King-Elyon C.H.D Awareness

Make photo slide shows at onetruemedia.com Hello my name is King-Elyon,the foundation is because of me. Elyon's Heart Foundation (EHF) was established in June 2006. By the mother of Congenital Heart Block child King-Elyon. When I went for my 20 weeks scan they detected there was something wrong with the rhytham in my baby's heart. I didn't understand what Congenital Heart Block was even through the hospital did explain it to me.When King-Elyon was born he was premature by 6 weeks, and his heart rate was only 25 beats a min, instead of 160. It then dropped down to 17 beats his first night. At 2 day's old he underwent his first heart operation, to put an external pacemaker onto his tiny heart and then at 5 day's old to have a pacemaker inserted onto his heart to keep him alive. King-Elyon has been frighting for his life ever since he was 20 weeks old. He is the youngest black child in the UK to recieve a pacemaker. We prayed night and day for King, and his great grandma never came off her knees. Our faith was strong that God would pull him through.Today I am pleased to say that he is a heathly living happy little boy. "Thank you Lord for what you've done for me."What are we about: The EHF is a unique registered charity that specialize in afro-carribean children. EHF has been put together because of King-Elyon (but not for him)and the poor representation for CHILDREN in the Black community and mixed parentage effected with heart condition's. The EHF is a voluntary organisation, and all the members Sherell,Tasha and Keisha freely volunteer their time and services. We are able to go too hospitals, clinics, GP'S, schools, churches, play centres where ever we are needed.Our .. Is to raise awareness in the Black community, and to offer a familt the support and advice they may need. Each CHILD or FAMILY needs support in diffrent ways in such a troubling time. We are aiming to have a hospital in Jamaica so that the young and old doesn't need to travel abroad to have an operation, or to have their heart check up.How can you help us: There are many ways you can help/support us.So please get intouch with us. Either call us, email, or leave us a message or comment.Congenital Heart Disease (CHD) effects both Black and White people but unfortunately in the Black community it is not thought of as a Black illness in the same way Sickle Cell Anaemia,High Blood Pressure or Lupus has been.CHD children/families within the black community needs to have a place they can call on to help them understand what their child has or going though and to offer the support they both need.
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