o24life

I AM ONE OF TWO SURVIVING SIBLINGS WITH CYSTIC FIBROSIS (CF), WHERE ONCE THERE WERE SIX. MY NAME IS SIMONE.
The loss of my cousin Dean (29) sister Rosemary (36) and younger brother Andrew (34) to Cystic Fibrosis was life changing.
So began "O2 4 life", a live music night supported by some of Sydney's most talented bands to help raise awareness of Cystic Fibrosis and our need for funding to help find a cure.
Cystic Fibrosis is the most common serious genetic condition in Australia today, affecting one in every 2, 500 babies born here.
"O2 4 Life" represents what a Cystic Fibrosis person finds hardest to do "Breath!!" O2 is the symbol for oxygen and as we all need it to survive, "O2 4 Life!" was created.
I chose to do this through what I believe not only to be one of the the most powerful but also the most healing mediums, Music.
"O2 4 Life" utilizes Music to help support funding for research and heighten public awareness in the fight for Cystic Fibrosis.
*Raising awareness by holding live music events, based in Sydney Australia.
*To help educate people about Cystic Fibrosis and through this raise awareness and funding for research & possibly a cure.
*Aiming for the future as our survival depends on a cure.
O2 4 Life.” foremost is about raising public and community awareness for Cystic Fibrosis. It was not started in memory of my brother, sister, cousin or my friends that have passed from CF; it was however inspired by them to raise awareness and hopefully funding to find a cure for those of us here and those that will come, unless we find one.
SOME FACTS ABOUT CYSTIC FIBROSIS:
*CF is a terminal illness with no known cure.
*Cystic Fibrosis (CF) is an inherited chronic disease that affects the lungs and digestive systems of about 70,000 children and adults worldwide. in Australia there are approximately 2500 people with CF.
To have CF both parents must carry the gene.
*A defective gene causes the body to produce unusually thick, sticky mucus that: - clogs the lungs, repeated infections and blockages can cause irreversible lung damage, leading to death.
-obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. This in turn can lead to Diabetes, Osteoporosis, Liver problems, Heart and a myriad of other's
STATISTICS:
*Amongst people of Caucasian ancestry 1 out of 25 are genetic carriers for CF.
*About 80 new cases of Cystic Fibrosis are diagnosed each year.The incidence is 1 in every 2500 births.
*More than 80% of patients are diagnosed by the age of 3.
*At least 40% of the CF patient population is age 18 or older.
*In 2007, the median age of survival was nearly 33 years.
There is no cure for Cystic Fibrosis. CF is a life shortening condition and in the past most did not survive past childhood.
In December 2007 we hosted the 1st "O2 4 life" event. Performers in the 2007, O2 4 Life event were, Inakin, Stoneparade, Sound Casino and The Follow (The*art). Sponsors were Sydney Posters,Vagabar Newtown, Misterjukebox & Deuss Cafe, plus a number of friends and family.
O2 4 Life, 2008 performer's were The Violet Flames (from Melbourne), The Heart Break Club and we were pleased to announce that Aka Shaker (formerly Sound Casino) once again graced the stage as our headline act and last but certainly not least astreetlightsong doing their 1st all ages performance. .
Your talent and support will raise much needed promotion and community awareness. By getting involved you will be helping to find a cure that has the potential of saving thousands of lives not just here but world wide.If you want to support this cause all help is welcome, just contact me through myspace or facebook "o2 4 life cure cystic fibrosis"
you may also help support this cause by joining the causes page linked to this page. "O2 4 Life, Cause for a cure = Cystic Fibrosis." Awareness is the key.
This cause is not about raising money for Cystic Fibrosis, however if you wish to make a donation or contribute in some way please contact your local Cystic Fibrosis Association in your Country/State/territory, proceeds will go towards research and helping to fund projects, families etc...
Thanks for taking the time to read this.
Songs on this page are from the great Sydney and Perth bands who performed at this year's o2 4 Life 2008 gig.
A K A SHaKer (SOUND CASINO)
THE VIOLET FLAMES
HEARTBREAK CLUB
ASTREETLIGHTSONG
LIKE WHAT YOU HEAR?? GO VISIT THEIR MYSPACE PAGE, THEY WOULD LOVE TO HAVE YOU..