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Mastocytosis in MI

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This Myspace page is for patients, caregivers, and friends of those with Mast Cell Disease.A Brief Summary: Mast Cell Disease is a neoplastic disease, meaning that it involves new or abnormal cell growth. In this case the cells involved are mast cells, which are normally contained in body tissues. Mast cells release certain chemicals, one of which is histamine, into the body in response to certain events. People with Systemic Mastocytosis develop an increase in the number of mast cells, or they develop abnormally shaped mast cells, which may not function properly. In addition, the mast cells fail to die off when they are supposed to, resulting in an increased number of mast cells in the body.For information on symptoms, triggers, diagnosis, and treatments, please check out The Mastocytosis Society's website at: www.tmsforacure.org and read the blogs posted on this page! Thanks for visiting!

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Pediatric Mastocytosis Video:A Video Showing A "Masto Attack" (allergic reaction):Mastocytosis - Raising Awareness One Person At A Time:

My Blog

Online Mastocytosis Support Groups

Facebook seems to have more online support groups than Myspace. I would encourage you to also get on Facebook! Information and knowledge are power, and we need all the help we can get when the doctor'...
Posted by on Sun, 11 Oct 2009 10:55:00 GMT

Food allergies / intolerance and Histamine

I have been developing "food allergies", or intolerances, as my Mastocytosis progresses. Several times I have experienced anaphalactic reactions to foods, but allergy testing does not show an allergy ...
Posted by on Mon, 05 Oct 2009 08:17:00 GMT

Why do some of us have "spots"?

Mast Cell Disease can involve just the skin (referred to as Cutaneous Mastocytosis), just the internal organs (referred to as Systemic Mastocytosis), or a combination of both. (I am lucky enough to ha...
Posted by on Fri, 06 Jun 2008 23:35:00 GMT

The importance of Epi-pens for those with Mast Cell Disease!

Epi-pens treat anaphylaxis A life-threatening, usually rapid, immune-mediated systemic reaction. Informally called "shocking." Patients with mast cell-related disorders are subject to anaphylaxis  a...
Posted by on Fri, 06 Jun 2008 23:09:00 GMT

How can you help find a cure for Mastocytosis?

Visit www.tmsforacure.org and click on the fundraising link! Why is fundraising so important? Because mastocytosis and other mast cell-related diseases, like idiopathic anaphylaxis, are rare diseases....
Posted by on Fri, 06 Jun 2008 22:12:00 GMT

What can trigger a mast cell reaction or "attack"?

What are Triggers? Triggers are stimuli that can set off a mast cell response, potentially leading to a mast cell attack. Avoidance of various triggers (things that can set off a mast cell attack) can...
Posted by on Fri, 06 Jun 2008 20:16:00 GMT