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Well, I’m 24 yrs old and I was born on May 26, 1982, in Boulder, Colorado. I was born 2 weeks late. I was born with a Ventricle Septal Heart Defect, as well as undeveloped Lungs. I was in the hospital ICU, on ventilators for 2 wks. After that I was a fairly normal baby. We moved to Houston, Texas with my Mom’s parents when I was 3 months old. Then when I was 6 months old, I had my second D.P.T shot. When I got home, I had seizures from it, ran a 107 degree fever, the doctors thought that I had Epilepsy and put me on medication for it. Well, from the very begging my parents knew I didn’t have epilepsy and when I stopped pulling my self up in my play pen like I used to before, and went into fetal position, they took me off the medicine. When they did this Child Protective Services wrote them up and told them that if anything happens to me again, that it will be there fault. Then when I turned 4 yrs old I got strep throat and ran a really high fever that shot up 5 full degrees in 5min like it always did, and woke up in the middle of the night gasping for air, repeatedly and had what seemed like an asthma attack. That time, the doctors told us I had Asthma, and put me on medication for it. I was in the hospital I think for a week. I think I wasn’t on the steroids they gave me for very long. They decided that I did not have asthma, because the medicines were making me sick, and I never had any breathing problems, except for when I was sick, with a fever. Throughout the rest of my life, I got sick many times, and ended up in the hospital many times. The virus I got more frequently than any other in the past was Strep throat. I can not even count how many times I got it, ran a 103 or 4 fever that shot up in 5 min, and had one of those "asthma attacks" from it. I was also sick a few times in between that DPT shot and my time in the hospital at 4 I’m sure. Around the time I was 2 yrs old, my mom started to suspect something was wrong with me, because of how fast my fevers shot up when I was sick. My fevers would go from 101 to 105 in like 5 min.’s. As well as the way I would stop breathing in the middle of the night after that attack when I was 4. She also began to notice that I wasn’t climbing, or running or playing around like other kids my age. I wasn’t developing like I was supposed to. So, my mom told my doctor of her suspicions, but for some reason he and all the many, many, other doctors all throughout my life, that she continuously tried to tell, and get me an M.R.I , for so many years. They all accused her of being an insane, drug addicted, who was making me sick, and making up all the stuff about me in order to get HER drugs, and attention. This is the same suspicion, that made it so incredibly difficult for my mom to get me admitted into hospitals, the many times I got sick thought my life. My mom had to fight and scream to get me admitted. Even though, every time they would send me home after treating my high fever and non-breathing issue, the very next night the same thing would happen again. My parents’ got divorced when I was 11 yrs old, when we were living in Leander, Texas. It was really hard on me at first, but after my mom and I got moved into our new home at The Texas Baptist Children’s Home in Round Rock, Texas, and got settled in, I was happier. I was happier, because I realized that it wasn’t healthy for me to be around there constant bickering. From then on I got to se my dad every other weekend and of course on holidays and the summer for a little longer. All throughout the next few yrs. a lot of things happened. I had more trips to the hospital, for high fever and/or non-breathing, where the doctors thought my mom was crazy, when she tried to get me admitted. As well as doctors appointments, where she tried repetitively to get me an M.R.I., and they thought the same thing. We moved to Georgetown, Texas, where we lived for 7 yrs, and where I met my very best friend in the world, Sami, and her mom and dad. It’s because, of them that I finally found out what was wrong with me. I met Sami on my first day of High School at Georgetown High School. She was in my Home Ec. Class. I walked into class and was trying to find a place to sit, and saw her sitting by herself, thought she looked nice so I sat next to her, said hi, and we’ve been friends ever since. My mom and I met her parents’ and got to know them and got to know Sami, and as it turned out Sami has something called Turners Syndrome. We were listing to her mom explain this disorder and it sounded a lot like what might be wrong with me. Possibly the biggest thing of which, was that I was 17yrs old, and had not gotten my period. So we asked her how she found out, about her disorder, and they gave us the name and number of the doctor, that would change my life forever an Endocrinologist named Dr. Jane Wray. So, we went to go see her. Almost the second she saw me, she diagnosed me. I have Hypopituitarism, when the pituitary gland in the brain doesn’t fully develop. The pituitary gland is the master gland, in controls almost everything, your hormones for one thing, which is why I didn’t get my period. The loss of hormones is also the reason I have Osteoporosis at such a young age. I also can’t have children. It caused me to develop Hypothyroidism, Renal Insufficiency, which led to the loss of the function of my left kidney. And Adrenal Insufficiency, so I need to prevent from getting sick or injured because when I get sick I get the illness worse than someone with a normal immune system. I need to prevent from getting seriously injured like breaking an arm because if I do so, I would need a shot of cortisone pretty quickly or I will most likely die. Dr. Jane Wray also told me this day that with out any Adrenal function, and therefore no cortisone, it was truly a miracle that I lived to be, as old as I was without it. That was the best and worst day of my life. The best, because my whole life my parents’ and I all knew there was something wrong with me, but all the doctors, nurses, and others, we tried to convince, just laughed in our faces. And, now we knew that we were right, and we had a name for what it was. And we could finally treat it, and make me better. It was wonderful. On the other hand, we kind of wanted to be wrong, but in the end we were just glad it was all over with. To clear things up, the Osteoporosis, and kidney thing was not diagnosed until a few years later, but it was part of my Hypopituitarism. If you have any other questions about me or my disorder, feel free to ask. I also as you can see in my interests love to sing, and dance. I lettered in choir for being in it all 4 yrs of high school and I was on drill team my senior year of high school. I also love to act. I am also really into making movies. I just love to perform and put on shows and make people laugh and make people happy and I love to talk. Well, if anyone is interested in me or even my disorder because my type is so rare. Hypopituitarism is not rare, a lot people get it after having brain tumors or after having other brain injuries later in life, but the kind I have Primary Hypopituitarism is very rare. Only I and I believe one other person has it here in Texas. So feel free to ask questions.
