♥kauigirl♥ profile picture

♥kauigirl♥

the juice was worth the squeeze!!!

About Me

There's not much to tell. I'm still alive, I have my family and my friends who love me and I love to be around them. What more could a girl ask for?
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My Interests

Music:

LOVE MUSIC!! I love all types and so does my daughter. My husband is a DJ so we listen to anything and everything!

Movies:

Chick Flicks!!

Television:

I've been really into everything lately. All I have to say is Thank God for the DVR, man, without that I would NOT watch anything. I usually watch whatever I can when my beautiful little girl is asleep during her naptime.

Books:

About the only things I have time to read have to do with researching SMA. I devote a good hour of my day reading the Management book I have from John R. Bach, M.D., "Management of Patiens with Neuromuscular Disorders".

Heroes:

I have two heroes in my life. First and foremost, my beautiful daughter Ava-Isabel. She has a genetic disorder called Spinal Muscular Atrophy (SMA), Type I, which is the most severe form of the disorder. She amazes me everyday at how much she can do and how well she understands life. You wanna know what life is like? Ask my daughter, she'll tell you... My second hero would definitely have to be my husband. He has really stepped up to the plate and has become our pillar of strength. If it weren't for his hard work and willingness to do anything and everything we would probably have nothing...

My Blog

Going CRA-ZAY!!!!

There is never enough time in a day to take care of everything you need to.  Why does everything always require time and $$$?!!?!  Just a thought for the day.......
Posted by ♥kauigirl♥ on Mon, 02 Oct 2006 12:07:00 PST