Madison, Mommy's Angel in Heaven

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Thank you for coming to Madison's site. This is my way of honoring her memory and keeping her alive in some small way. This site is NOT intended to make you cry but to make you smile and cherish her memory as much as I do. Also, it is a site to promote awareness for Mitochondrial Diseases/Disorders! Madison died 5 days after her 2nd birthday. I got to have her for 2 years and 5 days! That was a blessing to me. She suffered a LOT in her short life, but she also taught me many lessons and she showed me what real unconditional love is! I hope that by browsing this site you smile and realize all the families out there living with this disease/disorder love their children very much, wether they are here on earth or angels watching over us! Enjoy reading our babies stories! Donate if you can!
Mitochondrial Disease is, at heart, a disease of energy deficiency. The mitochondria, tiny organelles living inside our cells, are responsible for converting food and oxygen into energy. When the cells can’t get enough energy, due to malfunctioning mitochondria, the cells begin to die, and the organs in which these cells live—the liver and kidneys and eyes and digestive system: the brain, the heart—begin to fail. Miotchondrial disease is no single disease, in other words. It can affect any organ, appear as any disease, it is progressive, and it has no cure. Yet!
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In loving Memory of Madison Morgan Grantham, may she never be forgotten!
July 29, 2004 thru August 3, 2006
Support Stem Cell Research
HEAVEN'S VERY SPECIAL CHILDA meeting was held quite far from earth. "It's time again for another birth," said the angels to the Lord above, this special child will need love. Her progress may seem very slow, accomplishments she may not show, and she'll require extra care, from the folks she meets way down there. She may not run, or laugh or play, her thoughts may seem quiet far away, in many ways she Won't adapt, she'll be known as handicapped, so let's be careful where she's sent, we want her life to be content, please Lord, find parents who will do a special job for you. They will not realize right away, the leading role they're asked to play, but with this child sent from above, comes stronger faith and richer love, and soon they'll know the priviledge given, caring for this gift from Heaven. Their precious child, so meek and mild, It's HEAVEN'S VERY SPECIAL CHILD
This is something another Mom wrote, she also lost her child through an "Undiagnosed" Mitochondrial disorder. This TRULY explains what a parent who has ever lost a child goes through and how they feel! Thanks Jennifer!
You start out with the best of intentions. Their nursery is going to be the best ever. It's going to have Butterflies everywhere and a is going to be pink and purples. They have every possible childhood toy and gadget. And the clothes and shoes are just so much fun.They have the most beautiful smiles. All they want is to be loved and protected. Why don't we get the option to protect them? We do everything humanly possible and it's not nearly enough. There are no answers and there's a good chance there never will be. The best minds in the world are baffled. All you can do is tell them every day that you love them, are proud of them, and will be with them every step of the way. You also have to tell them if it's too much you understand and it's okay because you don't want them to be scared.Their spirit amazes you every day. They have such strength. Each day they teach you that you have so much more strength then you ever knew you had. They teach you things about the human spirit and experience that you would never have known existed if everything was okay. They teach you to sweat the small stuff because each one of those little things is so priceless.No matter how bad it is you still hold out hope for a miracle. Maybe one day they will get to spend some time in their nursery playing with all of their toys, watching their train, and naming all of the puppies. Sometimes these miracle do happen, but it's very rare. You take them to regular doctors, witch doctors, and anything else in between just for a chance to change the inevitable outcome. You try hippie products, every vitamin known to human kind, healing meditations, and even crystal tones.Then you have to say goodbye. How do you ever say goodbye? You've had your heart and soul torn out over and over again. How is that ever repaired? They look so beautiful - being sent off to play. You keep expecting them to just wake up and say something, anything or give you that look - and we all know that look. It never happens.Now you have to rebuild your life. Do you go back to the way it was before like nothing ever happened? How can you because you will never be the same person again? Where is that strength to put one foot in front of the other and conquer all obstacles that was here not that long ago? How do you tap back into that? How do you respond to others? There are just so many questions and still no answers.