Alicia - ProfilesArchive

About Me

I am a 25 year old wife and mother of three, and I have the most amazing job in the world. I get to raise three beautiful little boys: Brodie is 5, Matai is 3 and Remy just turned a year old. Yes, I am THAT mom, with the three crazy little boys, but I love it. Who else in the world gets to live half of thier life as Mary Jane Watson.

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My Interests

I'd like to meet:

The new friends I have made in learning to cope with the horrible disease TSC (Tuberous Sclerosis Complex). Their strength has inspired me.

Music:

I am sort of all over with my music. I have always been into amazing female musicians. I love Jewel, Lisa Loeb, Sheryl Crow, Ani, and the likes. However, I will always have a strange connection to the bands I adored in High School, namely the Pixies. I don't know, there is just something that throws me way back.My kids love EMF. Its weird. Sort of a wierd mix I know.

Movies:

Labyrinth, Princess Bride and Willow are my favorites from way back. Love them. I love artsy films. Moulin Rouge was amazing. I'm a sucker for a good musical.

Television:

Smallville, Lost, Heroes...

Books:

Right now my favorite book is Velvet Elvis (Rob Bell). It was the first book that I have read that both challenged and affirmed my beliefs at the same time. Amazing, check it out. He also wrote another great book called Sex God. Both worth the read!

Heroes:

Jesus, that's all. No has impressed me quite as much as Him.

My Blog

Home Sweet Home

So, we are home! Remy was discharged late Saturday afternoon and we were home for father's day. Thank you so much to everyone who prayed and checked in on us. It really means a lot. We are 7 days post...
Posted by Alicia on Tue, 17 Jun 2008 09:52:00 PST

Surgery is Done!

Hey Everyone,Thank you all so much for keeping track Remy's progress. It really means a lot.Yesterday, after a long morning of shuffling around and getting to places too late, Remy was taken in for hi...
Posted by Alicia on Thu, 12 Jun 2008 08:01:00 PST

Surgery UPdate

Hi Friends,Remy had his grid placement done yesterday, which went quite well. He spent the night in the PICU w/ a slight fever, but is doing much better. He is vomiting either due to the pain or the p...
Posted by Alicia on Sat, 07 Jun 2008 07:34:00 PST

Brain Surgery

Hi Everyone,I wanted to give you all another update. We heard from the hospital this week and from the neurologist as well. Remy has been scheduled for an epileptic resection surgery this June. They a...
Posted by Alicia on Sat, 19 Apr 2008 04:18:00 PST

Remy Baby

Ok, last minute change. Matthew got a call from the Nurse Practitioner, and they cancelled the ACTH treatment. They have their eye on two large tubers (tumors) that seem to be causing all of the troub...
Posted by Alicia on Sat, 08 Mar 2008 06:04:00 PST

PET Scan

Oh my crazy little baby. Remy is at it again. A Kruk boy through and through, he will not be controlled. Unfortunately, either will his seizures. We are still seeing up to four or five seizures a day,...
Posted by Alicia on Tue, 04 Mar 2008 02:00:00 PST

Remy

So here is the latest on my precious. He was discharged from the hospital yesterday (Friday the 21st) at around 4:00. His seizures are being managed fairly well by the medications that he has been for...
Posted by Alicia on Sat, 22 Dec 2007 01:51:00 PST

Remy

I don't usually use this thing, but I just wanted to get out the info about the Reminator. He is doing a bit better as of the last couple of days. The medications that the doctors a...
Posted by Alicia on Thu, 20 Dec 2007 07:15:00 PST