Hello! My name is Natalie Carpenter and I am the special events manager for the Huntington's Disease Society of America in San Diego. If you are interested in donating to our worty cause or would like information about our upcoming events PLEASE ASK!!!What is HD?HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. An estimated 30,000 Americans have it, and at least 150,000 more are at risk. HD affects both sexes and all ethnic groups and strikes in the prime of life. Everybody carries the Huntingtin gene, but in some people it goes awry, leading to an attack on the brain. The final result is a slow, ugly death. Children of a parent with HD have a 50-50 chance of inheriting the condition, and the disease can start as early as childhood. There is no cure of treatment.Why should you care?HD causes immense suffering and loss of productivity. In San Diego alone as many as six families per month find out that HD has struck them. Thousands of caregivers across America must help the ill do the simplest tasks. Affected individuals lose jobs and insurance. But there is hope. In 1993 scientists found the HD gene. HD is on the cutting edge of biotechnology. HD research provided a boost to the Human Genome Project, and progress in HD research has generated many new investigative techniques. As scientists move towards a cure, they are increasing our understanding of the brain and having a tremendous impact on the study of cystic fibrosis, Lou Gehrig's disease, Alzheimer's, Parkinson's, certain forms of diabetes, and other maladies. Stopping HD will be a historic breakthrough leading to a better life for all.
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