Breath of Hope profile picture

Breath of Hope

About Me

MISSION STATEMENTBreath of Hope exists to combat the congenital diaphragmatic hernia birth defect. We are committed to supporting parents, children, family members and friends facing the diagnosis of a congenital diaphragmatic hernia birth defect. We carry out this mission through promoting public awareness, supporting the medical community and encouraging research efforts to one day prevent or successfully treat all those diagnosed with a congenital diaphragmatic hernia.Breath of Hope provides the latest information on the treatment and care of the congenital diaphragmatic hernia birth defect. Breath of Hope provides emotional support to parents who are expecting a baby with the congenital diaphragmatic hernia birth defect and will provide emotional support to the parents of surviving and non-surviving children. Breath of Hope currently provides an online email listserv through Yahoo! Groups. This open forum of parents and relatives provides an environment where parents no longer feel alone and where they meet other families that have survived the trials and tribulations of the congenital diaphragmatic hernia birth defect.I edited my profile with Thomas Myspace Editor V4.4 (www.strikefile.com/myspace)
Click to join BreathofHope please visit www.cdhawareness.blogspot.com and check out breath of hope's video blog!

My Interests

I'd like to meet:

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Make an on-line slide show at www.OneTrueMedia.com ..
Make an on-line slide show at www.OneTrueMedia.com Breath of Hope would like to thank the governors of the following states for declaring March 31st, 2008 as diaphragmatic hernia awareness day: Alaska, Alabama, Arkansas, Connecticut, Colorado, Georgia, Illinois, Indiana, Iowa, Kansas, Kentucky, Louisiana, Maine, Maryland, Massachusetts, Michigan, Minnesota, Mississippi, Missouri, Nebraska, Nevada, New Hampshire, Ohio, Pennsylvania, Rhode Island, South Carolina, Tennessee, Texas, Utah, and Wisconsin. Breath of Hope would also like to thank President Felipe Calderon for declaring March 31st, 2008 NATIONAL diaphragmatic hernia awareness day in Mexico!

My Blog

LINKS TO MORE INFORMATION ON CDH

www.FetalSurgery.Chop.edu www.breathofhopeinc.com www.cdhawareness.blogspot.com www.arainbowofhope.com www.facesofcdhawareness.blogspot.com
Posted by on Tue, 27 May 2008 19:44:00 GMT

CDH Facts..

CDH occurs in every 1-2000 live births in the United States.CDH accounts for 8% of all major congenital anomalies.Approximately 1,800 babies are born each year with CDH.Approximately 50% of all babies...
Posted by on Sun, 20 Apr 2008 17:20:00 GMT

What is Congenital Diaphragmatic Hernia?

A congenital diaphragmatic hernia (commonly known as CDH) is an opening in the diaphragm (The dome-shaped muscle that seperates the chest cavity from the abdomen.) The hole allows the abdominal organ...
Posted by on Sun, 20 Apr 2008 17:15:00 GMT

The link between Cornelia de Lange syndrome and CDH

Cornelia de Lange syndrome is very rare, affecting roughly 1 in 10,000 to 1 in 30,000 babies born each year. It is a devastating genetic disorder that severely affects the child’s development in...
Posted by on Mon, 31 Mar 2008 13:38:00 GMT