Dylan Hartung Fund profile picture

Dylan Hartung Fund

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About Me

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Myspace Contact TablesThis profile is to raise awareness of Dylan HartungDylan is a 7 year old Australian boy who was diagnosed with Stage IV Neuroblastoma on 26th July 2004 when he was 5 years old. Dylan's tumor started on the left adrenal gland and had wrapped itself around both his left and right renal arteries and around several major blood vessels. So far, Dylan has received 12 rounds of intense Chemotherapy, but even though there has been some improvement in his condition, the Neuroblastoma cells still remain in his bones. Dylan was classed as refractory in December 2004, meaning he no longer responded to the regular Neuroblastoma protocols of treatment. As Dylan still has Neuroblastoma evident in his bones, the doctors in Australia would not perform surgery or harvest his stem cells to continue treatment regimes. We were told that Dylan has 2 12 months to live and there was little more that could be done for Dylan. Dylan's fight for survival has led us to America, where they have many treatments that are not currently available in Australia, one in particular is called 3F8 Monoclonal antibodies. Dylan had his stem cells successfully harvested on the 7th and 8th February 2005 and had his main abdominal tumor entirely removed on the 9th February 2005 by a highly skilled surgeon who is an expert in the field of Neuroblastoma, at MSKCC in New York. Without this surgery, Dylan would not be alive today. Dylan has now commenced treatment to tackle the Neuroblastoma still present in his bones, including a Phase 1 Clinical Trial Protocol 05-074 with Dylan being the first child with neuroblastoma to try this new therapy at MSKCC. A Campaign was started in December 2004, by a wonderful team of dedicated people, to raise $500,000 for surgery and treatment, and on 26th January 2005 (Australia Day!) exactly 6 months after diagnosis, we arrived in New York City! Visit Dylans Website at www.dylanhartung.net

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Dylan Hartung http://DylanHartungFund.bebo.com/
Check out my friend Mason! Currently in remission! just click his picture to visit his site

My Blog

YAY it’s snowing...Dylan gets shingles...AGAIN!!!

We woke to the beauty of the city covered in a white blanket of snow, the first real snow falling for this winter. It was a nice start to the day and put a smile to all our faces. Then Dylan said his ...
Posted by on Sat, 08 Dec 2007 10:28:00 GMT

Clinic visit

Dylan had clinic yesterday. They drew blood for a HAMA test which should reveal results next week. Dylan complained of a stomach cramp and leg pain on Wednesday night and Thursday morning he refused t...
Posted by on Sun, 02 Dec 2007 16:10:00 GMT

Eventful birthday for Dylan

Hi everyone, I know it's been a while in between updates. Well, lets see, Dylan had an eventful 9th birthday. At lunch time a friend of ours took Dylan, Cain and friends, Sean and Morgan to Patsy's pi...
Posted by on Sun, 02 Dec 2007 16:10:00 GMT

Dylan’s quote of the day

Dylan said "Your mind is in control of your body" I said that's true "so can you get your mind to get rid of your cancer?" Dylan said "Nah my cancer has a mind of it's own!"
Posted by on Sun, 02 Dec 2007 16:09:00 GMT

New York marathon, and birthday eve

The Ronald McDonald House fun run was on last Saturday 3rd November and Cain ran in honor of Dylan. He did so well running 1 mile in 8 minutes and 42 seconds! I have added photos HERE of both the RMDH...
Posted by on Sun, 02 Dec 2007 16:09:00 GMT

Halloween

Woke up early the other morning to catch up on the many things I have let build up, started at 7:30am, ready by 8am, started to scratch around the mounds of papers etc that had built up on the desk an...
Posted by on Sun, 02 Dec 2007 16:08:00 GMT

I hate this cancer

Please Pray for Lucas's family, Lucas and his family stayed here at RMDH for quite some time, a fond memory was our trip to Fire Island this past summer. Lucas passed today, after a long 2 year battl...
Posted by on Sun, 02 Dec 2007 16:07:00 GMT

Dylan starts school

Dylan started school today! Yes, regular real school! Dr Modak said that while Dylan is on his current therapy and his immune system is good he can attend regular school. Dr Modak said that it was fro...
Posted by on Sun, 02 Dec 2007 16:07:00 GMT

A day in the country

Dylan started his 7th round of Accutane on Monday and all is well, the doctors are very happy with Dylan's health right now, although those platelets are still not getting past the 70 mark, so it's a ...
Posted by on Sun, 02 Dec 2007 16:06:00 GMT

Results are in

This is the banner used at the Loneliest Road Campaign. Unfortunately we were unable to attend the finish line in Washington DC due to transport issues, a bus was not available from RMDH as previou...
Posted by on Thu, 04 Oct 2007 08:54:00 GMT