stephanie profile picture

stephanie

I am here for Friends and Networking

About Me

I am Married to a wonderful man who we just learned has Huntington's Disease. We live in Washington and love spending time with our family and friends. I have a 17 year old daughter. She is the joy of my life. We have finally found our home and love the peace that it is bringing to our lives. Now we can spend the time we have creating memories and enjoying each other. I know many people, family and friends, are hurt by our decisions and I am sorry to all of them for that. But what it all comes down too is what my husband wants for what time he has left he is the one dying. Whether that is selfish and whether that makes me a bad person only one person can judge and I will face him when the time comes. So for now I love being with my husband and living each minute that I have left with him.
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My Interests

Cooking, Crafts, Friends, Garage Selling

I'd like to meet:

I would like to meet friends and anyone who has had their lives touch by Huntington's Disease.
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Music:

Hard Rock and Roll and Classic Rock and Roll

Movies:

Murder, Sci-fi, Scary

Television:

Reality TV, Drama's (CSI, Law and Order), Animal Planet, DHC

Books:

Craft and Do it your self

Heroes:

My Parents

My Blog

How hard it can be---

I never understood how hard it would be dealing with the progression of my husband's  Huntington's Disease.  The provanity, mood swings and name calling are almost to much to bare.  But...
Posted by stephanie on Sat, 16 Feb 2008 05:27:00 PST

Its Official

Well it is official Dan has Huntington's Disease and we don't know how much time he has. The dr we saw is Dr. Vance and she has followed the whole family's history and is wonderful. To all my family a...
Posted by stephanie on Fri, 13 Jul 2007 07:20:00 PST

Huntington's Disease

HI Everyone, My husband recently found out that he has Huntington's Disease.  For you people who don't know what that is it is a degenterative Neurological disease that takes away your  coor...
Posted by stephanie on Sun, 27 May 2007 07:25:00 PST