelchair or scooter for the long trips. (grocery store, target, museums, school)I also have a few other annoying symptoms. For me, I am trying to stay positive and have recently learned the law of attraction. Most of you might have heard about that from The Secret. I was lucky enough to have 2 doses of Tysabri (MS drug that is 2x's as effective as the others) last year and went from my walker back to my cane in just 2 months! I testified to the FDA asking them to bring it back for MS patients. check out my videos for the testimony. Tysabri was re-released by the FDA. I am proud to have been a small part in getting it back to the patients that need it! Unfortunately, I have had horrible adverse reactions from Tysabri this time around. I will not be able to take it because I have developed Neutralizing AntiBodies. I still spend most of my free time reaching out and telling people about Tysabri and advocating for its availabilty and coverage by insurances. My group MSpatientsforchoice.org works hard to keep patients informed and their views heard! Please dont hesitate to ask me questions or post comments. I truly believe we are in this together. Also, visit my website: www.Brazenalternatives.com to purchase one of my cool t-shirts.
CLICK HERE TO GET A PRE-MADE LAYOUT
You Are Rum
You're the life of the party, and a total flirt You are also pretty picky about what you drink Only the finest labels and best mixed cocktails will do Except if you're dieting - then it's Diet Coke and Bicardi all the way What alcoholic drink are you?
Meatball Pizza
Unusual and uncompromising.
You're usually the first to discover a new trend.
You appreciate a good meal and good company.
You're an interesting blend of traditional and modern. What's Your Pizza Personality?
Your Stripper Song Is
Closer by Nine Inch Nails
"You let me violate you, you let me desecrate you
You let me penetrate you, you let me complicate you
Help me I broke apart my insides, help me I?ve got no
Soul to tell"
When you dance, it's a little scary - and a lot sexy. What Song Should You Strip To?

My Interests

I am a movie fanatic. I love music of most genres. reading, writing, pottery

I'd like to meet:

Fun, honest humans...other MSers...Nelly...Jenna Jameson...L.L. and anyone else that happens along...lol ;0)Get this widget!

Music:

My all time fav is rap/hip hop. I am old school but love some of the new styles too. I can enjoy just about any type of music. Somethings you will find in my collection: Eazy E, Johnny Cash, Nirvana, Nelly, Elton John, RKelly, Zydekool, lots of 80's stuff, some 50's & 60's stuff.

N.W.A. - Straight Outta Compton
Provided by ..

Movies:

Too many to mention! Here's a few: Wizard of Oz, Willy Wonka, Any John Hughes movie, Any Jenna movie, Do the Right Thing, Say Anything, Court Jester, Princess Bride, all of the Halloween movies...sans III, Don't Be a Menace in South Central...etc. Napoleon Dynamite, Crash, Hollywood Shuffle, American Beauty, Schindler's List, Young Frankenstein.....and on...and on...and on.

Television:

NIP/TUCK ADDICT, Desperate Housewives, Bernie Mac, SNL and a whole bunch of reality junk food for my brain

Books:

The Secret, Animal Farm, Great Gatsby, The Shining, Illuminata, Da Vinci Code

Heroes:

Maya Angelou, Mother Theodore Guerin (Indiana's first and only saint), My Grandma, Jenna Jameson, Marilyn Monroe

My Blog

LOOK!!

  Just a gift for Thursday morning.       ok..Ya know how you are sometimes minding your own business...driving somewhere...or in the grocery store and suddenly you notice the song...
Posted by Heather on Thu, 20 Mar 2008 12:07:00 PST

Gone baby gone...

But...not forgotten! :0) I have been so busy (good thing) lately that I have thought of many blogs and have not written any!  RECAP: HEALTH: good.  MRI in January was less lesions to no chan...
Posted by Heather on Tue, 18 Mar 2008 11:13:00 PST

really? 2008? you’re sure?

So, Where did the time go? I know...everyone always says that ;0) I have been doing ok.  Health is stable...so that equals good in the world of chronic illness.  Holidays were good. Ezra is...
Posted by Heather on Sat, 05 Jan 2008 06:26:00 PST

hallowbloggies

..> Wednesday, October 31, 2007  Halloween "Halloween serves to remind us that our shadow side of consciousness is always seeking to be embraced, released and healed. When we laugh at the "scary...
Posted by Heather on Wed, 31 Oct 2007 09:34:00 PST

re-connecting to old friends

Isnt cool to find someone you havnt talked to in a long time?  thoughts, feelings, sights, smells, songs  all come flooding back. I love it....there is nothing like it!!!
Posted by Heather on Thu, 18 Oct 2007 09:24:00 PST

The words we’ve been waiting to hear

Preclinical Study Published in Nature Medicine Shows Anti-LINGO-1 Antibody Promotes Remyelination BUSINESS WIRE Posted: 2007-09-30 13:14:50 CAMBRIDGE, Mass.--(BUSINESS WIRE)----Biogen Idec  (...
Posted by Heather on Mon, 01 Oct 2007 03:44:00 PST

Stevie Wonder

Ah...so the Stevie Wonder concert was as excellent as expected.  The venue is outdoors and they advertised rain or shine.  But after sitting in our ponchos in the rain for 3 hours, Stevie hi...
Posted by Heather on Mon, 17 Sep 2007 03:13:00 PST

where was I

We all have a 'where were you' story.  Mine is not anything unusual except I was not working this day.  I had spent the nite with my mom at the hospital.  She had complications from a b...
Posted by Heather on Tue, 11 Sep 2007 11:35:00 PST

Perks to being a gimp :0)

 My sister and I were planning to spend big bucks to buy tickets to the sold out Stevie Wonder concert in Chicago.  Well, I went to the ticketmaster website to check on the accessibility of ...
Posted by Heather on Tue, 28 Aug 2007 08:16:00 PST

update

so, things are going pretty well. Ezra is getting ready to start school next week. i cant believe he will be gone 5 half days ;0( as for me...I am feeling pretty good. the best bet eating is still go...
Posted by Heather on Fri, 24 Aug 2007 06:28:00 PST