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Saying is "Fibromyalgia is Real"

The Invisible Pain of Fibromyalgia"

Recently been diagnosed with Fibromyalgia, its been a hard struggle so far, This page is dedicated to the million of suffers outthere, who deal daily with this illness, Lets spread the word and help each other. We are "FMILY"

Fibromyalgia is a confusing word and even more confusing illness. The name means muscle pain, but muscle pain is just the tip of the iceberg when it comes to symptoms we encounter. It is responsible for pain and chronic fatigue, and sleep problems. Fibromyalgia isn’t all in our head and it isn’t contagious. We can’t control how often I feel good or how often we feel terrible. The first step in becoming supportive and understanding and believing that Fibromyalgia is a true illness and that we have it. This might sound simple but you hear about some of our symptoms, I don’t want to think it’s all in our head or making it up.

Fibromyalgia (Fie-bro-my-al-gia) Syndrome (FMS) is a chronic invisible illness. It is not a musculoskeletal dysfunction. It's a disorder of the informational substances such as neurotransmitters, hormones, peptides, and other biochemicalmessengers which regulate and run the systems of the body and mind. It causes hypersensitivity to all sorts of stimuli, so it can amplify pain;most people with FMS have pain amplification.

Fibromyalgia is a high maintenance condition with lots and lots of different symptoms. There’s no way to just take a pill to make it go away, even for a little while. Sometime certain Meds can make some of our symptoms more tolerable. That’s about the best we can hope for. Sometimes we can take a lot of different Meds and still not feel better, that’s just the way it goes.

One problem we endure is sleeping problems. Sleeping is a luxury for most people with FMS. People with FMS hardly reach stage 4 sleep, this is sleep our body desperately needs. We can wake up and it feels like our body was hit by a truck, a sign we have not gotten restful sleep. In FMS, sleep is often fragmented, and there seems to be a problem with the microstructure of sleep. People with FMS wake up feeling that they haven’t sleptat all. We are denied refreshing sleep, and sleep is when the body does much of its repair and biochemical regulation. People with FMS can’t recover fromexercise, stress and work like healthy people. We are constantly in a state of sleep deprivation unless they we find a combination of medications, lifestyle modifications and diet that work for us.

If people with TrPs are immobile at anytime, such as during travel or sitting in a meeting or movie, their muscles get stiff and painful. It can feel like we are wearing a wet suit several sizes too small,our range of motion is limited, and our muscles are weak. Morning stiffnes with both of these conditions can be severe. Our symptoms fluctuate from hour to hour and day to day and may worsen with changes in barometric pressure,humidity, cold or heat. If we overextend our limits, We may have extra pain for days or weeks.

There is no cure for Fibromyalgia, and it won’t go away. If we are functioning normally, We are having a good day. This does not mean we are getting better; People with Fibromyalgia suffer form chronic pain and fatigue for which there is no cure. We can have a good day, days or week, but a good morning can suddenly turn into a horrible afternoon. Chronic Fatigue is a big deal for people with Fibromyalgia, We get a feeling like someone has just pulled out the plug out of us and all our energy is gone. This is one of the hardest part as it comes with no warning. We might get more irritable before a flare, A flare is a time when pain amplification as it’s highest. During these flares I have a intolerance- to everything. To noise, especially certain sounds, bright lights, fluorescent lights. To smells like some chemicals. We will also have a problem with cold and heat. All these things can make us physically ill and make our pain worse.

Fibromyalgics have a different kind of pain that is hard to understand and treat. It is not caused by inflammation like a injury. It is not a constant ache in one place like a broken bone. It moves around my body daily and hourly it changes in severity and type. Sometimes it is dull and sometimes it is a cramping or throbbing. Sometimes it’s jabbing and excruciating. Sometimes we hurt all over. If Eskimos have a hundred words for snow, fibromyalgics should have them for pain.

Another symptom we have is problems with memory and concentration, which is called FIBROFOG. We are constantly looking for things we have no idea where we put them. We can walk into rooms and forget why we walked into the room in the first place. Our keys and wallet are frequent casualties. This is normal for Fibromyalglics.

Living with Fibromyalgia is like playing chess, every move you make you have to worry about what your opponent will do. What ever move you make can end the game, and with Fibromyalgia one wrong move can end your day. Fibromyalgia has been described been worse than cancer and it effects on one's life can be desvestanting.

I (we) have been asked what people can do for me, best thing is just understand that this is a horrible illness, showing your support is the best thing you can do for me or anyone suffering from this illness. If you would like to show your support just leave me a comment , message or email. Show your Support !!!