I have just realized that I have been explaining and doing blogs about myself that they are coming accross wrong, I have a very rare disability, now I have done research on causalgis/RSD/CRPS and I am put in this catagory because there is no other catagory that comes close to what I have, people who have RSD and CRPS comes from and injury or they are diabetic and have neuropathy, I have none of that, now 99.9 percent of people with this is low extremity and only in one and what happens is this disease can move to the next extremity, a lot of research is still being done, people are getting relief from getting nerve blocks, and nerve stimulators and pain meds, I have had all of the above and it made things worse for me, the difference in what I have is I went in for surgery and I was cut open on both of the inside of my ankles at the same time, I came out of surgery with nerve damage, something really went wrong,now over time I went to another surgeon who told me that I have nerve damage from my knees to my feet so ten months after the first surgery I went back in and I was cut by my knee, on top of my foot and inside my ankle again, then ten weeks later same on the other leg, again I was now in big trouble, I have severe nerve damage in both extremitys to me feet, I have no where for this to go but up, see I don't just have RSD I have 100 percent complete nerve damage and I have been to five different hosptials in Boston and one of them I saw the Director of Neurology, and his words where, you are so chopped up there is nothing I can do for you, then my surgeon who did the 2nd and 3rd surgery faxed my medical records to the Dellon Institue in Baltimore MD were the Doctor who is the Professor at the Georgetown University read my medical records, and he said there is nothing I can do for her., now this Doctor and Professor was the one who taught both my surgeon to do Neuro surgery, when you are shut down from the top guy you know you are in trouble, so see my case is very rare, because if I just had an injury and got RSD the blocks and stimulators would help and so would the Doctors, I have also learned that no one ever had nerve surgery on both feet ever at the same time and people who have carpal tunnel, they would never do both arms at the same time and the reason being they could end up like me, so this is why I have been asking for help, I have a family and two daughters and grandchildren, I am only 48 years old, I was only married for one year and four days when all this started in Sept, 29 2005 where do I go from here., when evera door is being closed I try to keep opening them, I can not find anyone who can treatment for me for this except for high dose of opids to take care of this undescrible pain, I feel like lighting is shooting out of my toes, and my feet get so hot they turn red like an oven, same with my knees, but on top of the nerve damage in my knees I have arthritis, yes the surgeon never even did an xray on my knees before surgery, I had not one test, now after all the damage they have done to me, I can not find one Doctor here, so I wish I had the regular RSD and CRPS my life would be so much easier, my health Ins is only for Mass so I have been waiting two years to get medicaid so I can leave here and get medical attention where ever I can find my hero of a Doctor because I know he is out there, I will not give up, I hope I have explained this better this is why I did a blog at foundationneeded.blogspot.com but when people where reading it they thought gee people can get help for that, and yes they can, but I have something different I have so much nerve damage that it is starting to affect me in different ways, I wear a ponytail in my hair and when I take it out I can not even touch my head it hurts so much, I am also becoming very sensitive to light and I am getting headaches everyday now and the other problem is trying to comprehend reading or filling out aplications my mind can not remember things and I am on a drug for altzimers called namenda which stops the opid addiction, this is all slowly starting to happen, it has been over three years and all I have had for care is meds and I have been trying and reaching out to people who may have an answer or try and get me an interview, what would you do?????div style="position:absolute; top:0px; right:0px; width:130px; height:180px; display: block; margin:0; padding:0; z-index:3;">..tfoSite = 'vid_sundance09'; tfoHeight = '590'; tfoWidth = '385'......
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