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amanda

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About Me

www.myyearbook.com/amandaandjohni am a divorced white female, age 31. i have 3 children. ages 15 yo girl, 10 yo boy and a 8 yo boy.we live in semmes, alabamafinding a cure/ treatment for ( gan)( Giant axonal neuropathy is a rare hereditary motor and sensory neuropathy (HSMN) that severely affects the central nervous system. The first symptoms appear in early childhood. This disorder is characterized by abnormalities in the peripheral and central nervous systems including low muscle tone (hypotonia), muscle weakness, decreased reflexes, impaired muscle coordination (ataxia), seizures and mental retardation. Pale, tightly curled hair is frequently seen in those affected. Giant axonal neuropathy follows autosomal recessive genetic inheritance.) there are only 116 cases know in the world. my son is included in this number. since alan their has been 2 more children dianosed with this illness. lyotton in ga, and hannah in ny.Hannah's Hope Fund for GAN, P.O. Box 206 Morrisonville, New York 12962 or, they can donate using their credit card from our website, using paypal.www.hannahshopefund.org

My Blog

update on alan-birmingham-10-24-07

well the news about alan remains almost the same.his legs have gotten weaker. his hips have gotten weaker. he is having to pull up his legs and feet with his hands, he cannot pick them up on his on, w...
Posted by on Thu, 25 Oct 2007 06:47:00 GMT

convenience store

as most of u know i work in a convenience store. i enjoy my work, and i also enjoy most of the customers that come in the store. however i do not enjoy the rude people. i try not to take things so per...
Posted by on Fri, 07 Sep 2007 06:30:00 GMT

THE FAIR

WELL ME AND DEREK TOOK ANGELA AND MEGAN TO THE FAIR FRIDAY NIGHT. NEEDLESS TO SAY IT WAS A DISAPOINTMENT. IT SEEMS LIKE EVERY YEAR MORE AND MORE RIDES DISSAPEAR. ABOUT 4 RIDES WERE BROKE. THEIR WAS A ...
Posted by on Mon, 23 Oct 2006 02:45:00 GMT

BORED AND NOTHING TO DO

THIS SUCKS, I AM SO FLUCKING BORED TONIGHT. EVERYONE IS SLEEPING EVEN DEREK, HE HAS BEEN ASLEEP FOR A FEW HOURS NOW. THEIR IS ONLY SO MUCH TO DO ON THIS COMPUTER. IF I THOUGHT DEREK  WOULD NOT G...
Posted by on Sun, 15 Oct 2006 08:03:00 GMT

NOTHING NEW

WELL NOT ALOT HAS BEEN GOING ON WITH ME. I HAVE JUST BEEN VERY BUSY. I WILL WRITE MORE WHEN SOMETHING INTRESTING HAPPENS.      
Posted by on Sun, 24 Sep 2006 18:05:00 GMT

TEST RESULTS

WELL WE WENT TO UAB YESTERDAY. IT WAS CONFIRMED ALAN DOES HAVE GIANT AXONAL NEUROPATHY. RIGHT NOW GAN IS INCURABLE.  BUT HOPEFULLY IN A FEW YEARS  THEY WILL BE ABLE TO HAVE A CURE FOR IT. A ...
Posted by on Tue, 22 Aug 2006 16:25:00 GMT

MY NIGHT OUT

WELL ME AND NICOLE AND A COUPLE OF OTHER PEOPLE WENT OUT LAST NIGHT, FOR MY BIRTHDAY. ( WHICH IS TODAY) I HAD A BLAST.I DONT THINK I WOULD HAVE HAD AS MUCH FUN IF NICOLE HAD NOT BEEN THERE.  ...
Posted by on Sat, 19 Aug 2006 07:36:00 GMT

MY SON

TODAY HAS NOT BEEN A VERY GOOD DAY FOR ME. I WAS UP AGAIN ALL LAST NIGHT. I DECIDED I WOULD LAY ON THE COUCH FOR A FEW MINUTES THIS MORNING AT 6:00, BUT I KNEW BETTER, I ENDED UP WAKING UP AT 10:10 TH...
Posted by on Fri, 28 Jul 2006 21:55:00 GMT

myspace account for alan

well the past week or so has been going ok, i have been trying to stay busy. and spend time with the family and all. my sleeping pattern has gotten a tad bit better, now instead of getting no sleep at...
Posted by on Sun, 16 Jul 2006 20:10:00 GMT

another sleepless night

well here i go again, another night where i cannot fall asleep. i was up this morning at 5:00.  (well thursday morning)    woohoo on time, which is great. i did the usual...
Posted by on Fri, 23 Jun 2006 01:55:00 GMT