Praying for Ana Maria profile picture

Praying for Ana Maria

I am here for Friends and Networking

About Me

First off let me introduce myself. My name is Laurie, I am NOT Ana's mom, just a friend of the family. This page is dedicated to a 4 year old little girl by the name of Ana Maria (and her family) who lives in Bluffton, SC.Ana has Oxidative Phosphorylation Complex I Defect. Ana's defect is a primary Mitochondrial Disease. Ana's only chance for a cure is through God. Please consider praying for Ana on a daily basis.you can visit http://www.foundmm.org/documents/MitoDisorders.pdf for more info about mitochondrial disorders.ana's main site is http://www.helpcureanamaria.com/ and you can read ALL about her history and the process involved in finally getting a diagnosis there, i will be keeping this site updated with news, but you'll want to go to her other site for her backstory, as well as to learn more through her other links there.3 sisters: Emily, Isabelle, and Ana:Daddy and AnaMommy and baby Sage

My Interests

I'd like to meet:

thanks to make-a-wish:

My Blog

update!!! update!!! read all about it!

Thursday, May 07, 2009God is great! This week has been full of blessings. We have received donation after donation and they are still rolling in. Silent Auction items... drinks... food... etc... The n...
Posted by on Fri, 08 May 2009 21:06:00 GMT

bringing current thru april 30th, 2009

~~~~~~~~~~~~~~~laurie's note- sorry i haven'tĀ been postingĀ info from ana's main site lately. between my hubby's surgery, my pregnancy(and all the extra appointments i'm having due to some issues with ...
Posted by on Wed, 06 May 2009 20:33:00 GMT

update 3-20 thru 4-20 all in one

Monday, April 20, 2009Praise God! Thank you God for your promise to hear and answer our prayers!Thank you to everyone who has devoted time to prayer just for our sweet baby girl. Surgery went great! D...
Posted by on Wed, 06 May 2009 20:20:00 GMT

updates

Wednesday, March 25, 2009Update... Last night Ana's temp jumped to 104.7. With this she had lots of stomach pain. I gave Tylenol and five minutes later had to vent the g-tube. Tylenol is the only feve...
Posted by on Sat, 28 Mar 2009 18:03:00 GMT

decision has been made, long awaited update

Monday, March 09, 2009A long awaited update... There are so many "first's" that we thought we would never have with Ana. The Lord continues to bless us even in times such as these. We are so excited t...
Posted by on Tue, 10 Mar 2009 20:34:00 GMT

on the way home!

Thursday, March 05, 2009On our way home!!! We are out of the hospital and will be on our way home tomorrow! Dr. K had great news to report! Ana's manometry showed that her motility has drastically imp...
Posted by on Fri, 06 Mar 2009 16:49:00 GMT

not so good news today

Monday, March 02, 2009Not so good news... We left MUSC Sunday at 5AM. The trip started out smooth, but then Ana stopped tolerating feeds again. We got to Cincinnati Children's last night around 6:30PM...
Posted by on Mon, 02 Mar 2009 21:33:00 GMT

friday's updates

Friday, February 27, 2009Praise God!!! Ana is tolerating 25cc/hr of the formula!!! She still has a temp, but other than that she is doing well. The plan tomorrow is for me to go home and pack while Sh...
Posted by on Fri, 27 Feb 2009 20:39:00 GMT

musc is getting it together

MUSC is getting it together. MUSC has been more than wonderful. Dr. K is diligently trying to establish a care team for Ana here at MUSC. This is something we have been praying for, and we will contin...
Posted by on Tue, 24 Feb 2009 20:18:00 GMT

hospital room change

ana is now in room 746 at medical university of sc
Posted by on Tue, 24 Feb 2009 16:52:00 GMT