My Blog
Caught Between Dark and Light
ABC news did an documentary on albinism, Unfortunately they did not mention HPS. However one of the videos you can watch has to do with the heinous acts going on in Tanzania. It is Part 3 in 20/20's...
Posted by on Sun, 04 Oct 2009 13:12:00 GMT
Help Holly Win!!!
Hey folks,I know it has been awhile since I posted, and yes I am still alive. It has been quite a busy summer, and if I ever catch my breath I will post more, but right now we are just trying to get ...
Posted by on Sun, 27 Sep 2009 21:22:00 GMT
Foundation Offers Medical Grants For Kids
The United Healthcare Foundation, a 501(c)3 organization, is offering medical grants to patients 16 years old or younger who currently have commercial medical insurance, but whose families are facing ...
Posted by on Thu, 20 Aug 2009 09:44:00 GMT
Injustices Just Seem To Continue In Tanzania
I have chosen to leave out the photos due to graphic content. Not only that I can't stand to look at it myself.As Albino butchery increases, Tanzanian courts abandon prosecutionsWARNING: Extremely gr...
Posted by on Fri, 14 Aug 2009 22:07:00 GMT
IMPORTANT!! Perfenidone Trial for Pulmonary Fibrosis/HPS in Jeopardy
As many of you know, this summer there was to be an interim analysis of the results thus far in the Pirfenidone trial at the NIH.The statisticians have met, and the news is mixed.The statisticians dec...
Posted by on Fri, 07 Aug 2009 08:24:00 GMT
More on the albino community in Africa
This is a video I came across on YouTube. I watched it with great sadness.
Posted by on Fri, 24 Jul 2009 19:22:00 GMT
ATS A Foundation For The Future
Below is a video about The American Thoracic Society, and while HPS wasn't even heard of at this conference 6 years ago. It shows we have come a long way as we are mentioned several times. GO ATS!
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Posted by on Fri, 12 Jun 2009 21:30:00 GMT
Red Cross Defends Albinos Right To Live
Many of you know that I haven't been posting in awhile. I assure you most things are going pretty well. Will try to update more at a later date.As most of you know I've always tried to keep you info...
Posted by on Tue, 09 Jun 2009 20:16:00 GMT
Whirlwind
It seems that life in the Tillman household has been a bit overwhelming. That is why I have not communicated very much lately.So let me just give you a little of the low down. First of all The Human...
Posted by on Fri, 06 Mar 2009 13:29:00 GMT
For Parents of Visually Impaired Children Living in NY
Special Event for NAPVI ParentsArt Education for the BlindArt Beyond Sight InstituteWorkshop introducing our new online resources for parents and educators:- American Identities. Exploring works of Am...
Posted by on Mon, 09 Feb 2009 17:27:00 GMT