RSD(S)-CRPS Advisory*rsdcrpsfire* profile picture

RSD(S)-CRPS Advisory*rsdcrpsfire*

I am here for Friends and Networking

About Me

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While this chat site is available 24 hours/day, the main meeting times are from 5:00PM - 7:00PM EST & from 10:00PM - 11:00PM EST.
It is important that we all have a home to be apart of. While many of us are online often as a diversion to our pain, making new friends and trying to find others like us who experience chronic pain, the owner of RSD Chat has done a wonderful thing in providing us with this online realm to meet, gather and discuss. Instead of us becoming spread out in the world, we can come together in a single place. A single online home! I hope to meet each of you there!
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Reflex Sympathetic Dystrophy syndrome, or RSDS, also known as, Complex Regional Pain Syndrome, CRPS, is an often debilitating disease that involves a disturbance in the sympathetic nervous system which is the network of nerves located alongside the spinal cord and controls certain bodily functions, such as opening and closing blood vessels or sweat glands. The prognosis for CRPS varies from person to person. Spontaneous remission occurs in some individuals. Others can have unremitting pain and crippling, irreversible changes in spite of treatment. RSD/CRPS is a neurological (rather than psychological) disorder, and is likely to be a disorder of the central (in addition to the peripheral) nervous system. Depression often becomes secondary to the constant moderate to severe pain, fire, burning, and emotional damage as it becomes harder and harder to survive each new day. There is no known cure to date.
I was diagnosed with Reflex Sympathetic Dystrophy Syndrome(RSDS)/Complex Regional Pain Syndrome(CRPS) in 2003, including diagnosis' of Fibromyalgia, Chronic Fatigue Syndrome, Peripheral Neuropathy, Osteopenia, Arthritis, Tendenitis, Plantar Fascia, numerous others, including Major Depressive Disorder, Bipolar 2 Disorder. Dysthemic Disorder, Generalized Anxiety Disorder, Social Anxiety Disorder, Post Traumatic Stress Disorder atleast 2 years post injury and several others, as well. I currently have a spinal cord stimulator implant. I have been well taken care of by Sacramento Pain Clinic, but have deteriorated at the hands of treatement authorization delays and denials by Royal and SunAlliance insurence. I fear I've been lost in a pile of my own paperwork at Mastagni Law firms in Sacramento since not even a single sanction had been filed on my behalf against Royal and SunAlliance. Having taken 2.5 years for a series of 3 Lumbar Sympathetic Nerve blocks finally authorized under appeal in June 2006. Two years and five months to be exact! Can you imagine? I'm sure some of you can. Needless to say, sooner would have changed my life. Perhaps even saved it.
Update- By June of 2007, I've also been diagnosed with Degenerative Disk Disease and Arthritis around my spine.
I'm 38, a mom of 2 daughters, 19 and 18 and 1 son, 10. I have belonged to my husband nearly 21 years and wear his collar. Turian steel locked around my neck. We will celebrate our 20th wedding anniversary this coming august. We share a 1 year old grandson. The 4th light of our lives. Our children being the first 3. I spend my days and many nights researching, compiling, writing and publishing. It is my passion to promote awareness and understanding by providing useful information and resources as it relates to this debilitating disease. I am grateful to all those who have dedicated their time and resources in promoting RSD/CRPS awareness. This disease is still not known to the majority. Not nearly enough people know about it. And we need them to know! It is very important to me that I do all that I can to offer support and information to sufferers as well as the general population. ~smiles.
My MySpace is a combination of all of my life in it's entirety, from Living with RSD/CRPS, Authoring, Poetry, to Consensual Slavery, Master/slave Dynamic, Gorean Lifestyle and Philosophy, Politics, World Philosophy and more! I'm very diverse in all that I am.
I'm currently enrolled at OSC in Rancho Cordova, CA. I'll have my Dipolma in Corporate Publishing soon! My school has been wonderful to me. Absolutely wonderful! I will make them proud! Their patience and understanding is all that I could hope for and receive. Bill, Lily, Lonnie, Gary, Kathleen, Juanita, Laurie, Kim, Thank you!
We will be united by a single common denominator... And that is... Pain! ~twinklev
If one day you feel like crying.... call me. I don't promise that I will make you laugh, but i can cry with you. If one day you want to run away-- dont be afraid to call me. I dont promise to ask you to stop.....but I can run with you. If one day you dont want to listen to anyone.....call me. I promise to be there for you but also promise to remain quiet. But one day if you call......and there is no answer.....come fast to see me. Perhaps I need you. ~unknown
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"He is Master and I am slave.
He is owner and I am owned.
He is to be pleased and I am to please.
Why is this?
Because he is Master and I am slave".
~Explorers of Gor by John Norman~
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I am an ECV LSD (Lord Sholto Douglas)
Chapter 3 Widder...
...And the Founder of Widders Web @
www.WiddersWeb.com And www.Widders-Web.com
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My Master and I celebrate our 19th Wedding Anniversary at a cabin by the lake, Aug 2006
Salacious say- "Man with little mug, never be Clamper" ~winks playfully
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Only one who devotes himself to a cause with his whole strength and soul can be a true master.
For this reason mastery demands all of a person. ~Albert Einstein
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Please help me support Fight RSD
http://www.causes.com/myspace/cause_memberships/re...


Come join my cause: Fight RSD !


Please help me support Fight RSD !

In an ongoing effort to promote awareness and find a cure for Reflex Sympathetic Dystrophy Type 1 and Complex Regional Pain Syndrome Type 2, also known as RSD/CRPS, I urge you to support "Fight RSD!" as they are fighting for their lives and ours too. Sincerely, Twinkle VanFleet www.CRPSAdvisory.com We need you!

My Interests



My MySpace Support Group

---------- Attention: Advertisers, Marketers and Spammers! Please do not add me to your oontact list. Thank you! ----------

Hollywood Cure for Pain

RSDS CRPS News

RSD Icon by ::sunshine::

Political Views
and Independent Opinions - Follow the link & express your thoughts and concerns regarding the world today. Go on, you know you want to.
The Independent Opinion

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Me @ Yahoo 360 A Simpli Splendiferous Adversaria ***********

RSD Advisory @ WordPress ***********

Twinkle V @ WordPress ***********

MySpace Groups! RSD(S)/CRPS in Flight

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Click to join rsdadvisory

~~~~~~~~~~~~~~

Consider the consequences before you act, and choose those actions that will deliver the consequences you wish to have. Follow that simple formula with commitment and persistence, and anything you dare to dream will come true.

www.RSDAdvisor.com An information and resource site
in relation to RSD(S)/CRPS,Reflex Sympathetic Dystrophy Syndrome,also known as, Complex Regional Pain Syndrome.

~~~~~~~~~~~~~~

"Blessed eternally are those who overcome the color bar...

...you never know who he was born to be!". 2006 twinklev

To all you who suffer from RSD(S)/CRPS, Other Chronic Pain, or Bipolar-- These 2 songs are for you!

Remember, pain is universal, but so is hope! Luv Ya!

Jem - Just a Ride...
Life, it's ever so strange
It's so full of change
Think that you've worked it out
Then BANG
Right out of the blue
Something happens to you
To throw you off course
And then you

Breakdown
Yeah you breakdown
Well don't you breakdown
Listen to me
Because

It's just a ride, it's just a ride
No need to run, no need to hide
It'll take you round and round
Sometimes you're up
Sometimes you're down
It's just a ride, it's just a ride
Don't be scared
Don't hide your eyes It may feel so real inside
But don't forget it's just a ride

Truth, we don't wanna hear
It's too much to take
Don't like to feel out of control
So we make our plans
Ten times a day
And when they don't go
Our way we

Breakdown
Yeah we breakdown
Well don't you breakdown
Listen to me
Because

It's just a ride, it's just a ride
No need to run, no need to hide
It'll take you round and round
Sometimes you're up
Sometimes you're down
It's just a ride, it's just a ride
Don't be scared
Don't hide your eyes
It may feel so real inside
But don't forget it's just a ride

Slowly, oh so very slowly
Accept that

There's no getting off
So live it, just gotta go with it
Coz this ride's, never gonna stop

Breakdown
Don't you breakdown
No need to breakdown
No need at all
Because

It's just a ride, it's just a ride
No need to run, no need to hide
It'll take you all around
Sometimes you're up
Sometimes you're down
It's just a ride, it's just a ride
Don't be scared now
Dry your eyes
It may feel so real inside
But don't forget enjoy the ride

.....

"I could just dance forever... and ever...
and submit to every ounce of surging pain...
that wrapped it's arms around me." 2005 twinklev

.....

Suicidal Ideation
by twinklev
In the dark, I close my eyes
I want to die

No, no, I want to live
It's not time to say good-bye

In daylight, I look to the skies
Please, Take me away

No, no, leave me alone
I don't want to go today

I stare out into nothing
Let it be over and done now

No, no, let me live

Suicidal Ideation
Of another manic depressive

2006 twinklev
~~~~~~~~~~~~~~

La Pagar Kajiraby twinklev
Without forced, mislead intentions
Entrusting was his heart
Nothing ventured, nothing gained
Unless sincerity tore it apart

Bridges burned, abandoned
Embracing a future anew
Stepping over piles of rubble
Took on another view

Finding contentment and solace
That some had torn away
Strength, support and conviction
Tamed sorrow for another new day

He knew passion and fear existed
Beneath the pains she hid so well
The afflictions inside, she expressed it
but really who could tell

He could lead her toward survival
She could serve with fire or ice
Submit to another tomorrow
Make the best of a challenging life

Grow with determined ambitions
Retaining a slaves pride and grace
Surrendering into his will
That ashes have come to replace

Obedient, imbonded, subservient
A woman, mans truest treasure
A pleasing, passionate, firey slut
For his heavenly erotic pleasure

Maybe in his chains and at his mercy
Perhaps once, a preconceived idea
Still nothing but a Gorean slavegirl

La pagar kajira
2006 twinklev

~~~~~~~~~~~ A song dedicated by my Master... Yeah.. I 'spose I am a Crazy Bitch! ~winks playfully

Crazy Bitch
by Buckcherry

All right!

Break me down, you got a lovely face
We're going to your place
And now you got to freak me out
Scream so loud, getting fuckin' laid
You want me to stay, but I got to make my way

Hey

You're a crazy bitch
But you fuck so good, I'm on top of it
When I dream, I'm doing you all night
Scratches all down my back to keep me right on

Hey

You're a crazy bitch
But you fuck so good, I'm on top of it
When I dream, I'm doing you all night
Scratches all down my back to keep me right on

Take it off, the paper is your game
You jump in bed with fame
Another one night paid in full, uh
You're so fine, it won't be a loss
Cashing in the rocks, just to get you face to face

Hey

You're a crazy bitch
But you fuck so good, I'm on top of it
When I dream, I'm doing you all night
Scratches all down my back to keep me right on

Hey

You're a crazy bitch
But you fuck so good, I'm on top of it
When I dream, I'm doing you all night
Scratches all down my back to keep me right on

Get the video
Fuck you so good
Get the video
Fuck you so good

Crazy bitch
Crazy bitch
Crazy...bitch

Hey

You're a crazy bitch
But you fuck so good, I'm on top of it
When I dream, I'm doing you all night
Scratches all down my back to keep me right on

Hey

You're a crazy bitch
But you fuck so good, I'm on top of it
When I dream, I'm doing you all night
Scratches all down my back, come on

Baby girl
You want it all
To be a star
You'll have to go down
Take it off
No need to talk
You're crazy
But I like the way you fuck me

Hey

You're a crazy bitch
But you fuck so good, I'm on top of it
When I dream, I'm doing you all night
Scratches all down my back to keep me right on

Hey

You're a crazy bitch
But you fuck so good, I'm on top of it
When I dream, I'm doing you all night
Scratches all down my back to keep me right on
You keep me right on

You're crazy

But I like the way you fuck me

~~~~~~~~~~~~~~

"I would trade all of my tomorrows...
For just one single yesterday" ~JJoplin
~~~~~~~~~~~~~~

"'What are my duties?' I asked.

'Exquisite beauty and absolute obedience.'"

~Slave Girl of Gor by John Norman~

Gorean Lifestyle and Philosophy, Master-slave Relationships, Domination and Submission. Bondage, Consentual Slavery, Natural Order, Alternative Lifestyles, BDSM, D/s, Sensual Servitude, Enlightening Conversations, Meeting New People, Chatting, Body Mods, Web Graphics and Design, Photography, Desktop Publishing, Writing, Poetry, Erotica, Family, Friends, RSD(S)/CRPS, Chronic Pain, Fibromyalgia, Causalgia, Bipolar, Manic Depression, Passive Agression, Neurological Disorders, Incurable Disease, Mental Health, Medical Research, People and Dancing!

This song is dedicated to those of us who
suffer from Reflex Sympathetic Dystrophy(RSDS)/Complex Regional Pain Syndrome(CRPS),
Depression, Bipolar Disorder.PTSD, MDD, GAD, CFS, Fibromyalgia and Chronic Pain
I luv ya!

Everybody Hurts - REM
(berry/buck/mills/stipe)

When the day is long and the night, the night is yours alone,

When youre sure youve had enough of this life, well hang on

Dont let yourself go, everybody cries and everybody hurts sometimes

Sometimes everything is wrong. now its time to sing along

When your day is night alone, (hold on, hold on)

If you feel like letting go, (hold on)

When you think youve had too much of this life, well hang on

'cause everybody hurts. take comfort in your friends

Everybody hurts. dont throw your hand. oh, no. dont throw your hand

If you feel like youre alone, no, no, no, you are not alone

If youre on your own in this life, the days and nights are long,

When you think youve had too much of this life to hang on

Well, everybody hurts sometimes,

Everybody cries. and everybody hurts sometimes

And everybody hurts sometimes. so, hold on, hold on

Hold on, hold on, hold on, hold on, hold on, hold on

Everybody hurts. you are not alone

~~~~~~~~~~~~~~

Love, Trust, Devotion, and Surrender.

"It was not into her ear he whispered, but into her heart.
It was not her lips he kissed, but her soul".

.. "left" I am content to be a slave, and wish to be a slave! I am fulfilled in bondage, in ways that you, a man, or some men, may never understand! Oh, yes, you enslave us for your gratifications and pleasures, you monsters, you beasts! But what you do not know is that we love our bonds, and our belonging, and our being owned, and being helplessly subject to the magnificence, the glories, even to the whip, of your total, uncompromised mastery of us! Do you not know we want men to be strong ,and our masters? Let the twisted and hormonally deficient conceal their seekings of power under the pratings of rhetorics. Let other of us who long to love and serve, and obey, and be desired, dream of masters!yes masters!!our masters!

.. "left" I leaned forward a little, and reached out with my lips for the whip. In ecstasy, I kissed it. I kissed it lovingly and lingeringly. I think that I had never been so happy, or so fulfilled, as in those moments. Then, with my tongue, again and again, softly, tenderly, lovingly, I licked it. I could taste the leather. I feared only the moment when it would be taken from me."
~Witness of Gor by John Norman~

I'd like to meet:



QUOTE "When God takes something from your grasp, He's not punishing you, but merely opening your hands to receive something better. "The will of God will never take you where the Grace of God will not protect you"..

She would like to meet others who suffer from and survive RSD(S)/CRPS or who have a mutual interest- a common denominator.
She would like to meet herself for the very first time and get a glimpse at that first impression she might make on herself or another.
RSD(S)/CRPS is often an invisible disease for many. Most would never know we had it.
she would like to meet her dad one more time. Bless him in heaven.
And lets see...she would like to meet tomorrow
before it gets away and becomes but a
vague recollection of the past..

Oh and--
She's ready to meet her own fate one day...
...but that day isn't going to be today. ~twinkleEKV

~~~~~~~~~~~~~~~

"The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands in times of challenge and controversy."
~ Martin Luther King, Jr.

Music:

If it makes my body dance, my ass flex, and gets me a good enticing wild freaky on? Then it's going to be salaciously mmMmm good for me...... and you! ~winks playfully
"Words and Music"
Janis Joplin, Van Morrison, Joss Stone, Melissa Etheridge, Elton John, Tori Amos, Tina Turner, Bryan Adams, 3 Doors Down, Buckcherry, James Blunt, Shinedown, Lenny Kravitz, Fleetwood Mac, Stereophonics, Kid Rock, John Cougar, Evanescence, Selena, Creed, ACDC, Aerosmith, Bon Jovi, Enya, Gwen Stefani, Mr. Big, Jewel, Alanis Morissette, Tina Turner, Darren Hayes, The Eagles, Fog Hat, Guns N' Roses, Key to Arson, Bryan Adams, Steve Miller Band, Papa Roach, Johnny LangStaind, SheDaisy, Shania Twain, The Kinks, Celine Dion, Nickelback, Elton John, The Pretenders, Ramones, REM, 'Til Tuesday, Bruce Springsteen, Various Country, Soul, R&B, Old R&R.And unless it's a mans hand rappin' against my ass, nah, I'll pass on the rap. (Okay, okay, okay, but it has to be really good, or it just won't float my boat, rock my ship or wet the panties I probably don't have on)

One respects wives; one lusts for slaves; wives are free, and are to be treated with dignity and circumspection; slaves are owned, and are suitable objects to be put to ones pleasure. The wife consents, if she feels like it, and is so inclined; the slave obeys. The wife may dole out her favors by carefully measured spoonfuls, like medicine, in a regimen designed to reduce and torment, and thus to control, an angered, frustrated, confused, manipulated, indoctrinated, unquestioning, childlike patient; the slave kneels and hopes to be found pleasing. ~Witness of Gor, page 587~

Movies:

Men of Honor, Remember the Titans, Independence Day, Amistad, A Few Good Men, Radio, Amistad, Happy Gilmore, Born On The 4th of July, Mississippi Burning, Roots, Million Dollar Baby, The Day After, Sniper I,II,III, Independence Day, Ghosts of Mississippi, Forrest Gump, Sniper, |, ||, |||, Secretary, Kama Sutra.

Television:

Law and Order, CSI, NCIS, House, Psychic, People's Court, Judge(Meanie)Judy, The Closer, Cold Case Files, Court TV, Forensic Files, Dexter, Discovery Channel, History, Judging Amy, ER, Action/Suspense/Drama.

Books:

Chronicles of Gor by John Norman. Managing Pain Before It Manages You by Margaret Caudill. Technical How-to's, Kama Sutra, Chronic Pain, Depression, Bipolar Disorder, Neurology, Peripheral Neuropathy, Fibromyalgia, Chronic Fatigue Syndrome, Reflex Sympathetic Dystrophy Syndrome, Complex Regional Pain Syndrome, Poetry, Erotica, Body Mods, Tattoo's, Body Piercings

Books - Gorean Novels, John Norman, Master and Slave, Dominance and Submission, Female Submission, Sexual Slavery, BDSM, Bondage, Adult, Self Exploration, Erotica, Pain and Pleasure, and More at:

La Pagar Kajira

Heroes:

"My Master(s)are my ultimate hero's".



"A woman can only respect a man who can reduce her to utter defeat" ~Nomads of Gor by John Norman~

You are no more than a branded slut,
no more than meaningless, worthless collar meat! he cried.
Yes, Master! I cried.
~Witness of Gor, page 700~

Hero; defined
A person noted for courageous action.
"A man distinguished by exceptional courage and nobility and strength".
One who commonly possesses abilities or character far greater
than that of a typical person, which enable him or her to perform
truly extraordinary, beneficial deeds.
These powers are sometimes not only of the body but also of the mind.

My Blog

Now Open! An RSDAdvisory WebChat Community- Your Chronic Pain and Depression Support Network

NOW OPEN RSDAdvisory *RSD(S)/CRPS Fire 'N Flight WebChat Community- Your Chronic Pain and Depression Support NetworkWe now have a brand new chatroom located on the WyldRyde IRC Network. If you hav...
Posted by RSD(S)-CRPS Advisory*rsdcrpsfire* on Tue, 28 Aug 2007 12:19:00 PST

Electromyography (EMG-NCV Testing)

  Today I was seen by a Neurologist to identify other problems. After having an EMG test that is used in determining nerve compression, certain nerve disease, and certain muscle diseases. The...
Posted by RSD(S)-CRPS Advisory*rsdcrpsfire* on Tue, 07 Aug 2007 12:27:00 PST

Suspending Nature by Twinkle EKV

A passive nature, naturally submissive, easy going personality, respectful, courteous, ambitious, loving, playful, dependable, strong, eager to please, thrives on praise, grateful for guidance and cor...
Posted by RSD(S)-CRPS Advisory*rsdcrpsfire* on Tue, 22 May 2007 01:35:00 PST

How well do you know me?

So how well do you think you know me? Go on.. give it a shot! ~smiles Create your own Friend Quiz here...
Posted by RSD(S)-CRPS Advisory*rsdcrpsfire* on Sun, 01 Apr 2007 06:04:00 PST

Color bar

Color bar By Twinkle EKV As I've come to know many people over the years online, from the gorean circle's to political ones, no one's ever really asked about ethnic origins or family culture. I've sa...
Posted by RSD(S)-CRPS Advisory*rsdcrpsfire* on Wed, 28 Mar 2007 07:04:00 PST

Heritage by Twinkle EKV

Heritage by Twinkle EKV As I lay sleepy, my right leg splayed out on the bed, the knuckles of my left hand rest softly against my forehead, I think of my distant heritage. A part american indian girl...
Posted by RSD(S)-CRPS Advisory*rsdcrpsfire* on Sat, 24 Mar 2007 07:19:00 PST

~MOMENTS IN LIFE~

Having received this as a comment posted to her page and having forwarded it to those that mean something to her as well as those she barely knows, she wanted to share it again, here. ~smile...
Posted by RSD(S)-CRPS Advisory*rsdcrpsfire* on Tue, 27 Feb 2007 05:38:00 PST

Workers' Compensation 101: An Overview of WC for Employees With Work-related CRPS/RSD

Workers' Compensation 101: An Overview of WC for Employees With Work-related CRPS/RSD By R. Steven Shisler, Esquire Workers' compensation (WC) laws generally vary from state to state. As I am admitt...
Posted by RSD(S)-CRPS Advisory*rsdcrpsfire* on Mon, 26 Feb 2007 01:53:00 PST

Displaying Patriotism by Twinkle EKV

Displaying Patriotism By: Twinkle EKV In sacramento on January 31, 2006 it was reported and suggested on Fox 40 news, channel 8, that area residents displaying our american flag could be fined as 2,50...
Posted by RSD(S)-CRPS Advisory*rsdcrpsfire* on Sat, 24 Feb 2007 07:31:00 PST

The Morning After by Twinkle EKV

The Morning After By Twinkle EKV Has your birth control ever failed you? Have you been the victim of rape? Perhaps you simply fell into the embrace of a man because the moment swept you away? Each of ...
Posted by RSD(S)-CRPS Advisory*rsdcrpsfire* on Sat, 24 Feb 2007 07:00:00 PST