Princess Katie profile picture

Princess Katie

I am here for Friends and Networking

About Me


imikimi - Customize Your World

Hi!! MY NAME IS !!!!

I just started to school last fall and I am really enjoying it. My friend Alex will be posting new pictures of me very soon so come back and see me! And PLEASE leave me comments! My grandmother will be reading them to me and comments make me very happy!! If you leave me a comment I will be very happy!




My Interests

I'd like to meet:

We want to hear from anyone that knows anything about Leukodystrophy . There are many types of this disorder. Katie's keeps her from walking and makes her very tired. She also has a hard time with food. Just smelling it makes her extremely sick. If you know someone who has this disorder or know anything about it please send a message or leave a comment here on Katie's page. We can never learn enough about this. Thanks!!

Please visit Angels In Care!!

SUPPORT Angels In Care!

KATIE LOVES COMMENTS!! SHE LOVES PEOPLE AND ENJOYS ATTENTION JUST LIKE ANY OTHER 5 YR OLD!! PLEASE SHOW HER SOME LOVE!

My Blog

A Sad Update

I am trying to get a more recent pic of Katie and should have it up soon.  Her hair is much longer and she is even prettier.  Imagine that!  I ran into Katie's Aunt Kristy last ni...
Posted by on Sun, 13 Apr 2008 09:43:00 GMT

Living Life to its fullest!

The doctors said Katie would not live past the age of 3.  She did.  They said she would not live past the age of 5, she has!  Katie turned 6 on April the 25th, 2007.  Katie is a fi...
Posted by on Sat, 19 May 2007 10:36:00 GMT

Benefit for Katie November 11th, 2006!!

Parker's Place will be holding a benefit for Katie on November 11th, 2006.  Start time is 12:00 noon.  We are having a community yard sale at Parker's Place on the day of...
Posted by on Wed, 26 Jul 2006 09:48:00 GMT

More photos of Katie here!

Here are some photos from Katie's family vacation last year: Katie and her Daddy (DaDa). Katie and her Granmother (Sheila). Katie with her sister Breana. Katie flying! Katie and her PaPa after a L...
Posted by on Thu, 01 Jun 2006 20:45:00 GMT

In memory of Vinnie Brown

While surfing groups looking for support on Leukodystrophy, I found a group dedicated to the memory of Vinnie Brown.  You can view it at:  http://groups.myspace.com/vinniebrown He lost his b...
Posted by on Thu, 16 Mar 2006 19:45:00 GMT

Katie's family need a lift!

If anyone knows of someone who would be willing to donate a lift please let me know!  Katie's mom desperately needs a lift to get her in and out of the bathtub.  They also need a van with a ...
Posted by on Wed, 15 Mar 2006 13:14:00 GMT

Katie's condition

I have had several messages asking about Katie's condition.  I will attempt to answer them and I want to thank you for your interest in our little Princess.  It means a lot! Katie has a form...
Posted by on Thu, 23 Feb 2006 14:35:00 GMT