Central Illinois Fragile X Resource Group

From the FRAXA Reserach FoundationFrom the National Fragile X FoundationFRAXA PSAThe Jake Porter Story... Jake Porter is 17, but he can't read, can barely scrawl his first name and often mixes up the letters at that. So how come we're all learning something from him? In three years on the Northwest High football team, in McDermott, Ohio, Jake had never run with the ball. Or made a tackle. He'd barely ever stepped on the field. That's about right for a kid with chromosomal fragile X syndrome, a disorder that is a common cause of mental retardation. But every day after school Jake, who attends special-ed classes, races to Northwest team practices: football, basketball, track. Never plays, but seldom misses one. That's why it seemed crazy when, with five seconds left in a recent game that Northwest was losing 42-0, Jake trotted out to the huddle. The plan was for him to get the handoff and take a knee. Northwest's coach and Jake's best friend, Dave Frantz, called a timeout to talk about it with the opposing coach, Waverly's Derek Dewitt. Fans could see there was a disagreement. Dewitt was shaking his head and waving his arms. After a ref stepped in, play resumed and Jake got the ball. He started to genuflect, as he'd practiced all week. Teammates stopped him and told him to run, but Jake started going in the wrong direction. The back judge rerouted him toward the line of scrimmage. Suddenly, the Waverly defense parted like peasants for the king and urged him to go on his grinning sprint to the end zone. Imagine having 21 teammates on the field. In the stands mothers cried and fathers roared. Players on both sidelines held their helmets to the sky and whooped. In the red-cheeked glee afterward, Jake's mom, Liz, a single parent and a waitress at a coffee shop, ran up to the 295-pound Dewitt to thank him. But she was so emotional, no words would come. Turns out that before the play Dewitt had called his defense over and said, "They're going to give the ball to number 45. Do not touch him! Open up a hole and let him score! Understand?"