Kira Kira

Kira was born at 2:21pm on July 28, 2006. She weighed 4lbs. 8oz. and was 15 inches long. When I was 23 weeks pregnant our doctor told us that Kira had a rare, letal form of dwarfism called Thanatophoric Dysplasia. We were told she would only live minutes if she wasn't stillborn. We were told we should consider terminating the pregnancy because with this condition, there is no hope, no cure and it is not compatible with life, afterall Thanatophoric means "death bearing". Well we chose to continue the pregnancy and put it all in God's hands. We were told we may not even make it full term. Kira and me were closely monitored throughout the pregnancy and every visit I prayed she would look better and the doctors would say she did not have a lethal condition. Well the months went by and no change in diagnosis. While other happy parents to be were decorating nursery's and having baby showers, I was checking out funeral homes and cemetaries, talking with Hospice, and preparing for the birth and death of my baby girl. We had thousands of people all over the world praying for a miracle for Kira, and on July 28th, that's exactly what we got! The doctors told us she would never cry, never open her eyes, and not even move after birth. Well...she moved, cried, and when I rubbed her forehead she opened her eyes! Later that nite, the doctor came in to tell me they were wrong, she did not have Thanatophoric Dysplasia, but Osteogenesis Imperfecta or brittle bone disease. Although this is a very serious condition, it is one that has hope. Kira can have a wonderful life, it won't be easy, but she has proven that she is a fighter and that God is in control! Prior to birth Kira has had almost every bone in her body broke. As of now she has no broken bones and continues to be an inspiration to all she meets.